Publications by authors named "Jane Bernal"

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Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey.
Claire Kar Kei Lam, Jane Bernal, Janet Finlayson, Stuart Todd, Laurence Taggart

J Intellect Disabil· December 2021

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Hidden lives and deaths: the last months of life of people with intellectual disabilities living in long-term, generic care settings in the UK.
Stuart Todd, Jane Bernal, Rhian Worth, Julia Shearn, Sarah Brearley

J Appl Res Intellect Disabil· November 2021

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Place of death of people with intellectual disabilities: An exploratory study of death and dying within community disability service settings.
Stuart Todd, Sharon Brandford, Rhian Worth, Julia Shearn, Jane Bernal

J Intellect Disabil· September 2021

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Expecting the unexpected: measures, outcomes and dying trajectories for expected and unexpected death in adults with intellectual disabilities in social care settings in the UK.
Jane Bernal, Katherine Hunt, Rhian Worth, Julia Shearn, Edwin Jones

J Appl Res Intellect Disabil· March 2021

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End-of-life care in intellectual disability: a retrospective cross-sectional study.
Katherine Hunt, Jane Bernal, Rhian Worth, Julia Shearn, Paul Jarvis

BMJ Support Palliat Care· December 2020

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Last months of life of people with intellectual disabilities: A UK population-based study of death and dying in intellectual disability community services.
Stuart Todd, Jane Bernal, Julia Shearn, Rhian Worth, Edwin Jones

J Appl Res Intellect Disabil· November 2020

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Communicating about death and dying with adults with intellectual disabilities who are terminally ill or bereaved: A UK-wide survey of intellectual disability support staff.
Irene Tuffrey-Wijne, Janet Finlayson, Jane Bernal, Laurence Taggart, Claire Kar Kei Lam

J Appl Res Intellect Disabil· September 2020

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Nursing care at end of life: a UK-based survey of the deaths of people living in care settings for people with intellectual disability.
Ruth Northway, Stuart Todd, Katherine Hunt, Paula Hopes, Rachel Morgan, Jane Bernal

J Res Nurs· September 2019

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Predictors of Age of Diagnosis and Survival of Alzheimer's Disease in Down Syndrome.
Amanda Sinai, Claire Mokrysz, Jane Bernal, Ingrid Bohnen, Simon Bonell

J Alzheimers Dis· January 2019

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Author's reply.
Rory Sheehan, Nicole Eady, Khadija Rantell, Amanda Sinai, Jane Bernal

Br J Psychiatry· November 2018

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Author's reply to: Difficulties of diagnosing and managing dementia in people with Down syndrome.
Nicole Eady, Rory Sheehan, Khadija Rantell, Amanda Sinai, Jane Bernal

Br J Psychiatry· November 2018

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Impact of cholinesterase inhibitors or memantine on survival in adults with Down syndrome and dementia: clinical cohort study.
Nicole Eady, Rory Sheehan, Khadija Rantell, Amanda Sinai, Jane Bernal

Br J Psychiatry· March 2018

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Death, dying and intellectual disability research.
Stuart Todd, Jane Bernal, Rachel Forrester-Jones

J Appl Res Intellect Disabil· May 2013

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Developing guidelines for disclosure or non-disclosure of bad news around life-limiting illness and death to people with intellectual disabilities.
Irene Tuffrey-Wijne, Nikoletta Giatras, Gary Butler, Amanda Cresswell, Paula Manners, Jane Bernal

J Appl Res Intellect Disabil· May 2013

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Disclosure and understanding of cancer diagnosis and prognosis for people with intellectual disabilities: findings from an ethnographic study.
Irene Tuffrey-Wijne, Jane Bernal, Sheila Hollins

Eur J Oncol Nurs· July 2010

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Exploring the lived experiences of people with learning disabilities who are dying of cancer.
Irene Tuffrey-Wijne, Jane Bernal, Jane Hubert, Gary Butler, Sheila Hollins

Nurs Times· June 2010

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People with learning disabilities who have cancer: an ethnographic study.
Irene Tuffrey-Wijne, Jane Bernal, Jane Hubert, Gary Butler, Sheila Hollins

Br J Gen Pract· July 2009

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Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provision.
Irene Tuffrey-Wijne, Jane Bernal, Gary Butler, Sheila Hollins, Leopold Curfs

J Adv Nurs· April 2007

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People with intellectual disabilities and their need for cancer information.
Irene Tuffrey-Wijne, Jane Bernal, Amelia Jones, Gary Butler, Sheila Hollins

Eur J Oncol Nurs· April 2006

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