Publications by authors named "Ivana F Audhya"

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Psychometric evaluation of the PROMIS parent proxy mobility item bank for use in Duchenne muscular dystrophy.
Linda Pax Lowes, Corinne M Le Reun, Lindsay N Alfano, Natalie F Reash, Megan A Iammarino, Ivana F Audhya

Dev Med Child Neurol· July 2025

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Psychometric analysis of the patient-reported outcomes measurement information system parent proxy physical function-upper extremity item bank for children with Duchenne muscular dystrophy.
Linda Pax Lowes, Corinne M Le Reun, Teofil Ciobanu, Lindsay N Alfano, Natalie F Reash, Ivana F Audhya

Front Neurol· May 2025

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Comparing Preferences for Disease Profiles: A Discrete Choice Experiment from a US Societal Perspective.
Karissa M Johnston, Ivana F Audhya, Jessica Dunne, David Feeny, Peter Neumann

Appl Health Econ Health Policy· May 2024

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Patterns of Clinical Progression Among Patients With Autosomal Recessive Limb-Girdle Muscular Dystrophy: A Systematic Review.
Antoinette Cheung, Ivana F Audhya, Shelagh M Szabo, Michael Friesen, Conrad C Weihl

J Clin Neuromuscul Dis· December 2023

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Estimating health state utilities in Duchenne muscular dystrophy using the health utilities index and EQ-5D-5L.
Ivana F Audhya, Shelagh M Szabo, Andrea Bever, Fiona O'Sullivan, Daniel C Malone

J Patient Rep Outcomes· December 2023

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Progression to Loss of Ambulation Among Patients with Autosomal Recessive Limb-girdle Muscular Dystrophy: A Systematic Review.
Ivana F Audhya, Antoinette Cheung, Shelagh M Szabo, Emma Flint, Conrad C Weihl

J Neuromuscul Dis· July 2022

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Factors associated with the health-related quality of life among people with Duchenne muscular dystrophy: a study using the Health Utilities Index (HUI).
Shelagh M Szabo, Ivana F Audhya, Basia Rogula, David Feeny, Katherine L Gooch

Health Qual Life Outcomes· June 2022

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QALYs and ambulatory status: societal preferences for healthcare decision making.
Lorna L Freath, Alistair S Curry, David M W Cork, Ivana F Audhya, Katherine L Gooch

J Med Econ· June 2022

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Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne muscular dystrophy: a cohort study.
Carolyn E Schwartz, Roland B Stark, Katrina Borowiec, Ivana F Audhya, Katherine L Gooch

J Patient Rep Outcomes· March 2022

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Societal perspectives on disease and treatment attributes characterizing rare diseases: a qualitative study from the United States.
Shelagh M Szabo, Ivana F Audhya, David Feeny, Peter Neumann, Daniel C Malone

J Patient Rep Outcomes· January 2022

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Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation.
Carolyn E Schwartz, Roland B Stark, Ivana F Audhya, Katherine L Gooch

J Patient Rep Outcomes· November 2021

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Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks.
Carolyn E Schwartz, Roland B Stark, David Cella, Katrina Borowiec, Katherine L Gooch, Ivana F Audhya

Orphanet J Rare Dis· November 2021

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Characterizing health state utilities associated with Duchenne muscular dystrophy: a systematic review.
Shelagh M Szabo, Ivana F Audhya, Daniel C Malone, David Feeny, Katherine L Gooch

Qual Life Res· March 2020

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