BMC Public Health April 2021 PMID 33879117

The potential dangers of not understanding COVID-19 public health restrictions in dementia: "It's a groundhog day - every single day she does not understand why she can't go out for a walk".

Clarissa Giebel, Kerry Hanna, Manoj Rajagopal, Aravind Komuravelli, Jacqueline Cannon, Justine Shenton, Ruth Eley, Anna Gaughan, Steve Callaghan, Hilary Tetlow, Stan Limbert, Rosie Whittington, Carol Rogers, Kym Ward, Lisa Shaw

Mentions

62
Peak: 38 in Apr 2021
across 3 sources since Apr 2021

Extended reach

259,510
potential audience

Total likes

58

Video views

177

Mentions per month

Apr 2021 – Dec 2021

Where it's discussed

  • X / Twitter58 posts
  • YouTube2 videos
  • Blogs2 articles

AI synopsis

What people are saying

The overall tone of the discussions demonstrates strong agreement with the article's findings, with examples like mentions of the phrase 'groundhog day' illustrating daily struggles faced by individuals with dementia, and calls for improved communication and tailored support. The words and tone convey urgency and concern, emphasizing the importance of understanding and addressing these vulnerabilities to protect loved ones and improve caregiving practices.

AgreementStrong agreement

Most discussions acknowledge the research highlighting the difficulties and dangers faced by people with dementia in understanding COVID-19 restrictions, strongly supporting the publication’s claims.

InterestHigh interest

The social discussions consistently focus on the importance and urgency of addressing this issue, showing high curiosity and concern among participants.

EngagementHigh engagement

Many posts reference specific findings, call for better communication strategies, and emphasize the real-world implications, indicating deep engagement.

ImpactHigh impact

The discussions aim to raise awareness, influence public health policies, and emphasize protecting vulnerable populations, suggesting high potential for societal impact.

Abstract in brief

  • People with dementia often struggle to understand COVID-19 restrictions, leading to distress for both them and their carers, and sometimes causing them to put themselves in danger.
  • Carers report that many people with dementia have limited to no comprehension of public health measures, which increases their vulnerability and complicates their care.
  • To better protect people with dementia, public health guidelines should be simplified and tailored to their needs, as blanket restrictions can cause unnecessary distress and misunderstandings.]

Top posts

Most liked on X and Bluesky
Dr Clarissa Giebel
@ClarissaGiebel · X

*NEW*

Apr 21, 2021 · 37 likes · 29 shares · 4,884 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

Did you know that people with #dementia struggle understanding #COVID19 restrictions and can put themselves in danger? Read more here https://t.co/OHKKJhh2UI

Apr 27, 2021 · 4 likes · 4 shares · 4,884 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

How do people with #dementia understand #COVID19 public health restrictions? https://t.co/OHKKJhyEji

Sep 15, 2021 · 4 likes · 3 shares · 4,884 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

The potential dangers of not understanding #COVID19 public health restrictions in #dementia: “It’s a groundhog day – every single day she does not understand why she can’t go out for a walk” https://t.co/OHKKJhyEji

Jun 9, 2021 · 3 likes · 1 share · 4,884 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

Did you know that many people with #dementia struggle understanding #COVID19 restrictions, & can put themselves in danger? https://t.co/OHKKJhyEji

Apr 29, 2021 · 3 likes · 1 share · 4,884 followers View post →
ARC North West Coast
@arc_nwc · X

#DementiaActionWeek: “It’s a groundhog day – every single day she does not understand why she can’t go out for a walk”: This ARC NWC paper warns of the potential dangers of not understanding COVID-19 public health restrictions in dementia: https://t.co/qXsvAQbz0b

May 18, 2021 · 2 likes · 2 shares · 4,897 followers View post →

All mentions

Impact of COVID-19 on Dementia Care Services

Stan Limbert, living with early onset Alzheimer's, highlights the severe impact COVID-19 has had on dementia services. This video discusses the challenges faced by the dementia community, including service closures and…

ARC NWC · May 20, 2021 89 views
Dr Clarissa Giebel
@ClarissaGiebel · X

(5) Our research also showed the difficulties, and dangers ⚡️, of not understanding #COVID19 restrictions in #dementia, with people with dementia at times placing themselves in dangerous situations https://t.co/OHKKJhyEji

Dec 14, 2021 · 1 like · 4,884 followers View post →
Andrew Morris
@andrewmorrisuk · X

RT @ClarissaGiebel: Understanding and adhering to #COVID19 restrictions, which were ever changing in the UK/ England, has been difficult fo…

Dec 7, 2021 · 1 share · 15,373 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

Understanding and adhering to #COVID19 restrictions, which were ever changing in the UK/ England, has been difficult for many people with #dementia - about to share our findings at @LTCcovid conference shortly: https://t.co/OHKKJhyEji

Dec 7, 2021 · 1 share · 4,884 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

People with #dementia often struggle understanding #COVID19 restrictions - some of the research Hilary has been involved with #LiverpoolDementia: https://t.co/OHKKJhyEji

Nov 3, 2021 · 1 like · 4,884 followers View post →
Chris Roberts.
@mason4233 · X

RT @LleisiauW: How we communicate messages/ restrictions is so important. The risk to those that find it difficult. The ability to keep up…

Sep 19, 2021 · 1 share · 14,317 followers View post →
Clh
@clhclhhiggsees · X

RT @ClarissaGiebel: How do people with #dementia understand #COVID19 public health restrictions? https://t.co/OHKKJhyEji

Sep 15, 2021 · 3 shares · 604 followers View post →
Lleisiau DEMENTIA - Voices From Wales
@LleisiauW · X

How we communicate messages/ restrictions is so important. The risk to those that find it difficult. The ability to keep up with changing regulations an issue for many. more consideration or support should have been given.(members view) note report ⬇️ https://t.co/3aPzXdKqT8

Sep 15, 2021 · 1 share · 367 followers View post →
Lleisiau DEMENTIA - Voices From Wales
@LleisiauW · X

RT @ClarissaGiebel: How do people with #dementia understand #COVID19 public health restrictions? https://t.co/OHKKJhyEji

Sep 15, 2021 · 3 shares · 367 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

How do people with #dementia understand #COVID19 public health restrictions? https://t.co/OHKKJhyEji

Sep 15, 2021 · 4 likes · 3 shares · 4,884 followers View post →
Dr Kerry Hanna
@KerryLHanna · X

RT @ClarissaGiebel: The potential dangers of not understanding COVID-19 public health restrictions in #dementia: “It’s a groundhog day – ev…

Jul 10, 2021 · 3 shares · 224 followers View post →
Hilary Tetlow
@HilaryTetlow · X

RT @ClarissaGiebel: The potential dangers of not understanding COVID-19 public health restrictions in #dementia: “It’s a groundhog day – ev…

Jul 9, 2021 · 3 shares · 470 followers View post →
Janis Cottee
@janis_cottee · X

RT @ClarissaGiebel: The potential dangers of not understanding COVID-19 public health restrictions in #dementia: “It’s a groundhog day – ev…

Jul 9, 2021 · 3 shares · 3,574 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

The potential dangers of not understanding COVID-19 public health restrictions in #dementia: “It’s a groundhog day – every single day she does not understand why she can’t go out for a walk” @KerryLHanna @HilaryTetlow @lbsorg https://t.co/OHKKJhyEji

Jul 9, 2021 · 2 likes · 3 shares · 4,884 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

The potential dangers of not understanding COVID-19 public health restrictions in #dementia:“It’s a groundhog day –every single day she does not understand why she can’t go out for a walk” @alzheimerssoc @AlzCanada @AlzheimerEurope @3NDWG @InterdemEurope https://t.co/OHKKJhyEji

Jun 29, 2021 · 4,884 followers View post →
Hilary Tetlow
@HilaryTetlow · X

RT @ClarissaGiebel: The potential dangers of not understanding #COVID19 public health restrictions in #dementia: “It’s a groundhog day – ev…

Jun 9, 2021 · 1 share · 470 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

The potential dangers of not understanding #COVID19 public health restrictions in #dementia: “It’s a groundhog day – every single day she does not understand why she can’t go out for a walk” https://t.co/OHKKJhyEji

Jun 9, 2021 · 3 likes · 1 share · 4,884 followers View post →
Hilary Tetlow
@HilaryTetlow · X

RT @arc_nwc: #DementiaActionWeek: “It’s a groundhog day – every single day she does not understand why she can’t go out for a walk”: This A…

May 18, 2021 · 2 shares · 470 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

RT @arc_nwc: #DementiaActionWeek: “It’s a groundhog day – every single day she does not understand why she can’t go out for a walk”: This A…

May 18, 2021 · 2 shares · 4,884 followers View post →
ARC North West Coast
@arc_nwc · X

#DementiaActionWeek: “It’s a groundhog day – every single day she does not understand why she can’t go out for a walk”: This ARC NWC paper warns of the potential dangers of not understanding COVID-19 public health restrictions in dementia: https://t.co/qXsvAQbz0b

May 18, 2021 · 2 likes · 2 shares · 4,897 followers View post →
Sarah Rodgers
@GeographySarah · X

RT @ClarissaGiebel: People with #dementia can often struggle understanding #COVID19 public health restrictions, that's why we suggest 3 dif…

May 5, 2021 · 4 shares · 933 followers View post →
Hilary Tetlow
@HilaryTetlow · X

RT @ClarissaGiebel: Did you know that many people with #dementia struggle understanding #COVID19 restrictions, & can put themselves in dang…

Apr 29, 2021 · 1 share · 470 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

Did you know that many people with #dementia struggle understanding #COVID19 restrictions, & can put themselves in danger? https://t.co/OHKKJhyEji

Apr 29, 2021 · 3 likes · 1 share · 4,884 followers View post →
Hilary Tetlow
@HilaryTetlow · X

RT @ClarissaGiebel: Did you know that people with #dementia struggle understanding #COVID19 restrictions and can put themselves in danger?…

Apr 28, 2021 · 4 shares · 470 followers View post →
ARC North West Coast
@arc_nwc · X

RT @ClarissaGiebel: Did you know that people with #dementia struggle understanding #COVID19 restrictions and can put themselves in danger?…

Apr 28, 2021 · 4 shares · 4,897 followers View post →
Sandra SmithMND
@SandraSmithmnd · X

RT @ClarissaGiebel: Did you know that people with #dementia struggle understanding #COVID19 restrictions and can put themselves in danger?…

Apr 28, 2021 · 4 shares · 3,359 followers View post →
Wigan Borough Dementia Friendly Community
@Wigan_DAA · X

RT @ClarissaGiebel: Did you know that people with #dementia struggle understanding #COVID19 restrictions and can put themselves in danger?…

Apr 27, 2021 · 4 shares · 863 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

Did you know that people with #dementia struggle understanding #COVID19 restrictions and can put themselves in danger? Read more here https://t.co/OHKKJhh2UI

Apr 27, 2021 · 4 likes · 4 shares · 4,884 followers View post →
Janis Cottee
@janis_cottee · X

RT @ClarissaGiebel: *NEW*

Apr 26, 2021 · 29 shares · 3,574 followers View post →
BMC
@BioMedCentral · X

People living with dementia are struggling to comprehend COVID-19 public health restrictions, according to a study published in #BMCPublicHealth. The study authors impart several recommendations to support the well-being of those with dementia and carers. https://t.co/vjtUWrtBSK

Apr 26, 2021 · 1 share · 75,415 followers View post →
tide - together in dementia everyday
@tide_carers · X

RT @ClarissaGiebel: *NEW*

Apr 26, 2021 · 29 shares · 5,258 followers View post →
Manoj Rajagopal
@ManojRajagopal · X

RT @ClarissaGiebel: *NEW*

Apr 24, 2021 · 29 shares · 699 followers View post →
Hilary Tetlow
@HilaryTetlow · X

RT @ClarissaGiebel: People with #dementia can often struggle understanding #COVID19 public health restrictions, that's why we suggest 3 dif…

Apr 22, 2021 · 4 shares · 470 followers View post →
Aravind Komuravelli
@AravindKomurav2 · X

RT @ClarissaGiebel: *NEW*

Apr 22, 2021 · 29 shares · 16 followers View post →
Jean Gajardo
@jean_gajardo · X

RT @ClarissaGiebel: People with #dementia can often struggle understanding #COVID19 public health restrictions, that's why we suggest 3 dif…

Apr 22, 2021 · 4 shares · 1,141 followers View post →
Dementia at Bradford
@Dementia_UoB · X

RT @ClarissaGiebel: People with #dementia can often struggle understanding #COVID19 public health restrictions, that's why we suggest 3 dif…

Apr 22, 2021 · 4 shares · 3,635 followers View post →
Lauren Bridgstock
@LEBridgstock · X

RT @ClarissaGiebel: *NEW*

Apr 22, 2021 · 29 shares · 197 followers View post →
Mal (she/her)
@Mal_RahmanAmin · X

RT @ClarissaGiebel: *NEW*

Apr 22, 2021 · 29 shares · 432 followers View post →
Wigan Borough Dementia Friendly Community
@Wigan_DAA · X

RT @ClarissaGiebel: *NEW*

Apr 22, 2021 · 29 shares · 863 followers View post →
Andrea Slachevsky - XYZverse TEAM
@ASlachevsky · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 5,408 followers View post →
Sandra SmithMND
@SandraSmithmnd · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 3,359 followers View post →
Dr Helen Findlay
@helenfindlay · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 5,608 followers View post →
PACT - Primary care Academic CollaboraTive
@GPPACT · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 2,588 followers View post →
Caroline Sutcliffe
@CaroSutty · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 88 followers View post →
Jean Gajardo
@jean_gajardo · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 1,141 followers View post →
Hilary Tetlow
@HilaryTetlow · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 470 followers View post →
Raymond Smith
@_Raymond_Smith · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 758 followers View post →
Jennifer Baumbusch (she/her)
@GERONursing · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 3,819 followers View post →
Dr Benjamin Saunders
@BSaunders30 · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 636 followers View post →
Emily Jones
@emilyjonesmed · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 2,037 followers View post →
The Brain Charity
@TheBrainCharity · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 15,748 followers View post →
International Psychogeriatrics
@IPG_Journal · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 394 followers View post →
Catrin Hein
@heini_heinbokel · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 6 followers View post →
Distance Carers
@dist_care · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 834 followers View post →
Adelina ComasHerrera
@AdelinaCoHe · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 6,024 followers View post →
Morgan R G-D
@mrgriffithdavid · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 818 followers View post →
Lewy Body Society
@lbsorg · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 5,442 followers View post →
ARC North West Coast
@arc_nwc · X

RT @ClarissaGiebel: *NEW*

Apr 21, 2021 · 29 shares · 4,897 followers View post →
Dr Clarissa Giebel
@ClarissaGiebel · X

*NEW*

Apr 21, 2021 · 37 likes · 29 shares · 4,884 followers View post →