Publications by authors named "Eden Robertson"

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Protocol: Strategies to Enhance Inclusion in Informed Consent Practice for People With Vision and/or Hearing Support Needs: A Systematic Review.
Fleur O'Hare, Sujani Thrimawithana, Aimee Clague, Eden G Robertson, David Foran

Campbell Syst Rev· December 2025

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Seeing a sunset: Exploring the joy of vision, in healthy eyes and ocular disease.
Andrew J Anderson, Lauren N Ayton, Eden G Robertson, Bao N Nguyen

Ophthalmic Physiol Opt· November 2025

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Animated videos for childhood cancer precision medicine: development and evaluation with parents and patients.
Jessica M Gereis, Kate Hetherington, Eden G Robertson, Rebecca Daly, Brittany C McGill

Support Care Cancer· November 2025

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"Just realising that I wasn't alone… was profound": a mixed-methods evaluation of a pilot peer-to-peer wellbeing program for carers of children with rare epilepsies.
Kristine Pierce, Jack Bernard Murphy, Eden G Robertson, Jahidur Rahman Khan, Susan Bullock

Orphanet J Rare Dis· October 2025

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Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study.
Eden G Robertson, Lauren Kelada, Robert Ilin, Elizabeth Emma Palmer, Ann Bye

J Child Health Care· September 2025

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Australian research priorities for inherited retinal diseases: a James Lind Alliance priority setting partnership.
Eden G Robertson, Kate Hetherington, Meredith Prain, Alan Ma, Lauren N Ayton

BMJ Open· September 2025

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Navigating a hidden disability: Lived experiences and challenges of adults with early stage inherited retinal diseases.
Mariam Bakir, Eden G Robertson, Ruofei Trophy Chen, Bao N Nguyen, Bronwyn McFadyen

Disabil Health J· July 2025

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Bridging the Gap: Embedding Psychosocial Oncology Research into Comprehensive Cancer Care for Children and Young People.
Ursula Margaret Sansom-Daly, Jordana Kathleen McLoone, Joanna Elizabeth Fardell, Holly Elaine Evans, Brittany Claire McGill, Eden Grace Robertson

Cancers (Basel)· June 2025

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What can we learn from the evidence of psychosocial support for carers of people with cancer and how do we advance our efforts? A meta-review study.
Brona Nic Giolla Easpaig, Bronwyn Newman, Judith Johnson, Rebekah Laidsaar-Powell, Ursula M Sansom-Daly, Eden G Robertson

J Cancer Surviv· May 2025

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Dismantling barriers to research and clinical care for individuals with a vision impairment.
Eden G Robertson, Kate Hetherington, Meredith Prain, Julia Hall, Leighton Boyd Am

Med J Aust· April 2025

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Whatever It Takes: Parents' Perspectives of Patient-Derived Xenograft Mouse Models for Poor Prognosis Childhood Cancer.
Eden G Robertson, Kate Hetherington, Jacqueline D Hunter, Maeve McGillycuddy, Venkatesha Venkatesha

JCO Precis Oncol· April 2025

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A Pilot Evaluation of an Educational Video to Support Consent to a Pediatric Malignancy Biobank.
Eden G Robertson, Rebecca Komesaroff, David D Eisenstat, Alexandra Robertson, Louise E Ludlow

Biopreserv Biobank· February 2025

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Illness-related communication between siblings and parents of children with chronic illness and life-limiting conditions: A qualitative analysis.
Lauren Kelada, Tiina Jaaniste, Anjali Cuganesan, Wei Ling Audrey Chin, Sarah Caellainn Tan, Eden Robertson

Palliat Support Care· October 2024

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Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project.
Bróna Nic Giolla Easpaig, Bronwyn Newman, Judith Johnson, Ursula M Sansom-Daly, Lucy Jones, Eden G Robertson

Health Expect· October 2024

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Supporting Carers: Study Protocol of a Meta-Review of Psychosocial Interventions for Carers of People With Cancer.
Brona Nic Giolla Easpaig, Bronwyn Newman, Judith Johnson, Rebekah Laidsaar-Powell, Ursula M Sansom-Daly, Eden G Robertson

JMIR Res Protoc· September 2024

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Communicating with families of young people with hard-to-treat cancers: Healthcare professionals' perspectives on challenges, skills, and training.
Lauren Kelada, Eden G Robertson, Skye McKay, Brittany C McGill, Rebecca Daly

Palliat Support Care· June 2024

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The feasibility and acceptability of collecting psychosocial outcome measures embedded within a precision medicine trial for childhood cancer.
Eden G Robertson, Kate Hetherington, Rebecca Daly, Mark W Donoghoe, Nicholas Handelsman

Cancer Med· June 2024

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Captains on call: A qualitative investigation of an intervention to support children with retinoblastoma undergoing regular eye examinations.
Vanessa Rich, Karin Plummer, Sofia Padhy, Tamsin Barratt, Johnson Tran, Eden G Robertson

Psychooncology· March 2024

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Quality of life in caregivers of a child with a developmental and epileptic encephalopathy.
Eden G Robertson, Lauren Kelada, Stephanie Best, Ilias Goranitis, Kristine Pierce

Dev Med Child Neurol· February 2024

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Parents' and adolescents' perspectives and understanding of information about childhood cancer precision medicine.
Jessica M Gereis, Kate Hetherington, Eden G Robertson, Rebecca Daly, Mark W Donoghoe

Cancer· November 2023

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Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives.
Claire E Wakefield, Kate Hetherington, Eden G Robertson, Mark W Donoghoe, Jacqueline D Hunter

Br J Cancer· November 2023

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A Review of Creative Play Interventions to Improve Children's Hospital Experience and Wellbeing.
Christina Signorelli, Eden G Robertson, Chelsea Valentin, Joseph E Alchin, Claire Treadgold

Hosp Pediatr· November 2023

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"Somewhere to turn to with my questions": A pre-post pilot of an information linker service for caregivers who have a child with a Developmental and Epileptic Encephalopathy.
Eden G Robertson, Natalie J Roberts, Fleur Le Marne, Erin Beavis, Rebecca Macintosh

Eur J Paediatr Neurol· November 2023

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The effects of cancer clinical decision support systems on patient-reported outcomes: A systematic review.
Erin Pitt, Natalie Bradford, Eden Robertson, Ursula M Sansom-Daly, Kimberly Alexander

Eur J Oncol Nurs· October 2023

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Going Virtual: Adapting an Institutional Annual Bereavement Event During the COVID-19 Pandemic.
Jessica Zavadil, Meghna Singh, Eden G Robertson, Lisa Clark, Jenn M Snaman

J Pediatr· June 2023

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