Publications by authors named "Beverley Power"

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Addressing unmet needs in pregnancy and family planning of people living with rare and low-prevalence diseases: results of the "ERN transversal working group on pregnancy and family planning" survey.
Giovanni Fulvio, Diana Marinello, Dina Zucchi, Silvia Aguilera, Alexandra Benachi, Beverley Power

Reprod Health· November 2025

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The Fall Out of the 2017 European Medical Device Regulation for Tracheal Occlusion.
Francesca Russo, Alexandra Benachi, Frank Meijer, Fanny Cauvet, Hélène Berrué-Gaillard, Beverley Power

Prenat Diagn· April 2025

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Pregnancy-related issues in rare and low-prevalence diseases: results of ERN transversal working group on pregnancy and family planning survey.
Dina Zucchi, Diana Marinello, Chiara Tani, Giovanni Fulvio, Silvia Aguilera, Beverley Power

Orphanet J Rare Dis· March 2025

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Patient-reported outcomes for congenital diaphragmatic hernia: A qualitative study.
Aymara Taillieu, Jan Deprest, Simen Vergote, Anne Debeer, Francesca Maria Russo, Beverley Power

Prenat Diagn· March 2023

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The CDH patient perspective journey.
Beverley Power

Front Pediatr· February 2023

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Surgical-PEARL protocol: a multicentre prospective cohort study exploring aetiology, management and outcomes for patients with congenital anomalies potentially requiring surgical intervention.
Stuart Mires, Samantha E de Jesus, Andrew R Bamber, Andrew Mumford, Beverley Power

BMJ Open· December 2022

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What should we tell parents? Congenital diaphragmatic hernia.
Francesca M Russo, Anne Debeer, Paolo De Coppi, Koenraad Devriendt, Neeltje Crombag, Beverley Power

Prenat Diagn· March 2022

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Prenatal diagnosis of congenital diaphragmatic hernia: Parental counselling and support needs.
Neeltje Crombag, Vanessa Ceulemans, Anne Debeer, Francesca Russo, Bieke Bollen, Beverley Power

Prenat Diagn· March 2022

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Development of standard definitions and grading for Maternal and Fetal Adverse Event Terminology.
Rebecca N Spencer, Kurt Hecher, Gill Norman, Karel Marsal, Jan Deprest, Beverley Power, James Power

Prenat Diagn· January 2022

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Study protocol: a core outcome set for perinatal interventions for congenital diaphragmatic hernia.
Simen Vergote, Felix De Bie, Jan Bosteels, Holly Hedrick, James Duffy, Beverley Power

Trials· February 2021

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A no-deal Brexit will be detrimental to people with rare diseases.
Marc Tischkowitz, Beverley Power, Graham Slater

Lancet· January 2021

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Letter to the Editor concerning Schmedding et al.: Decentralised surgery of abdominal wall defects in Germany (Pediatr Surg Int (2020) 36:569-578).
Eberhard Schmiedeke, Dalia Aminoff, Nicole Schwarzer, Graham Slater, Beverley Power

Pediatr Surg Int· September 2020

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Long-term feeding issue and its impact on the daily life of congenital diaphragmatic hernia survivors: results of the first patient-led survey.
Beverley Power, Soichi Shibuya, Brenda Lane, Simon Eaton, Paolo De Coppi

Pediatr Surg Int· January 2020

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Does website-based information add any value in counseling mothers expecting a baby with severe congenital diaphragmatic hernia?
Alexander C Engels, Philip DeKoninck, Johannes L van der Merwe, Tim Van Mieghem, Petra Stevens, Beverley Power

Prenat Diagn· November 2013

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