J Pain Symptom Manage September 2021 PMID 33556499

Improving End-of-Life Care for Persons Living With Dementia: Bereaved Caregivers' Observations and Recommendations.

Jarmin C Yeh, Jeff Newman, Rachel Main, Lauren J Hunt

Mentions

20
Peak: 14 in Feb 2021
across 3 sources since Feb 2021

Extended reach

30,353
potential audience

Total likes

26

Video views

51

Mentions per month

Feb 2021 – May 2024

Where it's discussed

  • X / Twitter14 posts
  • YouTube4 videos
  • Facebook2 posts

AI synopsis

What people are saying

The discussions reflect broad agreement and appreciation for the article, exemplified by phrases like 'important contribution' and mentions of how it highlights caregiver observations to improve care. The tone is generally supportive and acknowledges the need for better communication and training, which underscores the perceived significance and potential impact of the publication.

AgreementStrong agreement

The majority of discussions express strong support and affirmation for the publication, recognizing the importance of improving end-of-life care for dementia patients and valuing caregivers' insights.

InterestModerate interest

There is a moderate level of interest, with comments focusing on the significance of the topic and the authors' contributions, though without intense emotional engagement.

EngagementModerate engagement

Posts mainly acknowledge the article's importance and briefly mention key points, indicating basic engagement rather than deep analysis.

ImpactHigh impact

Several posts suggest that the publication could influence future practices and policy improvements, showing perceived high impact.

Abstract in brief

  • The study highlights that while most caregivers are satisfied with dementia end-of-life care, a significant portion feel improvements are needed, especially in communication, care coordination, and honoring patients' end-of-life wishes.
  • Caregivers generally felt prepared to discuss end-of-life decisions when the patient was near death, but many suggest these conversations should happen earlier in the disease process to better support families and patients.
  • Recommendations emphasize the importance of training healthcare providers to address the complex informational, emotional, and social support needs of persons with dementia and their caregivers throughout the entire decline.]

Top posts

Most liked on X and Bluesky
Journal of Pain and Symptom Management (JPSM)
@JPSMjournal · X

Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https://t.co/BytqG5tjvR

Feb 5, 2021 · 16 likes · 10 shares · 5,181 followers View post →
UCSF Geriatrics
@UCSFGeriatrics · X

Drs. Jarmin Yeh, Lauren Hunt (@laurenhuntRN), Jeff Newman, and Rachel Main published “Improving end-of-life care for persons living with dementia: Bereaved caregivers' observations and recommendations” in the Journal of Pain and Symptom Management. https://t.co/1hNIBzkCZN https://t.co/2I4VxAlJlT

Feb 18, 2021 · 5 likes · 2 shares · 4,786 followers View post →
Journal of Pain and Symptom Management (JPSM)
@JPSMjournal · X

RT @UCSFGeriatrics: Drs. Jarmin Yeh, Lauren Hunt (@laurenhuntRN), Jeff Newman, and Rachel Main published “Improving end-of-life care for pe…

Feb 22, 2021 · 2 shares · 5,181 followers View post →
UCSF Geriatrics
@UCSFGeriatrics · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 8, 2021 · 10 shares · 4,786 followers View post →
Mark Hazelwood (mostly on Bluesky)
@Palliative_Scot · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 5, 2021 · 10 shares · 3,875 followers View post →
Sandra Campbell(FRCN)
@SandraC65402031 · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 6, 2021 · 10 shares · 1,903 followers View post →

All mentions

Journal of Pain and Symptom Management (JPSM)
@JPSMjournal · X

RT @UCSFGeriatrics: Drs. Jarmin Yeh, Lauren Hunt (@laurenhuntRN), Jeff Newman, and Rachel Main published “Improving end-of-life care for pe…

Feb 22, 2021 · 2 shares · 5,181 followers View post →
UCSF Geriatrics
@UCSFGeriatrics · X

Drs. Jarmin Yeh, Lauren Hunt (@laurenhuntRN), Jeff Newman, and Rachel Main published “Improving end-of-life care for persons living with dementia: Bereaved caregivers' observations and recommendations” in the Journal of Pain and Symptom Management. https://t.co/1hNIBzkCZN https://t.co/2I4VxAlJlT

Feb 18, 2021 · 5 likes · 2 shares · 4,786 followers View post →
Jarmin Yeh
@jarmin_yeh · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 14, 2021 · 10 shares · 1,027 followers View post →
Eileen McGinley
@EileenMcGinley2 · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 10, 2021 · 10 shares · 170 followers View post →
Paperbirds_Neurology
@PaperbirdsN · X

New article: Improving end-of-life care for persons living with dementia: Bereaved caregivers' observations and recommendations. https://t.co/ixeJoX2gCJ #alzheimers #neurology https://t.co/MDxOOM0HM5

Feb 9, 2021 · 457 followers View post →
sabio Health
@sabioHealth · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 8, 2021 · 10 shares · 326 followers View post →
UCSF Geriatrics
@UCSFGeriatrics · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 8, 2021 · 10 shares · 4,786 followers View post →
Sandra Campbell(FRCN)
@SandraC65402031 · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 6, 2021 · 10 shares · 1,903 followers View post →
Palliative Medicine Research Group
@WakePMRC · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 5, 2021 · 10 shares · 432 followers View post →
PsychiatryAI.com
@PsychiatryAIcom · X

Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https://t.co/Va7PqQD4Im

Feb 5, 2021 · 435 followers View post →
Mark Hazelwood (mostly on Bluesky)
@Palliative_Scot · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 5, 2021 · 10 shares · 3,875 followers View post →
Deans Buchanan
@dbuch17 · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 5, 2021 · 10 shares · 1,403 followers View post →
Melinda Szöllősi
@MeliSzollosi · X

RT @JPSMjournal: Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https:/…

Feb 5, 2021 · 10 shares · 133 followers View post →
Journal of Pain and Symptom Management (JPSM)
@JPSMjournal · X

Improving end-of-life care for persons living with dementia: Bereaved caregivers’ observations and recommendations https://t.co/BytqG5tjvR

Feb 5, 2021 · 16 likes · 10 shares · 5,181 followers View post →