Publications by authors named "Declan Noone"

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Collective international action to increase access to costly drugs: pooled procurement and equity based tiered pricing.
Zoltán Kaló, Krista Kruja, Declan Noone, Sabine Vogler, Elizabeth Docteur

BMJ· November 2025

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Test-retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) study.
Randall Curtis, Joanne Wu, Alfonso Iorio, Neil Frick, Michael Nichol, Declan Noone

Haemophilia· May 2024

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Accreditation model of European Haemophilia Centres in the era of novel treatments and gene therapy.
Ana Boban, Fariba Baghaei, Fijnvandraat Karin, Robert Klamroth, Wolfgang Miesbach, Declan Noone

Haemophilia· November 2023

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Hemophilia gene therapy: first, do no harm.
Leonard A Valentino, Radoslaw Kaczmarek, Glenn F Pierce, Declan Noone, Brian O'Mahony

J Thromb Haemost· September 2023

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Humanistic burden of problem joints for children and adults with haemophilia.
Tom Burke, Idaira Rodriguez-Santana, Pratima Chowdary, Randall Curtis, Kate Khair, Declan Noone

Haemophilia· March 2023

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Hemorrhagic and thrombotic adverse events associated with emicizumab and extended half-life factor VIII replacement drugs: EudraVigilance data of 2021.
Maria Abbattista, Alessandro Ciavarella, Declan Noone, Flora Peyvandi

J Thromb Haemost· March 2023

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Association of factor expression levels with annual bleeding rate in people with haemophilia B.
Tom Burke, Anum Shaikh, Talaha M Ali, Nanxin Li, Barbara A Konkle, Declan Noone

Haemophilia· January 2023

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Relationship between bleeding episodes, health-related quality of life and direct costs in adults with severe haemophilia A: Secondary analyses from the CHESS study.
Jamie O'Hara, Declan Noone, Maureen Watt

Haemophilia· September 2022

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Gene therapy of hemophilia: Hub centres should be haemophilia centres: A joint publication of EAHAD and EHC.
Wolfgang Miesbach, Fariba Baghaei, Ana Boban, Pratima Chowdary, Michiel Coppens, Declan Noone

Haemophilia· May 2022

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Assessing the value of orphan drugs using conventional cost-effectiveness analysis: Is it fit for purpose?
Maarten J Postma, Declan Noone, Mark H Rozenbaum, John A Carter, Marc F Botteman

Orphanet J Rare Dis· April 2022

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Hemophilia treatment in 2021: Choosing the"optimal" treatment using an integrative, patient-oriented approach to shared decision-making between patients and clinicians.
Cedric Hermans, Declan Noone, Gary Benson, Gerry Dolan, Hermann Eichler

Blood Rev· March 2022

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Preparing for tomorrow: Defining a future agenda.
Brian O'Mahony, Olivier Wong, Hermann Eichler, Peter Neumann, Katarina Steen Carlsson, Declan Noone

Haemophilia· March 2022

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Eliminating Panglossian thinking in development of AAV therapeutics.
Radoslaw Kaczmarek, Glenn F Pierce, Declan Noone, Brian O'Mahony, David Page

Mol Ther· December 2021

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Clinical attributes and treatment characteristics are associated with work productivity and activity impairment in people with severe haemophilia A.
Jamie O'Hara, Declan Noone, Mohit Jain, Gabriel Pedra, Sarah Landis

Haemophilia· November 2021

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Evaluation of the sexual health in people living with hemophilia.
Federico Germini, Chatree Chai-Adisaksopha, Drashti Pete, Randall Curtis, Neil Frick, Declan Noone

Haemophilia· November 2021

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Delivery of AAV-based gene therapy through haemophilia centres-A need for re-evaluation of infrastructure and comprehensive care: A Joint publication of EAHAD and EHC.
Wolfgang Miesbach, Pratima Chowdary, Michiel Coppens, Daniel P Hart, Victor Jimenez-Yuste, Declan Noone

Haemophilia· November 2021

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Recombinant factor IX-Fc fusion protein in severe hemophilia B: Patient-reported outcomes and health-related quality of life.
Mairead O'Donovan, Eimear Quinn, Kate Johnston, Evelyn Singleton, Julie Benson, Declan Noone

Res Pract Thromb Haemost· October 2021

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Converting factor and nonfactor usage into a single metric to facilitate benchmarking the resources consumed for haemophilia care across jurisdictions and over time.
Jeffrey S Stonebraker, Brian O'Mahony, Declan Noone, Alfonso Iorio

Haemophilia· September 2021

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European principles of care for women and girls with inherited bleeding disorders.
Karin van Galen, Michelle Lavin, Naja Skouw-Rasmussen, Kathelijn Fischer, Declan Noone

Haemophilia· September 2021

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Vaccination against COVID-19: Rationale, modalities and precautions for patients with haemophilia and other inherited bleeding disorders.
Radoslaw Kaczmarek, Magdy El Ekiaby, Daniel P Hart, Cedric Hermans, Mike Makris, Declan Noone

Haemophilia· July 2021

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Non-severe haemophilia: Is it benign? - Insights from the PROBE study.
Chatree Chai-Adisaksopha, Declan Noone, Randall Curtis, Neil Frick, Michael B Nichol

Haemophilia· January 2021

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Reimbursing the value of gene therapy care in an era of uncertainty.
Declan Noone, Donna Coffin, Glenn F Pierce

Haemophilia· January 2021

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Gene therapy to cure haemophilia: Is robust scientific inquiry the missing factor?
Glenn F Pierce, Radoslaw Kaczmarek, Declan Noone, Brian O'Mahony, David Page

Haemophilia· November 2020

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Understanding minimum and ideal factor levels for participation in physical activities by people with haemophilia: An expert elicitation exercise.
Antony P Martin, Tom Burke, Sohaib Asghar, Declan Noone, Gabriel Pedra

Haemophilia· July 2020

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Barriers and challenges faced by women with congenital bleeding disorders in Europe: Results of a patient survey conducted by the European Haemophilia Consortium.
Declan Noone, Naja Skouw-Rasmussen, Michelle Lavin, Karin P M van Galen, Rezan A Kadir

Haemophilia· May 2019

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