Publications by authors named "Angela Rylands"

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Health-related quality of life in French pediatric patients with X-linked hypophosphatemia: real-world data from the International XLH Registry.
Agnès Linglart, Cyril Amouroux, Iva Gueorguieva, Jerome Harambat, Jean-Pierre Salles, Angela Rylands

JBMR Plus· October 2025

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Health-related quality of life and productivity burden for non-professional caregivers of adults with rare diseases: a real-world study.
Ben Johnson, Gregor Gibson, Daniel Baskerville, Giorgio Castellano, Jonathan de Courcy, Angela Rylands

Orphanet J Rare Dis· June 2025

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Impact of stopping burosumab treatment at the end of skeletal growth in adolescents with X-linked hypophosphatemia (XLH).
Charlotte Jarvis, Renuka Ramakrishnan, Poonam Dharmaraj, Talat Mushtaq, Sanjay Gupta, Angela J Rylands

Bone Rep· March 2025

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Rocatinlimab Improves Patient-Reported Outcomes in Adults with Moderate-to-Severe Atopic Dermatitis: Results from a Double-Blind Placebo-Controlled Phase 2b Study.
Melinda Gooderham, Emma Guttman-Yassky, Ken Igawa, Kenji Kabashima, Ehsanollah Esfandiari, Angela J Rylands

Dermatol Ther (Heidelb)· December 2024

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A patient-centred and multi-stakeholder co-designed observational prospective study protocol: Example of the adolescent experience of treatment for X-linked hypophosphataemia (XLH).
Vrinda Saraff, Annemieke M Boot, Agnès Linglart, Oliver Semler, Pol Harvengt, Angela J Rylands

PLoS One· January 2024

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Development and Psychometric Validation of the 27 Item Zarit Caregiver Interview for Alzheimer's Disease (ZCI-AD-27).
Coen A Bernaards, Kathrin I Fischer, Angela J Rylands, Adam Gater, Chloe Tolley

Curr Alzheimer Res· March 2023

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Benefit of burosumab in adults with X-linked hypophosphataemia (XLH) is maintained with long-term treatment.
Peter Kamenicky, Karine Briot, Maria Luisa Brandi, Martine Cohen-Solal, Rachel K Crowley, Angela J Rylands

RMD Open· February 2023

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Carer burden in rare inherited diseases: a literature review and conceptual model.
Kerry Sandilands, Angela Williams, Angela J Rylands

Orphanet J Rare Dis· December 2022

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Musculoskeletal Features in Adults With X-linked Hypophosphatemia: An Analysis of Clinical Trial and Survey Data.
Muhammad Kassim Javaid, Leanne Ward, Rafael Pinedo-Villanueva, Angela J Rylands, Angela Williams

J Clin Endocrinol Metab· February 2022

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Patient-Reported Complications, Symptoms, and Experiences of Living With X-Linked Hypophosphatemia Across the Life-Course.
Moira Cheung, Angela J Rylands, Angela Williams, Karen Bailey, Judith Bubbear

J Endocr Soc· August 2021

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Defining the Characteristics of Chronic Hypoparathyroidism Not Adequately Controlled on Conventional Therapy: Consensus Findings of Three European Delphi Panels.
Kamran Iqbal, Nin Dass, Christina Gip, Juan Vila, Angela J Rylands

Adv Ther· November 2019

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Establishing Equivalence of Electronic Clinician-Reported Outcome Measures.
Rebecca L M Fuller, Cynthia W McNamara, William R Lenderking, Chris Edgar, Angela Rylands

Ther Innov Regul Sci· January 2016

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Pre- and postsynaptic serotonergic differences in males with extreme levels of impulsive aggression without callous unemotional traits: a positron emission tomography study using (11)C-DASB and (11)C-MDL100907.
Angela J Rylands, Rainer Hinz, Matthew Jones, Sophie E Holmes, Maria Feldmann

Biol Psychiatry· December 2012

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A functional magnetic resonance imaging paradigm of expressed emotion in schizophrenia.
Angela J Rylands, Shane McKie, Rebecca Elliott, J F William Deakin, Nicholas Tarrier

J Nerv Ment Dis· January 2011

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