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The discussions highlight the critical nature of the article, with posts emphasizing the ongoing issue of underdiagnosis and undertreatment of HoFH, such as 'systemically underdiagnosed' and 'identification of patients in large eHR database.' The tone is generally optimistic and urgent, using words like 'exciting,' 'opportunities,' and 'must improve' to convey the importance and potential impact of the research on future healthcare practices.
Most discussions express support and emphasize the importance of the research, highlighting its relevance to patient care and recognition of systemic issues in diagnosis and treatment.
Posts show high curiosity about the findings, with mentions of the registry data and potential benefits, indicating strong engagement with the topic.
Numerous comments discuss the implications of the study for clinical practice, underline the importance of early diagnosis, and acknowledge efforts made over several years, reflecting deep understanding and active participation.
There is a consensus that the research has significant potential to influence clinical guidelines and improve patient outcomes, as reflected by phrases like 'exciting opportunities' and 'systemic underdiagnosis.'
Congrats @TheFHFoundation on new study of homozygous FH patients in CASCADE FH U.S. registry, and identification of patients in large eHR database highlighting exciting opportunities to inc diagnosis and close treatment gaps for this high-risk condition https://t.co/BmMWH2t4lJ https://t.co/TSPQeS6EIT
Contemporary Homozygous FH in the United States by @TheFHFoundation ! Very proud of this effort more than 10 years in the making. Persistence pays off for patients w HoFH @KAWilemon @CBallantyneMD @DrMaryMcGowan https://t.co/Zb4BiyyDjA
Data from the @TheFHFoundation database show that homozygous familial hypercholesterolemia is systemically underdiagnosed and undertreated in the United States. #KnowFH #FindFH https://t.co/2IWmvynW2Z Via @JAHA_AHA https://t.co/2IMxoNkTyh
Data from the CASCADE FH Registry and the Family Heart Database shows most patients with homozygous familial hypercholesterolemia are underdiagnosed and undertreated. #AHAJournals @CBallantyneMD @AllisonJamison2 @joshuawknowles https://t.co/5Kc4TRRhiL https://t.co/80upFeEaOb
Thank you to the @Regeneron team for the invitation to present our latest research on HoFH in honor of #RareDiseaseDay2024. I was honored to be joined by @KAWilemon and @AllisonJamison2 for this highly engaging and enjoyable session.
Mary P McGowan MD explains homozygous familial hypercholesterolemia (HoFH), a rare genetic disorder leading to very high cholesterol levels. Despite advances in treatment, HoFH remains underdiagnosed and difficult to…
Homozygous Familial Hypercholesterolemia is a rare, treatment-resistant genetic disorder causing early cardiovascular disease. Despite progress with new medications, many patients remain undiagnosed and undertreated…
RT @FamilyHeartCMO: Thank you to the @Regeneron team for the invitation to present our latest research on HoFH in honor of #RareDiseaseDay2…
Thank you to the @Regeneron team for the invitation to present our latest research on HoFH in honor of #RareDiseaseDay2024. I was honored to be joined by @KAWilemon and @AllisonJamison2 for this highly engaging and enjoyable session.
Data from the CASCADE FH Registry and the Family Heart Database shows most patients with homozygous familial hypercholesterolemia are underdiagnosed and undertreated. #AHAJournals @CBallantyneMD @AllisonJamison2 @joshuawknowles https://t.co/5Kc4TRRhiL https://t.co/80upFeEaOb
RT @amitvkhera: Congrats @TheFHFoundation on new study of homozygous FH patients in CASCADE FH U.S. registry, and identification of patien…
RT @amitvkhera: Congrats @TheFHFoundation on new study of homozygous FH patients in CASCADE FH U.S. registry, and identification of patien…
RT @amitvkhera: Congrats @TheFHFoundation on new study of homozygous FH patients in CASCADE FH U.S. registry, and identification of patien…
RT @amitvkhera: Congrats @TheFHFoundation on new study of homozygous FH patients in CASCADE FH U.S. registry, and identification of patien…
RT @amitvkhera: Congrats @TheFHFoundation on new study of homozygous FH patients in CASCADE FH U.S. registry, and identification of patien…
RT @amitvkhera: Congrats @TheFHFoundation on new study of homozygous FH patients in CASCADE FH U.S. registry, and identification of patien…
RT @MuinJKhoury: Data from the @TheFHFoundation database show that homozygous familial hypercholesterolemia is systemically underdiagnosed…
RT @joshuawknowles: Contemporary Homozygous FH in the United States by @TheFHFoundation ! Very proud of this effort more than 10 years in…
Congrats @TheFHFoundation on new study of homozygous FH patients in CASCADE FH U.S. registry, and identification of patients in large eHR database highlighting exciting opportunities to inc diagnosis and close treatment gaps for this high-risk condition https://t.co/BmMWH2t4lJ https://t.co/TSPQeS6EIT
RT @MuinJKhoury: Data from the @TheFHFoundation database show that homozygous familial hypercholesterolemia is systemically underdiagnosed…
RT @MuinJKhoury: Data from the @TheFHFoundation database show that homozygous familial hypercholesterolemia is systemically underdiagnosed…
RT @MuinJKhoury: Data from the @TheFHFoundation database show that homozygous familial hypercholesterolemia is systemically underdiagnosed…
RT @TheFHFoundation:
RT @joshuawknowles: Contemporary Homozygous FH in the United States by @TheFHFoundation ! Very proud of this effort more than 10 years in…
RT @joshuawknowles: Contemporary Homozygous FH in the United States by @TheFHFoundation ! Very proud of this effort more than 10 years in…
RT @TheFHFoundation:
RT @joshuawknowles: Contemporary Homozygous FH in the United States by @TheFHFoundation ! Very proud of this effort more than 10 years in…
RT @MuinJKhoury: Data from the @TheFHFoundation database show that homozygous familial hypercholesterolemia is systemically underdiagnosed…
RT @joshuawknowles: Contemporary Homozygous FH in the United States by @TheFHFoundation ! Very proud of this effort more than 10 years in…
RT @joshuawknowles: Contemporary Homozygous FH in the United States by @TheFHFoundation ! Very proud of this effort more than 10 years in…
RT @joshuawknowles: Contemporary Homozygous FH in the United States by @TheFHFoundation ! Very proud of this effort more than 10 years in…
Contemporary Homozygous FH in the United States by @TheFHFoundation ! Very proud of this effort more than 10 years in the making. Persistence pays off for patients w HoFH @KAWilemon @CBallantyneMD @DrMaryMcGowan https://t.co/Zb4BiyyDjA
RT @MuinJKhoury: Data from the @TheFHFoundation database show that homozygous familial hypercholesterolemia is systemically underdiagnosed…
RT @TheFHFoundation:
Study reveals systemic underdiagnosis and undertreatment of homozygous #familialhypercholesterolemia @JAHA_AHA https://t.co/aRG0BN0Gt7 https://t.co/aizZh7LttB
RT @TheFHFoundation:
@TheFHFoundation analysis shows that HCPs often don’t follow the @AmerAcadPeds and NIH recs for ped lipid screening. If HoFH children are not diagnosed, they become adults with irreversible heart damage. They deserve better. #KnowFH #KnowHoFH https://t.co/spWZmqo8IO
RT @MuinJKhoury: Data from the @TheFHFoundation database show that homozygous familial hypercholesterolemia is systemically underdiagnosed…
Data from the @TheFHFoundation database show that homozygous familial hypercholesterolemia is systemically underdiagnosed and undertreated in the United States. #KnowFH #FindFH https://t.co/2IWmvynW2Z Via @JAHA_AHA https://t.co/2IMxoNkTyh