Publications by authors named "Jennifer Cialone"

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Methodology of clinical research in rare diseases: development of a research program in juvenile neuronal ceroid lipofuscinosis (JNCL) via creation of a patient registry and collaboration with patient advocates.
Elisabeth A de Blieck, Erika F Augustine, Frederick J Marshall, Heather Adams, Jennifer Cialone

Contemp Clin Trials· July 2013

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Females experience a more severe disease course in Batten disease.
Jennifer Cialone, Heather Adams, Erika F Augustine, Frederick J Marshall, Jennifer M Kwon

J Inherit Metab Dis· May 2012

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Parent-reported benefits of flupirtine in juvenile neuronal ceroid lipofuscinosis (Batten disease; CLN3) are not supported by quantitative data.
Jennifer Cialone, Erika F Augustine, Nicole Newhouse, Heather Adams, Amy Vierhile

J Inherit Metab Dis· October 2011

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