Publications by authors named "M Driessens"

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People With Haemophilia as Data Coordinators: An Analysis of the Ethics and Feasibility of Self-Management With Personal Health Records.
Martijn R Brands, Lieke Baas, Mariette H Driessens, Samantha C Gouw, Rieke van der Graaf

Haemophilia· November 2025

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Real-world bleeding rates on emicizumab: the value of using nationwide digital treatment diary data in clinical research.
Martijn R Brands, Elisabeth M Taal, Martijn Oude Voshaar, Mariëtte H E Driessens, Caroline M E van Veen

Res Pract Thromb Haemost· February 2025

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Framework for Multistakeholder Patient Registries in the Field of Rare Diseases: Focus on Neurogenetic Diseases.
Daphne H Schoenmakers, Sibren van den Berg, Lonneke Timmers, Laura A Adang, Tobias Bäumer, Mariëtte H E Driessens

Neurology· September 2024

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Toward Personalized Care and Patient Empowerment and Perspectives on a Personal Health Record in Hemophilia Care: Qualitative Interview Study.
Martijn R Brands, Lotte Haverman, Jelmer J Muis, Mariëtte H E Driessens, Stephan Meijer

JMIR Hum Factors· September 2024

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Primary postpartum hemorrhage in women with von Willebrand disease and carriers of hemophilia: a retrospective analysis.
Marieke Punt, Fe van Leusden, Kitty Bloemenkamp, Michiel Coppens, Mariette Driessens

Res Pract Thromb Haemost· July 2024

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