Choosing between medical management and liver transplant in urea cycle disorders: A conceptual framework for parental treatment decision-making in rare disease.
The discussions reflect a strong interest in the framework and factors influencing parental choices, with phrases like 'complex process' and 'tipping point' showing engagement with the content. Words like 'fascinating' and references to 'how parents cope' indicate a tone of curiosity and appreciation for the article's relevance in guiding treatment decisions, demonstrating its significant potential impact on understanding caregiver perspectives.
AgreementModerate agreement
Most discussions acknowledge the importance of the article and its exploration of parental decision-making, showing general support.
InterestHigh interest
The posts demonstrate high interest by highlighting the complexity of treatment choices and emphasizing the novelty of the research.
EngagementHigh engagement
Users actively reference specific aspects like the 'framework', 'tipping point', and the focus on how parents cope, indicating deep engagement.
ImpactHigh impact
The discussions suggest the publication offers meaningful insights into clinical decision processes, emphasizing its potential influence on healthcare approaches.
Abstract in brief
Parents of children with Urea Cycle Disorders face a difficult decision between medical management and liver transplantation, as both options have risks but limited comparative evidence.
The study uses interviews and focus groups to identify factors influencing treatment choices, such as disease severity, risks, family perceptions, peer experiences, costs, and access to care.
A conceptual framework is developed to help healthcare providers understand how these clinical, social, and personal factors interact, ultimately guiding more patient-centered treatment decisions and outcomes.]
Our “Something new” is this fascinating #openaccess paper from
Maya T. Gerstein et al exploring the factors influencing parental decision making when considering transplant. Decompensation is just one part of this.
https://t.co/VBTHVNPB9N https://t.co/GLLfK1aiY3
Feb 2, 2020 · 5 likes · 3 shares · 3,518 followersView post →
TD
The Journal of Inherited Metabolic Disease
@JIMD_Editors · X
Our ‘something new‘ was the last article posted in 2019. Gerstein et al looked at how parents cope with the dilemma of whether their child should be managed medically or by liver Tx.
They discuss what contributes to the “tipping point” between the two.
https://t.co/VBTHVNPB9N https://t.co/mEDvffT9zP
Jan 5, 2020 · 4 likes · 3 shares · 3,518 followersView post →
GM
GW Department of Health Policy & Management
@GWHPM950 · X
When a child is diagnosed with a urea cycle disorder, how do parents choose between medical management and liver transplant? Maya Gerstein of #GWSPH and colleagues present a framework for this complex process in @JIMD_Editors.
https://t.co/wjE9clhXir https://t.co/Lp4tAA2rjV
Jan 14, 2020 · 4 likes · 2 shares · 373 followersView post →
TD
The Journal of Inherited Metabolic Disease
@JIMD_Editors · X
RT @JIMD_Editors: Our “Something new” is this fascinating #openaccess paper from
Maya T. Gerstein et al exploring the factors influencing…
Feb 2, 2020 · 3 shares · 3,518 followersView post →
TD
The Journal of Inherited Metabolic Disease
@JIMD_Editors · X
RT @GWHPM950: When a child is diagnosed with a urea cycle disorder, how do parents choose between medical management and liver transplant?…
Jan 14, 2020 · 2 shares · 3,518 followersView post →
TD
The Journal of Inherited Metabolic Disease
@JIMD_Editors · X
RT @JIMD_Editors: Our ‘something new‘ was the last article posted in 2019. Gerstein et al looked at how parents cope with the dilemma of wh…
Jan 5, 2020 · 3 shares · 3,518 followersView post →
This video introduces urea cycle disorders, explaining the effects of high ammonia levels and discussing treatment options including diet, medicines, and liver transplantation. It provides foundational information for…
This video explores treatment options for urea cycle disorders, focusing on factors influencing the decision between medical management and liver transplantation, including risks, family perceptions, and access to care…
This video explores research comparing outcomes in patients with severe urea cycle disorders treated with diet and medicines or liver transplants. It discusses factors influencing treatment decisions and aims to inform…
Our “Something new” is this fascinating #openaccess paper from
Maya T. Gerstein et al exploring the factors influencing parental decision making when considering transplant. Decompensation is just one part of this.
https://t.co/VBTHVNPB9N https://t.co/GLLfK1aiY3
Feb 2, 2020 · 5 likes · 3 shares · 3,518 followersView post →
P
Prasad
@IamAPPrasad · X
RT @GWHPM950: When a child is diagnosed with a urea cycle disorder, how do parents choose between medical management and liver transplant?…
RT @GWHPM950: When a child is diagnosed with a urea cycle disorder, how do parents choose between medical management and liver transplant?…
Jan 14, 2020 · 2 shares · 3,518 followersView post →
GM
GW Department of Health Policy & Management
@GWHPM950 · X
When a child is diagnosed with a urea cycle disorder, how do parents choose between medical management and liver transplant? Maya Gerstein of #GWSPH and colleagues present a framework for this complex process in @JIMD_Editors.
https://t.co/wjE9clhXir https://t.co/Lp4tAA2rjV
Jan 14, 2020 · 4 likes · 2 shares · 373 followersView post →
S
SIMD
@SIMDtweets · X
RT @JIMD_Editors: Our ‘something new‘ was the last article posted in 2019. Gerstein et al looked at how parents cope with the dilemma of wh…
Jan 7, 2020 · 3 shares · 1,131 followersView post →
TD
The Journal of Inherited Metabolic Disease
@JIMD_Editors · X
RT @JIMD_Editors: Our ‘something new‘ was the last article posted in 2019. Gerstein et al looked at how parents cope with the dilemma of wh…
Jan 5, 2020 · 3 shares · 3,518 followersView post →
B
BIMDG
@BIMDG · X
RT @JIMD_Editors: Our ‘something new‘ was the last article posted in 2019. Gerstein et al looked at how parents cope with the dilemma of wh…
Jan 5, 2020 · 3 shares · 1,214 followersView post →
TD
The Journal of Inherited Metabolic Disease
@JIMD_Editors · X
Our ‘something new‘ was the last article posted in 2019. Gerstein et al looked at how parents cope with the dilemma of whether their child should be managed medically or by liver Tx.
They discuss what contributes to the “tipping point” between the two.
https://t.co/VBTHVNPB9N https://t.co/mEDvffT9zP
Jan 5, 2020 · 4 likes · 3 shares · 3,518 followersView post →
N
Essential Metals in Health Printed | PDF | Coordination Complex ...
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10.1002/ams2.334. (2007) 131–147, https://doi.org/10.1016/j.taap.2007.03.001 ... Smollin, Poisoning and Drug Overdose, eighth ed., McGraw, 2022. jimd.12488.