Publications by authors named "Donald B Bailey"

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Feasibility and clinical utility of expanded genomic newborn screening in the Early Check program.
Heidi L Cope, Elizabeth R Jalazo, Jonathan S Berg, Jennifer A Sullivan, Katerina S Kucera, Donald B Bailey

Nat Med· November 2025

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Parent Reports of Developmental Service Utilization After Newborn Screening.
Elizabeth Reynolds, Sarah Nelson Potter, Samantha Scott, Donald B Bailey

Int J Neonatal Screen· December 2024

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The Krabbe Conundrum-How Are Benefits and Harms Weighed to Determine the Net Benefit of Screening?
Donald B Bailey

JAMA Pediatr· October 2023

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Newborn Screening Conditions: Early Intervention and Probability of Developmental Delay.
Elizabeth Reynolds, Sheresa Blanchard, Elizabeth Jalazo, Pranesh Chakraborty, Donald B Bailey

J Dev Behav Pediatr· June 2023

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A Window of Opportunity for Newborn Screening.
Donald B Bailey

Mol Diagn Ther· May 2022

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Education and Consent for Population-Based DNA Screening: A Mixed-Methods Evaluation of the Early Check Newborn Screening Pilot Study.
Holly L Peay, Angela You Gwaltney, Rebecca Moultrie, Heidi Cope, Beth Lincoln- Boyea, Donald B Bailey

Front Genet· May 2022

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Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study.
Lisa M Gehtland, Ryan S Paquin, Sara M Andrews, Adam M Lee, Angela Gwaltney, Donald B Bailey

JMIR Pediatr Parent· February 2022

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Preparing newborn screening for the future: a collaborative stakeholder engagement exploring challenges and opportunities to modernizing the newborn screening system.
Sara M Andrews, Katherine Ackerman Porter, Donald B Bailey, Holly L Peay

BMC Pediatr· February 2022

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Expert Evaluation of Strategies to Modernize Newborn Screening in the United States.
Donald B Bailey, Katherine Ackerman Porter, Sara M Andrews, Melissa Raspa, Angela Y Gwaltney

JAMA Netw Open· December 2021

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Outreach to new mothers through direct mail and email: recruitment in the Early Check research study.
Ryan S Paquin, Megan A Lewis, Blake A Harper, Rebecca R Moultrie, Angela Gwaltney, Donald B Bailey

Clin Transl Sci· May 2021

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Emergence of Developmental Delay in Infants and Toddlers With an Mutation.
Anne C Wheeler, Angela Gwaltney, Melissa Raspa, Katherine C Okoniewski, Elizabeth Berry-Kravis, Donald B Bailey

Pediatrics· May 2021

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A Voluntary Statewide Newborn Screening Pilot for Spinal Muscular Atrophy: Results from Early Check.
Katerina S Kucera, Jennifer L Taylor, Veronica R Robles, Kristin Clinard, Brooke Migliore, Donald B Bailey

Int J Neonatal Screen· March 2021

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Genomic Sequencing for Newborn Screening: Results of the NC NEXUS Project.
Tamara S Roman, Stephanie B Crowley, Myra I Roche, Ann Katherine M Foreman, Julianne M O'Daniel, Donald B Bailey

Am J Hum Genet· October 2020

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Decisional Capacity for Informed Consent in Males and Females with Fragile X Syndrome.
Anne C Wheeler, Amanda Wylie, Melissa Raspa, Adrienne Villagomez, Kylee Miller, Donald B Bailey

J Autism Dev Disord· May 2020

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Developmental Outcomes Among Young Children With Congenital Zika Syndrome in Brazil.
Anne C Wheeler, Danielle Toth, Ty Ridenour, Lucélia Lima Nóbrega, Raíne Borba Firmino, Donald B Bailey

JAMA Netw Open· May 2020

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Values clarification and parental decision making about newborn genomic sequencing.
Susana Peinado, Ryan S Paquin, Christine Rini, Myra Roche, Rita M Butterfield, Donald B Bailey

Health Psychol· April 2020

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Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability.
Lauren A McCormack, Amanda Wylie, Rebecca Moultrie, Robert D Furberg, Anne C Wheeler, Donald B Bailey

PLoS One· March 2020

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Validation of Fragile X Screening in the Newborn Population Using a Fit-for-Purpose FMR1 PCR Assay System.
Stacey Lee, Jennifer L Taylor, Charles Redmond, Andrew G Hadd, Jon A Kemppainen, Donald B Bailey

J Mol Diagn· March 2020

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Evaluation of X-Linked Adrenoleukodystrophy Newborn Screening in North Carolina.
Stacey Lee, Kristin Clinard, Sarah P Young, Catherine W Rehder, Zheng Fan, Donald B Bailey

JAMA Netw Open· January 2020

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The North Carolina Experience with Mucopolysaccharidosis Type I Newborn Screening.
Jennifer L Taylor, Kristin Clinard, Cynthia M Powell, Catherine Rehder, Sarah P Young, Donald B Bailey

J Pediatr· August 2019

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The Future of Newborn Screening: Why and How Partnerships Will Be Needed for Success.
Donald B Bailey, Scott J Zimmerman

N C Med J· July 2019

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Early Check: A North Carolina Research Partnership.
Lisa M Gehtland, Donald B Bailey

N C Med J· July 2019

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Early Check: translational science at the intersection of public health and newborn screening.
Donald B Bailey, Lisa M Gehtland, Megan A Lewis, Holly Peay, Melissa Raspa

BMC Pediatr· July 2019

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Early Identification of Fragile X Syndrome through Expanded Newborn Screening.
Katherine C Okoniewski, Anne C Wheeler, Stacey Lee, Beth Boyea, Melissa Raspa, Donald B Bailey

Brain Sci· January 2019

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A Digital Health App to Assess Decisional Capacity to Provide Informed Consent: Protocol for a Randomized Controlled Trial.
Robert D Furberg, Melissa Raspa, Anne C Wheeler, Lauren A McCormack, Donald B Bailey

JMIR Res Protoc· November 2018

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