Publications by authors named "Fiona Ulph"

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Cascade counselling and testing. Recommendations of the European Society of Human Genetics.
Guido de Wert, Carla G van El, Angus Clarke, Christophe Cordier, Florence Fellmann, Fiona Ulph

Eur J Hum Genet· December 2025

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Counseling supervision for genetic counselors: A proposed outsider witness structure.
Mariangels Ferrer-Duch, Fiona Ulph, Elisabet Dachs Cabanas, Glenda Fredman, Rhona MacLeod

J Genet Couns· June 2025

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Understanding the psychological impact of identifying carrier status on young adults: A qualitative study exploring peer reactions.
Edie Bowen, John Langston, Harriet Fletcher, Julia Domek, Fiona Ulph

J Genet Couns· February 2025

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Views of children and young adults about Whole Genome Sequencing in newborn screening: a qualitative study.
Molly Parfett, Faye Johnson, Rebecca Bennett, Fiona Ulph

Eur J Hum Genet· September 2024

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Exploring NICU nurses' views of a novel genetic point-of-care test identifying neonates at risk of antibiotic-induced ototoxicity: A qualitative study.
Georgia Brown, Natalie Warrington, Fiona Ulph, Nicola Booth, Karen Harvey

J Adv Nurs· August 2024

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What is health and what do we mean when we say an intervention improves health?
Fiona Ulph

Eur J Hum Genet· April 2024

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Informed consent for whole genome sequencing in mainstream clinics: logistical constraints and possible solutions.
Amina Chaouch, Fiona Ulph, James Alder, Hisham Hamdalla, John Ealing

Eur J Hum Genet· March 2024

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Understanding the Impact of Different Modes of Information Provision on Preferences for a Newborn Bloodspot Screening Program in the United Kingdom.
Stuart J Wright, Caroline M Vass, Fiona Ulph, Katherine Payne

MDM Policy Pract· March 2024

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What do women think about having received their breast cancer risk as part of a risk-stratified NHS Breast Screening Programme? A qualitative study.
Lorna McWilliams, Helen Ruane, Fiona Ulph, Victoria G Woof, Fiona Harrison

Br J Cancer· August 2023

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The role of knowledge, primary care and community engagement to improve breast-screening access for Pakistani women in the United Kingdom: A secondary analysis of a qualitative study.
Hooran M Khattak, Victoria G Woof, David P French, Louise S Donnelly, Helen Ruane, Fiona Ulph

J Health Serv Res Policy· July 2023

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Quantifying the effects of risk-stratified breast cancer screening when delivered in real time as routine practice versus usual screening: the BC-Predict non-randomised controlled study (NCT04359420).
D Gareth Evans, Lorna McWilliams, Susan Astley, Adam R Brentnall, Jack Cuzick, Fiona Ulph

Br J Cancer· June 2023

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Correction To: Quantifying the effects of risk-stratified breast cancer screening when delivered in real time as routine practice versus usual screening: the BC-Predict non-randomised controlled study (NCT04359420).
D Gareth Evans, Lorna McWilliams, Susan Astley, Adam R Brentnall, Jack Cuzick, Fiona Ulph

Br J Cancer· June 2023

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Psychological and Ethical Challenges of Introducing Whole Genome Sequencing into Routine Newborn Screening: Lessons Learned from Existing Newborn Screening.
Fiona Ulph, Rebecca Bennett

New Bioeth· March 2023

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The co-development of personalised 10-year breast cancer risk communications: a 'think-aloud' study.
Louise S Gorman, Helen Ruane, Victoria G Woof, Jake Southworth, Fiona Ulph

BMC Cancer· December 2022

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Healthcare professionals' views following implementation of risk stratification into a national breast cancer screening programme.
Rachel Hawkins, Lorna McWilliams, Fiona Ulph, D Gareth Evans, David P French

BMC Cancer· October 2022

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"We want to live a little longer and our family want[s] us around": A summative content analysis of adherence to COVID-19-related guidelines using the Theoretical Domains Framework.
Jessica Z Leather, Chris Keyworth, Tracy Epton, Joanna Goldthorpe, Fiona Ulph

Br J Health Psychol· September 2022

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: A qualitative investigation of adolescents' coping goals when dealing with pain related to arthritis and the underlying parent-adolescent personal models.
Daniela Ghio, Rachel Calam, Rebecca Rachael Lee, Lis Cordingley, Fiona Ulph

Paediatr Neonatal Pain· September 2022

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Exploring the role of Islam on the lived experience of patients with Long QT Syndrome in Saudi Arabia.
Khadijah H Bakur, Jumana Y Al-Aama, Zuhair N Alhassnan, Helen Brooks, Tara Clancy, Fiona Ulph

J Genet Couns· August 2022

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Receiving results of uncertain clinical relevance from population genetic screening: systematic review & meta-synthesis of qualitative research.
Faye Johnson, Fiona Ulph, Rhona MacLeod, Kevin W Southern

Eur J Hum Genet· May 2022

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Rapid Point-of-Care Genotyping to Avoid Aminoglycoside-Induced Ototoxicity in Neonatal Intensive Care.
John H McDermott, Ajit Mahaveer, Rachel A James, Nicola Booth, Mark Turner, Fiona Ulph

JAMA Pediatr· May 2022

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The feasibility of implementing risk stratification into a national breast cancer screening programme: a focus group study investigating the perspectives of healthcare personnel responsible for delivery.
David P French, Victoria G Woof, Helen Ruane, D Gareth Evans, Fiona Ulph

BMC Womens Health· May 2022

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Process evaluation of co-designed interventions to improve communication of positive newborn bloodspot screening results.
Jane Chudleigh, Pru Holder, Louise Moody, Alan Simpson, Kevin Southern, Fiona Ulph

BMJ Open· August 2021

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Pharmacogenetics to Avoid Loss of Hearing (PALOH) trial: a protocol for a prospective observational implementation trial.
John Henry McDermott, Rachel Mahood, Duncan Stoddard, Ajit Mahaveer, Mark A Turner, Fiona Ulph

BMJ Open· June 2021

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