Publications by authors named "E Vroom"

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Development of a patient-reported outcome measure for upper limb function in Duchenne muscular dystrophy: DMD Upper Limb PROM.
K Klingels, A G Mayhew, E S Mazzone, T Duong, V Decostre, U Werlauff, E Vroom, E Mercuri, N M Goemans,

Dev Med Child Neurol· February 2017

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Posttraumatic Growth in a Predominantly Hispanic Cohort with a History of COVID-19 Infection.
Enya B Vroom, Alexandra B Howell, Chen-Pin Wang, Joel Tsevat

J Gen Intern Med· November 2025

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The FAIR journey of a patient-driven registry: Reflections and practical solutions from the Duchenne Data Platform FAIRification experience.
Nawel Lalout, Mark D Wilkinson, Dagmar Wandrei, Adrian Tassoni, Antonio Atalaia, Elizabeth Vroom

J Neuromuscul Dis· October 2025

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Development of the accredited duchenne centers program, a global program to achieve uniform and up-to-date care for all people living with duchenne muscular dystrophy.
Imelda J M de Groot, Karolina Podolská, Nathalie Goemans, Suzie-Ann Bakker, Nawel Lalout, Elizabeth Vroom

Orphanet J Rare Dis· July 2025

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Factors affecting desired participation in transition to an adult life with Duchenne muscular dystrophy (DMD).
Laura Jb Merkenhof, Yvonne Veenhuizen, Elizabeth Vroom, Greet Sterenberg, Wendy Chm Hesseling

J Neuromuscul Dis· May 2025

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Towards harmonization of clinical tools for assessing Brain Involvement in Dystrophinopathies (BIND); report of four expert workshops: Newcastle, Leiden, Rome, Paris.
Jos Hendriksen, Pien Weerkamp, Ruben Miranda, Anna Kolesnik, Daniela Chieffo, Elizabeth Vroom

Neuromuscul Disord· November 2024

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