Publications by authors named "Alice Heaney"

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COSMIN reviews: the need to consider measurement theory, modern measurement and a prospective rather than retrospective approach to evaluating patient-based measures.
Stephen P McKenna, Alice Heaney

J Med Econ· October 2021

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Assessment of the performance of the Brazilian Portuguese Nottingham Health Profile in adult growth hormone deficiency and pulmonary hypertension.
Alice Heaney, Rafael W R de Oliveira, Mariana Bizzi, Ricardo Amorim Correa, Monica Corso Pereira

F1000Res· October 2021

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Setting and maintaining standards for patient-reported outcome measures: can we rely on the COSMIN checklists?
Stephen P McKenna, Alice Heaney

J Med Econ· September 2021

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Evaluation of the Unidimensional Fatigue Impact Scale (U-FIS) in Crohn's Disease: The Importance of Local Item Dependency.
Alice Heaney, Stephen P McKenna, Peter Hagell

J Nurs Meas· September 2021

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The Polish adaptation of the CAMbridge Pulmonary Hypertension Outcome Review (CAMPHOR).
Katarzyna Małaczynska-Rajpold, Anna Smukowska-Gorynia, Alice Heaney, Stephen P McKenna, Magdalena Janus

Cardiol J· August 2021

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Fundamental Outcome Measurement: Selecting Patient Reported Outcome Instruments and Interpreting the Data they Produce.
Stephen P McKenna, Alice Heaney, Paul C Langley

Innov Pharm· May 2021

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International Development of the Alzheimer's Patient Partners Life Impact Questionnaire (APPLIQue).
Stephen P McKenna, Matthew Rouse, Alice Heaney, Peter Hagell

Am J Alzheimers Dis Other Demen· February 2021

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Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language.
Rafaela Silva Guimaraes Gonçalves, Alice Heaney, Stephen P McKenna, Jonas Braynner Carvalho, Maria Eduarda Lima Vidal

Adv Rheumatol· February 2021

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Adaptation and validation of the Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire for use in Bulgaria.
Daliya Tsvetanova Pencheva, Alice Heaney, Stephen P McKenna, Simeon Valentinov Monov

Rheumatol Int· December 2020

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The development of the PlexiQoL: A patient-reported outcome measure for adults with neurofibromatosis type 1-associated plexiform neurofibromas.
Alice Heaney, Jeanette Wilburn, Matthew Rouse, Shannon Langmead, Jaishri O Blakeley

Mol Genet Genomic Med· December 2020

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Composite outcome measurement in clinical research: the triumph of illusion over reality?
Stephen P McKenna, Alice Heaney

J Med Econ· October 2020

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Adaptation and validation of the quality of life assessment of the Cambridge pulmonary hypertension outcome review (CAMPHOR) for Brazil.
Ricardo Amorim Corrêa, Monica Corso Pereira, Mariana Ferreira Bizzi, Rafael W R de Oliveira, Camila Farnese Rezende, Alice Heaney

J Patient Rep Outcomes· June 2020

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Improving Scoring Precision and Internal Construct Validity of the Bath Ankylosing Spondylitis Disease Activity Index Using Rasch Measurement Theory.
Alice Heaney, Stephen P McKenna, Peter Hagell, Raj Sengupta

J Rheumatol· March 2020

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Validation of Rheumatoid Arthritis Quality of Life (RAQoL) Questionnaire into Portuguese Language.
Catia Duarte, Fabio Fernandes, Nathalie Madeira, Patricia Pinto, Carolina Furtado, Alice Heaney

Acta Reumatol Port· January 2020

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Cross-cultural adaptation of the Cambridge Pulmonary Hypertension Outcome Review for use in patients with pulmonary hypertension in Colombia.
Claudio Villaquirán, Socorro Moreno, Rubén Dueñas, Paola Acuña, Juan Ricardo Lutz, Alice Heaney

J Bras Pneumol· July 2019

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Measurement of patient-reported outcomes. 1: The search for the Holy Grail.
Stephen P McKenna, Alice Heaney, Jeanette Wilburn, A Jackson Stenner

J Med Econ· June 2019

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Measurement of patient-reported outcomes. 2: Are current measures failing us?
Stephen P McKenna, Alice Heaney, Jeanette Wilburn

J Med Econ· June 2019

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Needs-based quality of life in adults dependent on home parenteral nutrition.
Sorrel T Burden, Debra J Jones, Matthew Gittins, Joanne Ablett, Michael Taylor, Alice Heaney

Clin Nutr· June 2019

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Translation, cross-cultural adaptation and validation of the Osteoarthritis Quality of Life (OAQoL) questionnaire for use in Portugal.
João Lagoas Gomes, Ana Filipa Águeda, Alice Heaney, Cátia Duarte, Carina Lopes

Rheumatol Int· April 2019

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ADAPTATION AND VALIDATION OF THE CAMBRIDGE PULMONARY HYPERTENSION OUTCOME REVIEW (CAMPHOR) FOR CROATIA.
Ana Hećimović, Alice Heaney, Stephen P McKenna, Latinka Basara, Marko Jakopović

Acta Clin Croat· March 2019

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​ Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.
Catia Duarte, Anabela Barcelos, João Lagoas Gomes, Jessica Stepanous, Jeanette Wilburn, Alice Heaney

Acta Reumatol Port· February 2019

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A qualitative study of the impact of plexiform neurofibromas on need fulfilment in adults with neurofibromatosis type 1.
Alice Heaney, Jeanette Wilburn, Shannon Langmead, Jaishri Blakeley, Susan Huson

SAGE Open Med· February 2019

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A Review of the Psychometric Properties and Use of the Rheumatoid Arthritis Quality of Life Questionnaire (RAQoL) in Clinical Research.
Alice Heaney, Jessica Stepanous, Matthew Rouse, Stephen P McKenna

Curr Rheumatol Rev· August 2018

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Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition.
Jeanette Wilburn, Stephen P McKenna, Alice Heaney, Matthew Rouse, Michael Taylor

Clin Nutr· June 2018

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The impact of Home Parenteral Nutrition on the lives of adults with Type 3 Intestinal Failure.
Alice Heaney, Stephen P McKenna, Jeanette Wilburn, Matthew Rouse, Michael Taylor

Clin Nutr ESPEN· April 2018

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