Publications by authors named "Avril Daly"

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Prioritising the Burden of Geographic Atrophy and Treatment Expectations: A Modified Nominal Group Technique Study with International Patient-Led Organisations.
Nabin Paudel, Ellen M Moran, Sinead Stafford, Kelly McVicker, Petia Stratieva, Avril Daly

Clin Ophthalmol· September 2025

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The Impacts of Caregiving for Patients with X-Linked Retinitis Pigmentosa (XLRP): Findings from the EXPLORE XLRP-2 Study.
Michel Weber, Francesco Parmeggiani, Dominique Bremond-Gignac, Avril Daly, Marjolein Lahaye

Adv Ther· June 2025

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Valuing patients' high unmet need to drive innovative therapies for inherited retinal degenerations: insights from the RIWC 2024 workshop on value.
Nabin Paudel, Avril Daly

Front Med (Lausanne)· March 2025

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The burden of X-linked retinitis pigmentosa (XLRP) on patient experience and patient-reported outcomes (PROs): findings from the EXPLORE XLRP-2 study.
Francesco Parmeggiani, Michel Weber, Dominique Bremond-Gignac, Avril Daly, Tom Denee

Eye (Lond)· February 2025

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Economic Burden of Late-Stage Age-Related Macular Degeneration in Bulgaria, Germany, and the US.
Nabin Paudel, Laura Brady, Petia Stratieva, Orla Galvin, Beverly Lui, Avril Daly

JAMA Ophthalmol· December 2024

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Therapies for Inherited Retinal Dystrophies: What is Enough?
Bart P Leroy, Avril Daly, Elise Héon, José-Alain Sahel, Hélène Dollfus

Drug Discov Today· September 2024

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The Landscape of Genomic Services for Inherited Retinal Degenerations (IRDs) Across Europe.
Nabin Paudel, Avril Daly, Ellen Margaret Moran, Petia Stratieva

Clin Ophthalmol· August 2024

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Genetic Testing Experiences of People Living with Inherited Retinal Degenerations: Results of a Global Survey.
Nabin Paudel, Avril Daly, Fiona Waters, Petia Stratieva

Ophthalmic Res· April 2024

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Correction: Save our Sight (SOS): a collective call-to-action for enhanced retinal care across health systems in high income countries.
Anat Loewenstein, Alan Berger, Avril Daly, Catherine Creuzot-Garcher, Richard Gale

Eye (Lond)· February 2024

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Save our Sight (SOS): a collective call-to-action for enhanced retinal care across health systems in high income countries.
Anat Loewenstein, Alan Berger, Avril Daly, Catherine Creuzot-Garcher, Richard Gale

Eye (Lond)· November 2023

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The Impact of Inherited Retinal Diseases in the United States of America (US) and Canada from a Cost-of-Illness Perspective.
Jennifer Gong, Simone Cheung, Alivia Fasso-Opie, Orla Galvin, Larissa S Moniz, Avril Daly

Clin Ophthalmol· July 2021

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Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify research priorities for rare diseases in Ireland.
Suja Somanadhan, Emma Nicholson, Emma Dorris, Aoife Brinkley, Avril Kennan, Avril Daly

HRB Open Res· November 2020

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The Impact of Inherited Retinal Diseases in the Republic of Ireland (ROI) and the United Kingdom (UK) from a Cost-of-Illness Perspective.
Orla Galvin, Gloria Chi, Laura Brady, Claire Hippert, Marta Del Valle Rubido, Avril Daly

Clin Ophthalmol· March 2020

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