Publications by authors named "Ellen Lipstein"

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Healthcare Decision-Making and Evolving Autonomy in Adolescents and Young Adults with Cerebral Palsy.
Chelsey B Anderson, Michelle Gorecki, Amy Bailes, Jilda Vargus-Adams, Ellen A Lipstein

J Pediatr· December 2025

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Shared Decision Making in Telehealth Versus In-Person Pediatric Primary Care.
Ellen A Lipstein, Sandy Lee, Chelsey Anderson, Andrew F Beck, William B Brinkman

Telemed J E Health· November 2025

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Are Patients Game? Investigating the Role of Game Technology in Transition Education for Congenital Heart Disease.
Rebecca K Delaney, Alex J Alexander, Ian M Lindsay, Kirstin Beck, Sierra McNall, Ellen A Lipstein

J Am Heart Assoc· October 2025

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Evolving Roles: Adolescent Perspectives on Shared Decision Making With Their Parents and Health Care Providers.
Chelsey B Anderson, Isabella K Pallotto, Lindsay Dominguez, Mary Anne Ammon, Adam Carle, Ellen A Lipstein

Acad Pediatr· July 2025

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Balancing survival and suffering: factors influencing parental decision making after periviable consultation.
Eric A Raynal, Isabella K Pallotto, Jennifer M Brady, DonnaMaria E Cortezzo, Ellen A Lipstein

J Perinatol· June 2025

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Health Care Provider Perspectives on Shared Decision Making With Parents and Adolescents.
Ellen A Lipstein, Isabella K Pallotto, Chelsey B Anderson, Mary Anne Ammon, Adam C Carle

Clin Pediatr (Phila)· June 2025

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Saving Shared Decision-Making.
Douglas J Opel, Maya T Gerstein, Adam C Carle, Alaina K Fournier, Ian Hargraves, Ellen A Lipstein

J Gen Intern Med· June 2025

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Adolescents' and young adults' reactions to and perceived utility of carrier screening results in the context of a genomic research study.
Haley N Grimes, Michelle L McGowan, Jessica A Sinclair, Cynthia A Prows, Ellen A Lipstein

J Genet Couns· June 2025

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Exploring Shared Decision-Making Training in Pediatrics: A Scoping Review.
Vanessa I Orellana-Villazon, Jennifer E deSante-Bertkau, Noah Smith, Melissa Previtera, Ellen A Lipstein

Acad Pediatr· May 2025

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Engaging adolescents and young adults in decisions about return of genomic research results: study protocol for a mixed-methods longitudinal clinical trial protocol.
Amy A Blumling, Michelle L McGowan, Cynthia A Prows, Kristin Childers-Buschle, Lisa J Martin, Ellen A Lipstein

BMC Med Inform Decis Mak· December 2024

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Developing methods to identify resilience and improve communication about diagnosis in pediatric primary care.
Irit R Rasooly, Trisha L Marshall, Christina L Cifra, Ken Catchpole, Nicholas C Kuzma, Ellen A Lipstein

Front Med (Lausanne)· September 2024

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Young adults' reasoning for involving a parent in a genomic decision-making research study.
Julia M Pascal, Michelle L McGowan, Amy A Blumling, Cynthia A Prows, Ellen A Lipstein

J Genet Couns· June 2024

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Measure of Caregiver Attention-Deficit/Hyperactivity Disorder Knowledge Is Responsive to Decision Aid on Treatment for Attention-Deficit/Hyperactivity Disorder.
Kathrene Diane Valentine, Ellen A Lipstein, Ha Vo, Carol Cosenza, Michael J Barry

Acad Pediatr· April 2024

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Patient Preferences in Diagnostic Imaging: A Scoping Review.
Trey A Baird, Davene R Wright, Maria T Britto, Ellen A Lipstein, Andrew T Trout

Patient· November 2023

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Adolescents' and Parents' Perspectives on a Novel Decision-Making Process for Return of Results in Genomic Research.
Kelly A Matula, Amy A Blumling, Melanie F Myers, Michelle L McGowan, Ellen A Lipstein

J Empir Res Hum Res Ethics· October 2023

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Providers' Perspectives on Decision-Making About Care for Transgender Youth.
Brandon F Terrizzi, Amy Sue Lambert, Lee Ann E Conard, Lisa M Vaughn, Ellen L Lipstein

Transgend Health· August 2023

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Comparative Effectiveness of Anti-TNF in Combination With Low-Dose Methotrexate vs Anti-TNF Monotherapy in Pediatric Crohn's Disease: A Pragmatic Randomized Trial.
Michael D Kappelman, David A Wohl, Hans H Herfarth, Ann M Firestine, Jeremy Adler, Ellen A Lipstein

Gastroenterology· July 2023

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Supporting Gender-Related Medical Decision Making for Transgender and Gender-Diverse Individuals: A Scoping Review.
Amy Lambert, Ashli Pratt, Lee Ann E Conard, Elaine Grigg Dean, Erica Page, Ellen A Lipstein

Transgend Health· April 2023

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Engaging Adolescents and Young Adults in Decisions About Return of Genomic Research Results: a mixed-methods longitudinal clinical trial protocol.
Amy Blumling, Michelle McGowan, Cynthia Prows, Kristin Childers-Buschle, Lisa Martin, Ellen Lipstein

Res Sq· April 2023

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Decision Support Needs for Transgender and Gender-Diverse Youth and Families: A Patient-Centered Needs Assessment.
Amanda Mazzola, Lisa M Vaughn, Gayathri Chelvakumar, Lee Ann E Conard, Dennis J Fortenberry, Ellen A Lipstein

J Adolesc Health· March 2023

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Pilot trial of iBDecide: Evaluating an online tool to facilitate shared decision making for adolescents and young adults with ulcerative colitis.
Kelly A Matula, Philip Minar, Nancy M Daraiseh, Li Lin, Marlee Recker, Ellen A Lipstein

Health Expect· December 2022

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Developing video education materials for the return of genomic test results to parents and adolescents.
John A Lynch, Michaela J Idleburg, Melinda Butsch Kovacic, Kristin E Childers-Buschle, Kevin R Dufendach, Ellen A Lipstein

PEC Innov· December 2022

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Pediatric Caregiver Version of the Shared Decision Making Process Scale: Validity and Reliability for ADHD Treatment Decisions.
K D Valentine, Ellen A Lipstein, Ha Vo, Carol Cosenza, Michael J Barry

Acad Pediatr· November 2022

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Decision making about anti-TNF therapy: A pilot trial of a shared decision-making intervention.
Ellen A Lipstein, William B Brinkman, Yin Zhang, Kevin A Hommel, Richard F Ittenbach

Patient Educ Couns· May 2022

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Intergenerational Decision Making: The Role of Family Relationships in Medical Decision Making.
Jody L Lin, Ellen A Lipstein, Eve Wittenberg, Djin Tay, Robert Lundstrom

MDM Policy Pract· October 2021

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