Publications by authors named "Isabelle Lousada"

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Diagnostic pathways, cardiac manifestations, and outcomes in light chain amyloidosis: a plain language summary.
Genevieve Lyons, Jeffrey Thompson, Isabelle Lousada, Julia Catini, Richa Manwani

Future Cardiol· December 2025

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Factors associated with financial toxicity in patients with transthyretin amyloidosis: results from Amyloidosis Research Consortium's treatment affordability patient and caregiver survey.
Sabrina Rebello, Kristen Hsu, Jose Nativi-Nicolau, Chafic Karam, Martha Grogan, Isabelle Lousada

Amyloid· June 2025

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Development of Imaging Endpoints for Clinical Trials in AL and ATTR Amyloidosis: Proceedings of the Amyloidosis Forum.
Sharmila Dorbala, Rosalyn Adigun, Kevin M Alexander, Michela Brambatti, Sarah A M Cuddy, Isabelle Lousada

JACC Cardiovasc Imaging· May 2025

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Diagnostic pathways, cardiac manifestations and outcomes in light chain amyloidosis: analysis of a US claims database.
Genevieve Lyons, Jeffrey Thompson, Isabelle Lousada, Julia Catini, Richa Manwani

Open Heart· April 2025

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Value of Artificial Intelligence for Enhancing Suspicion of Cardiac Amyloidosis Using Electrocardiography and Echocardiography: A Narrative Review.
Martha Grogan, Francisco Lopez-Jimenez, Spencer Guthrie, Nisith Kumar, Reuben Langevin, Isabelle Lousada

J Am Heart Assoc· April 2025

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Reliability and validity of the Transthyretin Amyloidosis - Quality of Life (ATTR-QOL) Questionnaire impact scales.
Andrew Lovley, Kristen Hsu, Kaitlin LaGasse, Isabelle Lousada, Kristen L McCausland

J Patient Rep Outcomes· April 2025

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Pathway for Development and Validation of Multi-domain Endpoints for Amyloid Light Chain (AL) Amyloidosis.
James Signorovitch, Jialu Zhang, David Brown, Preston Dunnmon, Liang Xiu, Isabelle Lousada

Ther Innov Regul Sci· July 2024

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Advancing Transthyretin Amyloidosis Drug Development in an Evolving Treatment Landscape: Amyloidosis Forum Meeting Proceedings.
Mathew S Maurer, Prem Soman, Adrian Hernandez, Pablo Garcia-Pavia, James Signorovitch, Isabelle Lousada

Adv Ther· July 2024

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Renal Response Criteria for Clinical Trials in Amyloid Light Chain Amyloidosis.
Nelson Leung, Raymond Comenzo, Julian Gillmore, Andrea Havasi, Efstathios Kastritis, Isabelle Lousada

Kidney Int Rep· July 2024

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Moving towards establishing centres of excellence in cardiac amyloidosis: an International Cardio-Oncology Society statement.
Richard Cheng, Michelle M Kittleson, Ashutosh D Wechalekar, Jose Alvarez-Cardona, Joshua D Mitchell, Isabelle Lousada

Heart· May 2024

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Peripheral Nervous, Hepatic, and Gastrointestinal Endpoints for AL Amyloidosis Clinical Trials: Report from the Amyloidosis Forum Multi-organ System Working Group.
Michelle L Mauermann, John O Clarke, William J Litchy, Laura Obici, Isabelle Lousada

Adv Ther· November 2023

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The Transthyretin Amyloidosis - Quality of Life (ATTR-QOL) Questionnaire: Development of a Conceptual Model and Disease-Specific Patient-Reported Outcome Measure.
Meaghan O'Connor, Kristen Hsu, Lynne Broderick, Kristen L McCausland, Kaitlin LaGasse, Isabelle Lousada

Patient Relat Outcome Meas· July 2023

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Health-Related Quality of Life Instruments for Clinical Trials in AL Amyloidosis: Report from the Amyloidosis Forum HRQOL Working Group.
Avery A Rizio, Michelle K White, Anita D'Souza, Kristen Hsu, Paula Schmitt, Isabelle Lousada

Patient Relat Outcome Meas· May 2023

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Proposed Cardiac End Points for Clinical Trials in Immunoglobulin Light Chain Amyloidosis: Report From the Amyloidosis Forum Cardiac Working Group.
Mathew S Maurer, Preston Dunnmon, Mariana Fontana, Cristina Candida Quarta, Krishna Prasad, Isabelle Lousada

Circ Heart Fail· June 2022

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Expert consensus recommendations to improve diagnosis of ATTR amyloidosis with polyneuropathy.
David Adams, Yukio Ando, João Melo Beirão, Teresa Coelho, Morie A Gertz, Isabelle Lousada

J Neurol· June 2021

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The diagnostic challenges of cardiac amyloidosis: A practical approach to the two main types.
Cindy Varga, Sharmila Dorbala, Isabelle Lousada, Michael J Polydefkis, Ashutosh Wechalekar

Blood Rev· January 2021

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The Impact of AL Amyloidosis: The Patient Experience.
Isabelle Lousada, Mackenzie Boedicker

Hematol Oncol Clin North Am· December 2020

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Avoiding misdiagnosis: expert consensus recommendations for the suspicion and diagnosis of transthyretin amyloidosis for the general practitioner.
Morie Gertz, David Adams, Yukio Ando, João Melo Beirão, Sabahat Bokhari, Isabelle Lousada

BMC Fam Pract· September 2020

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The Amyloidosis Forum: a public private partnership to advance drug development in AL amyloidosis.

Orphanet J Rare Dis· September 2020

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Expert Consensus Recommendations for the Suspicion and Diagnosis of Transthyretin Cardiac Amyloidosis.
Mathew S Maurer, Sabahat Bokhari, Thibaud Damy, Sharmila Dorbala, Brian M Drachman, Isabelle Lousada

Circ Heart Fail· September 2019

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Light Chain (AL) Amyloidosis: The Journey to Diagnosis.
Kristen L McCausland, Michelle K White, Spencer D Guthrie, Tiffany Quock, Muriel Finkel, Isabelle Lousada

Patient· April 2018

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Recommendations from the Amyloidosis Research Consortium Educational Roundtable at the American College of Cardiology Annual Meeting, 1 April 2016.
Mathew Maurer, Isabelle Lousada, Mazen Hanna, Frederick Ruberg, Dania Mohty

Amyloid· March 2017

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Light Chain Amyloidosis: Patient Experience Survey from the Amyloidosis Research Consortium.
Isabelle Lousada, Raymond L Comenzo, Heather Landau, Spencer Guthrie, Giampaolo Merlini

Adv Ther· October 2015

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