Clin Transl Sci March 2023 PMID 36510699

Clinical, methodology, and patient/carer expert advice in pediatric drug development by conect4children.

Katharine Cheng, Fenna Mahler, Irja Lutsar, Begonya Nafria Escalera, Stefanie Breitenstein, Gilles Vassal, Joana Claverol, Nuria Noel Palacio, Ron Portman, Gavin Pope, Martijn Bakker, Tessa van der Geest, Mark A Turner, Saskia N de Wildt

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Mentions

Peak: 7 in Dec 2022

across 2 sources since Dec 2022

Extended reach

21,329

potential audience

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Mentions per month

Dec 2022 – Jun 2023

Where it's discussed

X / Twitter13 posts
YouTube1 videos

AI synopsis

What people are saying

The discussions demonstrate a strong positive perception of the article, with comments like 'A must read' and highlighting the opportunity to explain the need for patient involvement, indicating high interest and moderate engagement. The tone suggests that stakeholders see the publication as an important step forward in pediatric drug development, emphasizing its relevance and potential impact in the field.

AgreementModerate agreement

Most discussions express support and positive views about the publication, emphasizing the importance of expert advice and patient involvement.

InterestHigh interest

The posts show high interest, with multiple mentions of the publication, its significance, and calls to learn more, reflecting engagement and curiosity.

EngagementModerate engagement

Participants refer to specific aspects like the role of patient involvement and the structure of pediatric trials, indicating moderate to deep engagement.

ImpactModerate impact

The discussions highlight the publication’s potential to influence pediatric trial design and stakeholder practices, albeit more as a shared interest than immediate change.

Abstract in brief

The c4c project is an initiative aimed at improving pediatric drug development by creating a Europe-wide network of experts to support designing better clinical trials for children, often using off-label medicines.
The project involves a structured process where sponsors seek advice through interviews and expert meetings, receiving tailored recommendations that incorporate patient and family input, which enhances trial feasibility and innovation.
As of September 2022, c4c successfully handled multiple advice requests, demonstrating that its multidisciplinary, expert-driven approach is effective and well-received by both sponsors and patient representatives in developing pediatric medicines.]

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Optimizing Pediatric Drug Development with Clinical and Patient Expert Advice

This video discusses the c4c initiative's approach to improving pediatric drug development by creating a Europe-wide network of experts to support clinical trial design, incorporating patient and family input for better…

Medicine RTCL TV · Jun 21, 2023 14 views

James Kerwin

@JamesKerwin9 · X

Clinical, methodology, and patient/carer expert advice in pediatric drug development by conect4children #c4cExpertGroupLeads https://t.co/CXFd7bZz1L

Feb 1, 2023 · 142 followers View post →

Lindsey Hunter

@LindseyAHunter · X

RT @c4c_network: A must read: the recently published paper by @CTSJournal regarding ‘’Clinical, methodology, and patient/carer expert advic…

Jan 31, 2023 · 3 shares · 136 followers View post →

ECNP

@ecnptweets · X

RT @c4c_network: A must read: the recently published paper by @CTSJournal regarding ‘’Clinical, methodology, and patient/carer expert advic…

Jan 30, 2023 · 3 shares · 5,183 followers View post →

Magda

@MagdaEfpia · X

RT @c4c_network: A must read: the recently published paper by @CTSJournal regarding ‘’Clinical, methodology, and patient/carer expert advic…

Jan 21, 2023 · 3 shares · 757 followers View post →

conect4children

@c4c_network · X

Jan 16, 2023 · 4 likes · 3 shares · 877 followers View post →

UCL Discovery

@ucl_discovery · X

Open Access UCL Research: Clinical, methodology, and patient/carer expert advice in pediatric drug development by conect4children https://t.co/3GwXa7r6am

Jan 6, 2023 · 2,516 followers View post →