Publications by authors named "Joost Kools"

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A toolkit for new facioscapulohumeral muscular dystrophy trial sites.
Joost Kools, Lawrence Korngut, Janet Petrillo Ballantyne, Irene Roozen, Ria de Haas

J Neuromuscul Dis· December 2025

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The participants' perspective on facioscapulohumeral muscular dystrophy trials in The Netherlands - A qualitative study.
Lizan Stinissen, Joost Kools, Sietse Bouma, Emma Lenssen, Eline Sanders

J Neuromuscul Dis· May 2025

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A 5-year natural history cohort of patients with facioscapulohumeral muscular dystrophy determining disease progression and feasibility of clinical outcome assessments for clinical trials.
Joost Kools, Sanne Vincenten, Baziel G M van Engelen, Nicoline B M Voet, Ingemar Merkies

Muscle Nerve· January 2025

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An open-label pilot study of losmapimod to evaluate the safety, tolerability, and changes in biomarker and clinical outcome assessments in participants with facioscapulohumeral muscular dystrophy type 1.
Joost Kools, Nicol Voermans, John G Jiang, Olga Mitelman, Michelle L Mellion

J Neurol Sci· July 2024

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Safety and efficacy of losmapimod in facioscapulohumeral muscular dystrophy (ReDUX4): a randomised, double-blind, placebo-controlled phase 2b trial.
Rabi Tawil, Kathryn R Wagner, Johanna I Hamel, Doris G Leung, Jeffrey M Statland, Joost Kools

Lancet Neurol· May 2024

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Living with facioscapulohumeral muscular dystrophy during the first two COVID-19 outbreaks: a repeated patient survey in the Netherlands.
Johanna C W Deenen, Joost Kools, Anna Greco, Renée Thewissen, Wiecke van de Put

Acta Neurol Belg· April 2024

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The Dutch registry for facioscapulohumeral muscular dystrophy: Cohort profile and longitudinal patient reported outcomes.
Joost Kools, Johanna Cw Deenen, Anna M Blokhuis, André Lm Verbeek, Nicol C Voermans

Neuromuscul Disord· December 2023

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Assessment of the burden of outpatient clinic and MRI-guided needle muscle biopsies as reported by patients with facioscapulohumeral muscular dystrophy.
Joost Kools, Willem Aerts, Erik H Niks, Karlien Mul, Lisa Pagan

Neuromuscul Disord· May 2023

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Quantitative Muscle Analysis in FSHD Using Whole-Body Fat-Referenced MRI: Composite Scores for Longitudinal and Cross-sectional Analysis.
Michelle L Mellion, Per Widholm, Markus Karlsson, André Ahlgren, Rabi Tawil, Joost Kools

Neurology· August 2022

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