Publications by authors named "Anne Berg"

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Caregiver-reported meaningful change in functional domains for individuals with developmental and epileptic encephalopathy: A convergent mixed-methods design.
Jenny Downs, Sophie Haywood, Natasha N Ludwig, Mary Wojnaroski, Rebecca Hommer, Anne T Berg

Dev Med Child Neurol· December 2025

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Retirement as risk or relief? The role of timing in mental, physical and cognitive health effects of retirement.
Isabelle Hansson, Anne Ingeborg Berg, Pär Bjälkebring, Sandra Buratti, Linda B Hassing

Eur J Ageing· December 2025

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Understanding lived experiences with KCNQ2 developmental and epileptic encephalopathy.
Michele H Potashman, Katja Rudell, Linda Abetz-Webb, Naomi Suminski, Audra Gold, Anne T Berg

Epilepsy Behav· November 2025

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Impact of non-seizure outcomes and caregiver priorities for young people with severe neurodevelopmental encephalopathy with or without epilepsy: A community survey.
Anne T Berg, Mary Wojnaroski, Natasha N Ludwig, Rebecca Hommer, Kelly Muzyczka

Eur J Paediatr Neurol· November 2025

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Neurodevelopmental features in KCNQ2 developmental and epileptic encephalopathy may have limited associations with K7.2 dysfunction.
Jessa S Bidwell, Carlos G Vanoye, Reshma R Desai, Anne T Berg, Alfred L George

Epilepsia Open· November 2025

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Comparative effectiveness of second-line treatments for epileptic spasms.
Kristen Barbour, Shaun A Hussain, Kelly G Knupp, Anne T Berg, Catherine J Chu

Epilepsia· October 2025

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Evidence demands action: An invitation to share the burden of proof.
Danielle M Andrade, Anne T Berg, Arunan Selvarajah, Andrea Sabo, Carolina Gorodetsky

Epilepsia· October 2025

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Vineland-3 Growth Scale Values: Psychometric Properties for Clinical Trial Readiness in SCN2A.
Aaron J Kaat, Lindsey Evans, Amanda N Nili, Katherine Paltell, Arielle Kaiser, Anne T Berg

J Child Adolesc Psychopharmacol· September 2025

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Caregiver-reported non-seizure and seizure outcomes with cannabidiol and clobazam in patients aged ≥2 years with Lennox-Gastaut syndrome or Dravet syndrome: A subgroup analysis of the BECOME survey.
M Scott Perry, Tracy Dixon-Salazar, Mary Anne Meskis, Sherry R Danese, Timothy B Saurer, Anne T Berg

Seizure· August 2025

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Pathways to change in existential group treatment: experiences from older adults with psychological distress in primary care.
Isak Erling, Carl Anton Waltersson, Margda Waern, Maria Tillfors, Sara Hed, Anne Ingeborg Berg

BMC Geriatr· July 2025

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Dravet syndrome: From neurodevelopmental to neurodegenerative disease?
Arunan Selvarajah, Andrea Sabo, Carolina Gorodetsky, Paula T Marques, Ilakkiah Chandran, Anne T Berg

Epilepsia· June 2025

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Gross Motor Function in Individuals With SCN2A-Related Disorders: The Clinical Trial Readiness Study.
Anne T Berg, Aaron J Kaat, Katherine Paltell, Ariela J E Kaiser, Amanda Nili

Neurol Clin Pract· June 2025

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Age-related changes in factors associated with self-rated health in Swedish older adults- findings from the Gothenburg H70 study cohort born 1930.
Karolina Thörnqvist, Lena Johansson, Maria Solevid, Anne Ingeborg Berg, Ingmar Skoog

BMC Geriatr· April 2025

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The Feasibility of Personalized Endpoints in Assessing Treatment Outcomes for Rare Diseases: A Pilot Study of Goal Attainment Scaling in SCN2A-Associated Developmental Epileptic Encephalopathy.
Gunes Sevinc, Kari Knox, Michelle George, Lindsey Evans, Ariela Kaiser, Anne T Berg

Value Health· March 2025

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Assessing Communication Impairments in a Rare Neurodevelopmental Disorder: The Clinical Trials Readiness Study.
Anne T Berg, Amanda N Nili, Lindsey Evans, Katherine C Paltell, Ariela J E Kaiser

Neurol Clin Pract· February 2025

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Novel approaches to measuring cognition in individuals with severe to profound functional impairment: A pilot study in SCN2A-related disorder.
Natasha N Ludwig, Mary Wojnaroski, Stacy J Suskauer, Beth S Slomine, Ariela Kaiser, Anne T Berg

Epilepsy Behav· November 2024

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Correction: Depressive symptoms across the retirement transition in men and women: associations with emotion regulation, adjustment difficulties and work centrality.
Sara Hed, Anne Ingeborg Berg, Isabelle Hansson, Marie Kivi, Margda Waern

BMC Geriatr· September 2024

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Expanded clinical phenotype spectrum correlates with variant function in SCN2A-related disorders.
Anne T Berg, Christopher H Thompson, Leah Schust Myers, Erica Anderson, Lindsey Evans

Brain· August 2024

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Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Adults with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations.
James W Mitchell, Frieda Sossi, Isabel Miller, Paula Blancarte Jaber, Zofia Das-Gupta, Anne T Berg

Epilepsia· July 2024

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Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Infants, Children, and Adolescents with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations.
James W Mitchell, Frieda Sossi, Isabel Miller, Paula Blancarte Jaber, Zofia Das-Gupta, Anne T Berg

Epilepsia· July 2024

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Depressive symptoms across the retirement transition in men and women: associations with emotion regulation, adjustment difficulties and work centrality.
Sara Hed, Anne Ingeborg Berg, Isabelle Hansson, Marie Kivi, Margda Waern

BMC Geriatr· July 2024

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Patient-advocate-led global coalition adapting fit-for-purpose outcomes measures to assure meaningful inclusion of DEEs in clinical trials.
JayEtta Hecker, Gabrielle Conecker, Chere Chapman, Rebecca Hommer, Natasha N Ludwig, Anne T Berg

Ther Adv Rare Dis· June 2024

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