Ann Intern Med October 2019 PMID 31499529

Establishing the Prevalence and Prevalence at Birth of Hemophilia in Males: A Meta-analytic Approach Using National Registries.

Alfonso Iorio, Jeffrey S Stonebraker, Hervé Chambost, Michael Makris, Donna Coffin, Christine Herr, Federico Germini

Mentions

55
Peak: 3 in Sep 2019
across 5 sources since Sep 2019

Extended reach

78,548
potential audience

Total likes

13

Video views

1,218

Mentions per month

Sep 2019 – Jun 2023

Where it's discussed

  • News42 articles
  • X / Twitter5 posts
  • YouTube3 videos
  • Blogs3 articles
  • Facebook2 posts

AI synopsis

What people are saying

The overall sentiment reflects moderate engagement with the publication, exemplified by mentions of using the study for planning educational content and a cautious attitude towards the methodology, as seen in phrases like 'not sure if the study approach here is standard or weak.' The tone and word choices indicate curiosity and a recognition of the study’s relevance, but limited deep analysis or advocacy, contributing to the moderate scores across the dimensions.

AgreementNeither agree nor disagree

Most posts acknowledge the study's significance but do not strongly endorse its conclusions, with some expressing uncertainty about methodology details.

InterestModerate interest

Posts show casual curiosity, especially around uses of the study in education or awareness, but lack deep analytical engagement.

EngagementModerate engagement

Discussions include referencing the publication for planning lessons or sharing brief reactions rather than detailed critiques or insights.

ImpactModerate impact

The talks hint at potential importance for education and awareness, but overall, the discussions suggest a moderate influence rather than transformative impact.

Abstract in brief

  • The study uses a meta-analytic approach on national registry data from multiple countries to estimate the prevalence and prevalence at birth of hemophilia in males, highlighting significant variability in prevalence estimates.
  • The findings show that the prevalence per 100,000 males is higher than previously thought, with specific rates for all severities and severe cases of hemophilia A and B, and that individuals with hemophilia experience a notable reduction in life expectancy.
  • The research estimates around 1.125 million people worldwide with hemophilia, emphasizing the importance of establishing prevalence at birth for better understanding the disease's burden, despite some data limitations such as adjustments for comorbid conditions or ethnicity.]

Top posts

Most liked on X and Bluesky
Annals of Int Med
@AnnalsofIM · X

New Annals for Educators: Establishing the Prevalence and Prevalence at Birth of #Hemophilia in Males. A Meta-analytic Approach Using National Registries. Use this resource to plan your lesson. #MedEd #MedTwitter #IDTwitter https://t.co/IAytNTCUFZ https://t.co/squLjePxg7

Oct 15, 2019 · 1 like · 72,510 followers View post →
oddgoo
@viriditax · X

@lynnekinst @acweyand OK, thanks for updating on that! This is what I found about population, but I’ll note this isn’t my particular field so I’m not sure if the study approach here is standard or weak https://t.co/WdwDqjqcYX

Nov 23, 2022 · 1 like · 1,083 followers View post →
Today's Hospitalist
@TodaysHospital · X

Establishing the Prevalence and Prevalence at Birth of Hemophilia in Males https://t.co/yFOAuFv6Wm

Sep 10, 2019 · 2,950 followers View post →
MHC
@mtnhealthcare · X

Establishing the Prevalence and Prevalence at Birth of Hemophilia in Males: A Meta-analytic… https://t.co/Pqs8Q8hVLg

Sep 11, 2019 · 725 followers View post →

All mentions

oddgoo
@viriditax · X

@lynnekinst @acweyand OK, thanks for updating on that! This is what I found about population, but I’ll note this isn’t my particular field so I’m not sure if the study approach here is standard or weak https://t.co/WdwDqjqcYX

Nov 23, 2022 · 1 like · 1,083 followers View post →
Annals of Int Med
@AnnalsofIM · X

New Annals for Educators: Establishing the Prevalence and Prevalence at Birth of #Hemophilia in Males. A Meta-analytic Approach Using National Registries. Use this resource to plan your lesson. #MedEd #MedTwitter #IDTwitter https://t.co/IAytNTCUFZ https://t.co/squLjePxg7

Oct 15, 2019 · 1 like · 72,510 followers View post →
Dr.Sanchayan Mandal
@sanchu153 · X

Establishing the #prevalence and prevalence at birth of #hemophilia in males: A meta-analytic approach using national registries https://t.co/kyRKD0xIWd #m3india

Sep 16, 2019 · 63 followers View post →
MHC
@mtnhealthcare · X

Establishing the Prevalence and Prevalence at Birth of Hemophilia in Males: A Meta-analytic… https://t.co/Pqs8Q8hVLg

Sep 11, 2019 · 725 followers View post →
Today's Hospitalist
@TodaysHospital · X

Establishing the Prevalence and Prevalence at Birth of Hemophilia in Males https://t.co/yFOAuFv6Wm

Sep 10, 2019 · 2,950 followers View post →