Health Expect April 2022 PMID 34403189

Experiences of self-care during the COVID-19 pandemic among individuals with rheumatoid arthritis: A qualitative study.

Jenny Leese, Catherine L Backman, Jasmin K Ma, Cheryl Koehn, Alison M Hoens, Kelly English, Eileen Davidson, Shanon McQuitty, James Gavin, Jo Adams, Stephanie Therrien, Linda C Li

Mentions

53
Peak: 35 in Aug 2021
across 2 sources since Aug 2021

Extended reach

137,816
potential audience

Total likes

65

Video views

95

Mentions per month

Aug 2021 – Oct 2023

Where it's discussed

  • X / Twitter52 posts
  • YouTube1 videos

AI synopsis

What people are saying

The discussions underscore the importance of the research, with words like 'great read,' 'important study,' and mentions of adaptation and managing emotions reflecting genuine interest. The tone is supportive and emphasizes the relevance of the findings for improving self-care and healthcare communication during crises.

AgreementModerate agreement

Most discussions support the article and its findings, emphasizing the importance of understanding self-care during the pandemic.

InterestHigh interest

The discussions show high curiosity and relevance, especially through mentions of adapting, managing emotions, and healthcare strategies.

EngagementModerate engagement

Participants are actively referencing specific aspects of the study, such as emotional resilience and communication changes, indicating moderate engagement.

ImpactModerate impact

The emphasis on informing healthcare strategies and supporting chronic disease management suggests a moderate yet meaningful influence.

Abstract in brief

  • The study explored how people with rheumatoid arthritis (RA) managed self-care during the COVID-19 pandemic, focusing on changes in activities, emotional resilience, and communication with healthcare providers.
  • Key themes identified include adaptations to maintain self-care and prevent virus transmission, strategies for managing emotions and building resilience, and positive experiences with remote healthcare consultations.
  • The findings offer insights for healthcare professionals on how to support self-care and optimize remote consultations for patients with RA and other chronic illnesses during ongoing and future health crises.]

Top posts

Most liked on X and Bluesky
Linda Li
@LLi_1 · X

A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 16 likes · 14 shares · 1,266 followers View post →
JointHealth
@ACEJointHealth · X

Aug 17, 2021 · 12 likes · 8 shares · 6,476 followers View post →
Mwidimi Ndosi
@ndosie · X

EULAR Study Group on Patient Education Journal Club resumed yesterday morning Dr James Gavin @JGavin85 led the discussion on the experiences of self-care by people with rheumatoid #arthritis during the #pandemic Paper https://t.co/2WV0cujl76 @eular_org #studygroup #eularHPP https://t.co/WwOpIYbOXy

Apr 21, 2023 · 11 likes · 2 shares · 1,966 followers View post →
JointHealth
@ACEJointHealth · X

JointHealth™ express - #ArthritisAtHome Episode 90 – Experiences of self-care during the COVID-19 pandemic among individuals w/rheumatoid arthritis. Watch now➡️https://t.co/h0b5bRJCuH #ArthritisAwarenessMonth @CherylKoehn @Arthritis_ARC @jen_leese @LLi_1 @VCHArthritis @anetto https://t.co/nJPBD1tJrk

Sep 3, 2021 · 8 likes · 5 shares · 6,476 followers View post →
Jenny Leese, PhD
@JennyLeeseKT · X

Adapting. Managing emotions. Experiences shared by people with rheumatoid arthritis during COVID-19 in British Columbia. Do they resonate?   @CherylKoehn @shanonmc @steveston_gal @PhysioKTBroker @chroniceileen @ProulxLaurie @anetto @brachaniec_mary https://t.co/sgUjxdDuw8

Aug 17, 2021 · 8 likes · 8 shares · 278 followers View post →
Arthritis & Implementation Science Lab
@Arthritis_UBC · X

@JennyLeeseKT & team share Part 1 in 2021: Experiences of self-care during the COVID-19 pandemic among individuals with rheumatoid arthritis: A qualitative study

Oct 25, 2023 · 3 likes · 2 shares · 2,210 followers View post →

All mentions

Cathy Leese
@CL_1956 · X

RT @Arthritis_UBC: @JennyLeeseKT & team share Part 1 in 2021: Experiences of self-care during the COVID-19 pandemic among individuals with…

Oct 26, 2023 · 2 shares · 15 followers View post →
Codie Primeau (he/him; il)
@CodiePrimeau · X

RT @Arthritis_UBC: @JennyLeeseKT & team share Part 1 in 2021: Experiences of self-care during the COVID-19 pandemic among individuals with…

Oct 25, 2023 · 2 shares · 364 followers View post →
Arthritis & Implementation Science Lab
@Arthritis_UBC · X

@JennyLeeseKT & team share Part 1 in 2021: Experiences of self-care during the COVID-19 pandemic among individuals with rheumatoid arthritis: A qualitative study

Oct 25, 2023 · 3 likes · 2 shares · 2,210 followers View post →
Dr Emma Cowley-White
@EmmaCowleyWhite · X

RT @ndosie: EULAR Study Group on Patient Education Journal Club resumed yesterday morning Dr James Gavin @JGavin85 led the discussion on t…

Apr 24, 2023 · 2 shares · 1,208 followers View post →
Dr Sarah E. Bennett
@DrSarahBennett · X

RT @ndosie: EULAR Study Group on Patient Education Journal Club resumed yesterday morning Dr James Gavin @JGavin85 led the discussion on t…

Apr 21, 2023 · 2 shares · 735 followers View post →
Mwidimi Ndosi
@ndosie · X

EULAR Study Group on Patient Education Journal Club resumed yesterday morning Dr James Gavin @JGavin85 led the discussion on the experiences of self-care by people with rheumatoid #arthritis during the #pandemic Paper https://t.co/2WV0cujl76 @eular_org #studygroup #eularHPP https://t.co/WwOpIYbOXy

Apr 21, 2023 · 11 likes · 2 shares · 1,966 followers View post →
Linda Li
@LLi_1 · X

RT @anetto: Experiences of self‐care during the COVID‐19 pandemic among individuals with rheumatoid arthritis https://t.co/fIH7MyYCFZ Adapt…

Sep 19, 2021 · 1 share · 1,266 followers View post →
Annette McKinnon
@anetto · X

Experiences of self‐care during the COVID‐19 pandemic among individuals with rheumatoid arthritis https://t.co/fIH7MyYCFZ Adapting to maintain self‐care Managing emotion Changing communication with health professionals #rheum @JennyLeeseKT @LLi_1 #ArthritisAwarenessMonth

Sep 18, 2021 · 1 like · 1 share · 10,533 followers View post →
We're not on X anymore – formerly @PifOnline
@PiFonline · X

A study exploring the impact of COVID-19 on the #SelfCare of people with rheumatoid arthritis aims to help inform healthcare staff and researchers on ways to support self care strategies: https://t.co/gZbfEU7wXA Via @WileyHealth

Sep 14, 2021 · 1 like · 3,681 followers View post →
LASingh1
@LASingh1 · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Sep 5, 2021 · 14 shares · 56 followers View post →
Dr. Jackie Whittaker
@jwhittak_physio · X

RT @ACEJointHealth: JointHealth™ express - #ArthritisAtHome Episode 90 – Experiences of self-care during the COVID-19 pandemic among indivi…

Sep 3, 2021 · 5 shares · 6,884 followers View post →
ArthritisBC+Me
@ArthritisBC_Me · X

RT @ACEJointHealth: JointHealth™ express - #ArthritisAtHome Episode 90 – Experiences of self-care during the COVID-19 pandemic among indivi…

Sep 3, 2021 · 5 shares · 509 followers View post →
Eileen Davidson - Rheumatoid Arthritis Advocate
@chroniceileen · X

RT @ACEJointHealth: JointHealth™ express - #ArthritisAtHome Episode 90 – Experiences of self-care during the COVID-19 pandemic among indivi…

Sep 3, 2021 · 5 shares · 4,349 followers View post →
Annette McKinnon
@anetto · X

RT @ACEJointHealth: JointHealth™ express - #ArthritisAtHome Episode 90 – Experiences of self-care during the COVID-19 pandemic among indivi…

Sep 3, 2021 · 5 shares · 10,533 followers View post →
Cheryl Koehn
@CherylKoehn · X

RT @ACEJointHealth: JointHealth™ express - #ArthritisAtHome Episode 90 – Experiences of self-care during the COVID-19 pandemic among indivi…

Sep 3, 2021 · 5 shares · 2,079 followers View post →
JointHealth
@ACEJointHealth · X

JointHealth™ express - #ArthritisAtHome Episode 90 – Experiences of self-care during the COVID-19 pandemic among individuals w/rheumatoid arthritis. Watch now➡️https://t.co/h0b5bRJCuH #ArthritisAwarenessMonth @CherylKoehn @Arthritis_ARC @jen_leese @LLi_1 @VCHArthritis @anetto https://t.co/nJPBD1tJrk

Sep 3, 2021 · 8 likes · 5 shares · 6,476 followers View post →
@DrMroz@mstdn.ca and @drmroz.bsky.social
@DrMroz · X

Experiences of self‐care during the COVID‐19 pandemic among individuals with rheumatoid arthritis: A qualitative study - Leese - - Health Expectations - Wiley Online Library https://t.co/Oz0k4eUJCq

Sep 1, 2021 · 2,159 followers View post →
Linda Li
@LLi_1 · X

RT @ACEJointHealth:

Aug 24, 2021 · 8 shares · 1,266 followers View post →
JGavin85
@JGavin85 · X

New paper on self-care for rheumatoid arthritis self-during Covid-19 https://t.co/yyjsn10abE @jen_leese @HSciences

Aug 23, 2021 · 3 likes · 153 followers View post →
Anne Townsend
@aftjae · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 19, 2021 · 14 shares · 2,044 followers View post →
Anne Townsend
@aftjae · X

RT @JennyLeeseKT: Adapting. Managing emotions. Experiences shared by people with rheumatoid arthritis during COVID-19 in British Columbia.…

Aug 19, 2021 · 8 shares · 2,044 followers View post →
Dr. Davina Banner
@DavinaBanner · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 18, 2021 · 14 shares · 598 followers View post →
Jasmin Ma
@JasminKMa · X

RT @ACEJointHealth:

Aug 18, 2021 · 8 shares · 975 followers View post →
Jasmin Ma
@JasminKMa · X

RT @JennyLeeseKT: Adapting. Managing emotions. Experiences shared by people with rheumatoid arthritis during COVID-19 in British Columbia.…

Aug 18, 2021 · 8 shares · 975 followers View post →
Clare Jacklin
@Clare_NRAS · X

RT @ACEJointHealth:

Aug 18, 2021 · 8 shares · 857 followers View post →
Arthritis & Implementation Science Lab
@Arthritis_UBC · X

RT @ACEJointHealth:

Aug 18, 2021 · 8 shares · 2,210 followers View post →
NFTdose
@PaperbirdsH · X

New article: Experiences of self-care during the COVID-19 pandemic among individuals with rheumatoid arthritis: A qualitative study https://t.co/IJoB1ols38 #coronavirus #COVID19 #2019ncov https://t.co/bUFRJYzizb

Aug 18, 2021 · 301 followers View post →
Karine Toupin April
@toupinak · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 14 shares · 823 followers View post →
G~
@GinaRClark · X

RT @JennyLeeseKT: Adapting. Managing emotions. Experiences shared by people with rheumatoid arthritis during COVID-19 in British Columbia.…

Aug 17, 2021 · 8 shares · 1,576 followers View post →
KT Canada
@KTCanada · X

RT @ACEJointHealth:

Aug 17, 2021 · 8 shares · 3,800 followers View post →
OlgaHuertas
@chocolateyes_ · X

RT @ACEJointHealth:

Aug 17, 2021 · 8 shares · 14 followers View post →
Cheryl Koehn
@CherylKoehn · X

RT @ACEJointHealth:

Aug 17, 2021 · 8 shares · 2,079 followers View post →
Eileen Davidson - Rheumatoid Arthritis Advocate
@chroniceileen · X

RT @ACEJointHealth:

Aug 17, 2021 · 8 shares · 4,349 followers View post →
JointHealth
@ACEJointHealth · X

Aug 17, 2021 · 12 likes · 8 shares · 6,476 followers View post →
Linda Truong // LT
@LKTphysio · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 14 shares · 2,460 followers View post →
CIHR-IMHA Community
@CIHR_IMHA · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 14 shares · 1,289 followers View post →
Annette McKinnon
@anetto · X

RT @JennyLeeseKT: Adapting. Managing emotions. Experiences shared by people with rheumatoid arthritis during COVID-19 in British Columbia.…

Aug 17, 2021 · 8 shares · 10,533 followers View post →
Eileen Davidson - Rheumatoid Arthritis Advocate
@chroniceileen · X

RT @JennyLeeseKT: Adapting. Managing emotions. Experiences shared by people with rheumatoid arthritis during COVID-19 in British Columbia.…

Aug 17, 2021 · 8 shares · 4,349 followers View post →
Arthritis & Implementation Science Lab
@Arthritis_UBC · X

RT @JennyLeeseKT: Adapting. Managing emotions. Experiences shared by people with rheumatoid arthritis during COVID-19 in British Columbia.…

Aug 17, 2021 · 8 shares · 2,210 followers View post →
Knowledge Translation Program
@kt_program · X

RT @JennyLeeseKT: Adapting. Managing emotions. Experiences shared by people with rheumatoid arthritis during COVID-19 in British Columbia.…

Aug 17, 2021 · 8 shares · 2,143 followers View post →
Arthritis Research Canada
@Arthritis_ARC · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 14 shares · 6,593 followers View post →
Cheryl Koehn
@CherylKoehn · X

@JennyLeeseKT @ACEJointHealth Heads up members and fllwrs! This is an important study by for and with people with arthritis through the #COVID19 pandemic. Huge thanks to Dr Jenny Leese for her leadership and partnership! Find out what we learned ➡️https://t.co/CETBEjkm1g

Aug 17, 2021 · 2 likes · 2,079 followers View post →
Cheryl Koehn
@CherylKoehn · X

RT @JennyLeeseKT: Adapting. Managing emotions. Experiences shared by people with rheumatoid arthritis during COVID-19 in British Columbia.…

Aug 17, 2021 · 8 shares · 2,079 followers View post →
Jenny Leese, PhD
@JennyLeeseKT · X

Adapting. Managing emotions. Experiences shared by people with rheumatoid arthritis during COVID-19 in British Columbia. Do they resonate?   @CherylKoehn @shanonmc @steveston_gal @PhysioKTBroker @chroniceileen @ProulxLaurie @anetto @brachaniec_mary https://t.co/sgUjxdDuw8

Aug 17, 2021 · 8 likes · 8 shares · 278 followers View post →
Jenny Leese, PhD
@JennyLeeseKT · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 14 shares · 278 followers View post →
KT Canada
@KTCanada · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 14 shares · 3,800 followers View post →
Bongani Mayosi Health Sciences Library (BMHSL)
@uct_bmhsl · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 14 shares · 1,598 followers View post →
Catherine Backman
@cath_back · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 14 shares · 1,837 followers View post →
Knowledge Translation Program
@kt_program · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 14 shares · 2,143 followers View post →
Cheryl Koehn
@CherylKoehn · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 14 shares · 2,079 followers View post →
Eileen Davidson - Rheumatoid Arthritis Advocate
@chroniceileen · X

RT @LLi_1: A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 14 shares · 4,349 followers View post →
Linda Li
@LLi_1 · X

A great read by Jenny Leese w/ Patient Partners in

Aug 17, 2021 · 16 likes · 14 shares · 1,266 followers View post →