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The overall discussions reflect a recognition of the importance of patient-reported outcome measures, exemplified by references to the development process, FDA guidelines, and the incorporation of patient perspectives for conditions like DMD and gastrointestinal recovery. The tone is professional, focusing on methodological rigor and the potential to enhance clinical and regulatory practices, which sustains a positive view of these developments.
Most discussions support the importance and relevance of developing patient-reported outcome measures, especially for DMD, with some posts emphasizing the value of involving patients.
Participants show mild interest in research developments, focusing on topics like gastrointestinal recovery, psycho-oncology, and specific side effect measures, although the overall engagement remains cautious.
Posts demonstrate some depth by referencing specific studies, the development process, and the implications for patient-centered care, indicating moderate engagement.
The discussions highlight the significance of outcome measures in improving clinical assessments and patient experiences, suggesting a moderate to high perception of their impact in healthcare research.
Development of a Patient Reported Outcome Measure of Side Effects for Patients Taking Calcineurin Inhibitors: The FACIT-CNI-Ntx https://bit.ly/3WFr2Qi #OpenAccess @gratefull080504.bsky.social #VisualAbstract
Second paper from the prosec3 study: Further development of a patient-reported outcome measure to assess the impact of oral secretion problems in people living with MND www.tandfonline.com/doi/full/10....
Development of a patient-reported outcome measure for gastrointestinal recovery after surgery (PRO-diGI) ➡️ doi.org/10.1093/bjs/...
Did you know that today is the inaugural World Psycho-Oncology Day (#WPOD)?
Development of a Patient Reported Outcome Measure of Side Effects for Patients Taking Calcineurin Inhibitors: The FACIT-CNI-Ntx bit.ly/3WFr2Qi #OpenAccess @gratefull080504.bsky.social #VisualAbstract
Development of a Patient Reported Outcome Measure of Side Effects for Patients Taking Calcineurin Inhibitors: The FACIT-CNI-Ntx bit.ly/3WFr2Qi #OpenAccess @gratefull080504.bsky.social #VisualAbstract
This video discusses creating a patient-reported tool to assess upper limb function in Duchenne muscular dystrophy, focusing on daily activities. The 32-item questionnaire spans food, self-care, household, leisure, and…
This episode discusses the development of a patient-reported outcome measure for assessing upper limb function in Duchenne muscular dystrophy, focusing on daily activities across all ages and disease stages to monitor…
Development of a Patient Reported Outcome Measure of Side Effects for Patients Taking Calcineurin Inhibitors: The FACIT-CNI-Ntx bit.ly/3WFr2Qi #OpenAccess @gratefull080504.bsky.social #VisualAbstract
Development of a Patient Reported Outcome Measure of Side Effects for Patients Taking Calcineurin Inhibitors: The FACIT-CNI-Ntx bit.ly/3WFr2Qi #OpenAccess @gratefull080504.bsky.social #VisualAbstract
This study describes a four-stage development of a patient-reported outcome measure for gastrointestinal recovery The QQ-10 demonstrated high value and low burden, supporting face validity
Development of a patient-reported outcome measure for gastrointestinal recovery after surgery (PRO-diGI) ➡️ doi.org/10.1093/bjs/...
Did you know that today is the inaugural World Psycho-Oncology Day (#WPOD)?
Second paper from the prosec3 study: Further development of a patient-reported outcome measure to assess the impact of oral secretion problems in people living with MND www.tandfonline.com/doi/full/10....
Development of a Patient Reported Outcome Measure of Side Effects for Patients Taking Calcineurin Inhibitors: The FACIT-CNI-Ntx https://bit.ly/3WFr2Qi #OpenAccess @gratefull080504.bsky.social #VisualAbstract
Development of a Patient Reported Outcome Measure of Side Effects for Patients Taking Calcineurin Inhibitors: The FACIT-CNI-Ntx https://bit.ly/3WFr2Qi #OpenAccess
It is important to involve patients in clinical research & outcome measure development, as regulators want to know what patients find important during benefit/risk analysis. Measure what matters. Another example: a DMD patient reported outcome measure: https://t.co/nm5joW3Ph9
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