Pediatrics January 2024 PMID 38165241

What Families of Children With Medical Complexity Say They Need: Humanism in Care Delivery Change.

Bethlyn Vergo Houlihan, Cara Coleman, Dennis Z Kuo, Benjamin Plant, Meg Comeau

Mentions

6
Peak: 4 in Jul 2024
across 2 sources since Apr 2024

Extended reach

7,811
potential audience

Total likes

7

Video views

693

Mentions per month

Apr 2024 – Dec 2025

Where it's discussed

  • X / Twitter4 posts
  • YouTube2 videos

AI synopsis

What people are saying

Discussions reflect strong alignment with the article's call for a humanistic approach, with comments highlighting the need for dignity, trust, and family support, and tone emphasizing urgency and importance. Phrases like 'transforming healthcare systems' and 'valuing the child's whole person' demonstrate a focus on meaningful change and deep engagement with the topic.

AgreementModerate agreement

Most discussions agree with the article's emphasis on human-centered care, highlighting the importance of valuing families' perspectives and dignity.

InterestHigh interest

The discussions demonstrate high interest, with participants engaging actively with the topic and emphasizing the relevance to improving care systems.

EngagementModerate engagement

Posts reference key themes like quality of life, trust, and family support, indicating a thoughtful and moderate level of engagement.

ImpactModerate impact

Participants suggest the article could influence care practices, advocating for systemic change that prioritizes humanism in healthcare.

Abstract in brief

  • Families with children who have medical complexity emphasize the need for care systems to prioritize human dignity by valuing the child's whole person and promoting joy and quality of life.
  • They call for a shift towards relationship-based care, trust-building, better communication, and increased family-to-family support to make systems more human-centered.
  • Families highlight the urgency of transforming dehumanizing healthcare systems that often reduce children's lives to medical diagnoses, stressing the importance of dignity, respect, and meaningful well-being.

Top posts

Most liked on X and Bluesky
CYSHCNet - Pediatric Health Systems Researchers
@CyshcNetwork · X

New! Listen to Bethlyn Vergo Houlihan and Meg Comeau discuss the perspectives of families of children with medical complexity on what is needed to promote quality of life and well-being. The Complex Care Journal Club podcast is available on all platforms! https://t.co/c0nLRa5Nrb https://t.co/zn4TBXO5KE

Jul 1, 2024 · 2 likes · 1 share · 338 followers View post →
SSWR
@SSWRorg · X

Article: "What Families of Children With Medical Complexity Say They Need: Humanism in Care Delivery Change:" https://t.co/gxjY2R6Bjq

Apr 24, 2024 · 5,570 followers View post →
North Dakota NDCPD
@NDCPDatMSU · X

Upholding Human Dignity for Children with Medical Complexity and their Families- https://t.co/ve6WLDYgQ5

Jul 30, 2024 · 1,174 followers View post →
Lindsay Marszal
@LindsayMarszal · X

RT @CyshcNetwork: New! Listen to Bethlyn Vergo Houlihan and Meg Comeau discuss the perspectives of families of children with medical comple…

Jul 1, 2024 · 1 share · 32 followers View post →

All mentions

North Dakota NDCPD
@NDCPDatMSU · X

Upholding Human Dignity for Children with Medical Complexity and their Families- https://t.co/ve6WLDYgQ5

Jul 30, 2024 · 1,174 followers View post →
Lindsay Marszal
@LindsayMarszal · X

RT @CyshcNetwork: New! Listen to Bethlyn Vergo Houlihan and Meg Comeau discuss the perspectives of families of children with medical comple…

Jul 1, 2024 · 1 share · 32 followers View post →
CYSHCNet - Pediatric Health Systems Researchers
@CyshcNetwork · X

New! Listen to Bethlyn Vergo Houlihan and Meg Comeau discuss the perspectives of families of children with medical complexity on what is needed to promote quality of life and well-being. The Complex Care Journal Club podcast is available on all platforms! https://t.co/c0nLRa5Nrb https://t.co/zn4TBXO5KE

Jul 1, 2024 · 2 likes · 1 share · 338 followers View post →
SSWR
@SSWRorg · X

Article: "What Families of Children With Medical Complexity Say They Need: Humanism in Care Delivery Change:" https://t.co/gxjY2R6Bjq

Apr 24, 2024 · 5,570 followers View post →