Publications by authors named "Colin Halverson"

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Exploring Genetic Counselors' Experiences with Indigenous Patient Populations.
Kimberly McDowell, Leah Wetherill, Bethany Pollock, Colin Halverson, Jennifer Ivanovich

J Racial Ethn Health Disparities· December 2025

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Experiences of people with elevated lipoprotein(a) and the impact on family and child screening.
Gabrielle Eversole, Sara M Fitzgerald-Butt, Colin Halverson, Julie M Clary, Benjamin M Helm

J Clin Lipidol· December 2025

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Sources and consequences of self-doubt in patients with Ehlers-Danlos syndrome: a qualitative study in Europe and North America.
Colin M E Halverson, Samantha L Vershaw, Clair A Francomano, Tom Doyle

BMJ Open· December 2025

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Ethical considerations for research involving pregnant women with HIV and their children.
Megan S McHenry, Eric R Masese, Daniel Kinyanjui, Edwin Were, James G Carlucci, Colin Halverson

AIDS· November 2025

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Patient perceptions of genetic counselors' role and emotional support needs in adults with Parkinson's disease.
Myka Radecki, Colin Halverson, Leah Wetherill, Mandy Miller

J Genet Couns· April 2025

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Informed Consent and Comprehension after the Pragmatic Turn.
Colin M E Halverson, Peter H Schwartz

Am J Bioeth· April 2025

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An evaluation of practices and policies used in genetics clinics across the United States to manage referrals for Ehlers-Danlos and hypermobility syndromes.
Lauren Boucher, Berkley Nestler, Daniel Groepper, John Quillin, David Deyle, Colin M E Halverson

Genet Med Open· January 2025

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Effects of hypermobile Ehlers-Danlos syndrome patients on the workflow and professional satisfaction of genetic counselors.
Lauren Eckstein, Benjamin M Helm, Rebecca Baud, Clair A Francomano, Colin Halverson

J Genet Couns· December 2024

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Improving Social Media-Based Support Groups for the Rare Disease Community: Interview Study With Patients and Parents of Children with Rare and Undiagnosed Diseases.
Tom A Doyle, Samantha L Vershaw, Erin Conboy, Colin M E Halverson

JMIR Hum Factors· December 2024

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Social media use by patients with hypermobile Ehlers-Danlos syndrome.
Colin M E Halverson, Tom A Doyle, Samantha Vershaw

Mol Genet Genomic Med· June 2024

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Patients' strategies for numeric pain assessment: a qualitative interview study of individuals with hypermobile Ehlers-Danlos Syndrome.
Colin M E Halverson, Tom A Doyle

Disabil Rehabil· April 2024

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Patient interest in the development of a center for Ehlers-Danlos syndrome/hypermobility spectrum disorder in the Chicagoland region.
Wendy Wagner, Tom A Doyle, Clair A Francomano, Dacre R T Knight, Colin M E Halverson

Orphanet J Rare Dis· March 2024

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Patient understanding of pharmacogenomic test results in clinical care.
Tom A Doyle, Karen K Schmidt, Colin M E Halverson, Jesus Olivera, Abigail Garcia

Patient Educ Couns· October 2023

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Lost in translation: the history of the Ebers Papyrus and Dr. Carl H. von Klein.
Jane A Hartsock, Colin M E Halverson

J Med Libr Assoc· October 2023

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Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care.
Meghan C Halley, Colin M E Halverson, Holly K Tabor, Aaron J Goldenberg

Am J Bioeth· July 2023

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Patient Interest in the Development of a Center for Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorder in the Chicagoland Region.
Wendy Wagner, Tom Doyle, Clair Francomano, Dacre Knight, Colin Halverson

Res Sq· July 2023

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Evolving Attitudes Toward Numeric Pain Assessment Among Patients with Hypermobile Ehlers-Danlos Syndrome: A Qualitative Interview Study.
Colin M E Halverson, Kurt Kroenke, Heather L Penwell, Clair A Francomano

Pain Med· June 2023

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Content Analysis of Emoji and Emoticon Use in Clinical Texting Systems.
Colin M E Halverson, Claire E Donnelly, Michael Weiner, Joy L Lee

JAMA Netw Open· June 2023

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Comorbidity, misdiagnoses, and the diagnostic odyssey in patients with hypermobile Ehlers-Danlos syndrome.
Colin M E Halverson, Sha Cao, Susan M Perkins, Clair A Francomano

Genet Med Open· April 2023

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Diagnostic deserts: Community-level barriers to appropriate genetics services.
Tom A Doyle, Erin Conboy, Colin M E Halverson

Am J Med Genet A· January 2023

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What is "Personal" About Personal Experience? A Call to Reflexivity for All.
Colin Halverson, Meghan Halley

Am J Bioeth· January 2023

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Use of complementary and alternative medicine by patients with hypermobile Ehlers-Danlos Syndrome: A qualitative study.
Tom A Doyle, Colin M E Halverson

Front Med (Lausanne)· December 2022

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Genetic Essentialism and Social Warranting.
Colin M E Halverson

Perspect Biol Med· September 2022

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Biobank Participants' Attitudes toward Requiring Understanding for Biobank Consent.
T J Kasperbauer, Colin Halverson, Abigail Garcia, Karen K Schmidt, Peter H Schwartz

Ethics Hum Res· January 2022

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