Publications by authors named "Laura Inhestern"

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Addressing psychosocial vulnerability in rare diseases: a call to action from a European expert consensus study.
Rosanne M Smits, Aukje Aerts, Teodor Angelov, Marissa Bentele, Ivo de Blaauw, Laura Inhestern

Orphanet J Rare Dis· October 2025

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Psychometric re-evaluation of the German version of the Physicians' Reaction to Uncertainty Scale.
David Zybarth, Laura Inhestern, Corinna Bergelt

Front Psychol· September 2025

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Parental cancer: communication, daily life changes and psychosocial support: a qualitative study of adolescents and young adults who experienced parental cancer during adolescence.
Wiebke Geertz, Laura Inhestern, Corinna Bergelt

BMC Psychol· September 2025

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Paediatric liver transplantation-improving health care through needs assessment, screening and interventions: protocol for a mixed-methods study.
Sanna Higgen, Jana Winzig, Lene Marie Johannsen, Bianca Hegen, Stefanie Kraft, Laura Inhestern

BMJ Open· August 2025

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Addressing gaps and enhancing experiences in support services for families of pediatric cancer survivors.
Verena Paul, Laura Inhestern, Désirée Sigmund, Jana Winzig, Stefan Rutkowski

Pediatr Res· July 2025

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The needs of families of pediatric cancer survivors: challenges and developments in psychosocial support services.
Verena Paul, Laura Inhestern, Désirée Sigmund, Jana Winzig, Stefan Rutkowski

Pediatr Res· July 2025

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[The psychosocial situation of parents of children with cancer during aftercare - Results of a qualitative study].
Désirée Sigmund, Verena Paul, Jana Winzig, Gabriele Escherich, Stefan Rutkowski, Laura Inhestern

Psychother Psychosom Med Psychol· July 2025

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Pain and physical function affecting quality of life in patients with osteogenesis imperfecta, X-linked hypophosphatemia, and hypermobile Ehlers-Danlos syndrome.
Ju Yeon Moon, Laura Inhestern, Nikolas Landskron, Florian Barvencik, Michael Amling

JBMR Plus· July 2025

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The German version of the self-efficacy questionnaire (SE-12-G) for measuring clinical communication skills in a sample of healthcare professionals: translation and psychometric properties.
Wiebke Frerichs, Lene Marie Johannsen, Laura Inhestern, Corinna Bergelt

BMC Med Educ· July 2025

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Decision-making for children and adolescents: a scoping review of interventions increasing participation in decision-making.
Inga Bosch, Hermann Siebel, Maike Heiser, Laura Inhestern

Pediatr Res· May 2025

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Exploring burnout and uncertainty in healthcare professionals: a path analysis within the context of rare diseases.
David Zybarth, Laura Inhestern, Corinna Bergelt

Front Public Health· May 2025

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Factors Associated With Depression and Anxiety in People With Rare Diseases During COVID-19: A Cross-Sectional Study.
Laura Inhestern, Alba Schwab de la O, David Zybarth, Maja Brandt, Ramona Otto

Depress Anxiety· May 2025

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Providing care to cancer patients parenting minor children: A qualitative study on healthcare professionals' communication practice.
Wiebke Frerichs, Laura Inhestern, Lene Marie Johannsen, Corinna Bergelt

Patient Educ Couns· April 2025

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Beyond Treatment: Prevalence, Predictors, and Changes in Anxiety and Depression Among Parents of Childhood Cancer Survivors.
Hannah Kurz, Verena Paul, Mona L Nasse, Konstantin A Krauth, Daniela Kandels, Laura Inhestern

Psychooncology· March 2025

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Uncertainties of healthcare professionals and informal caregivers in rare diseases: A systematic review.
David Zybarth, Laura Inhestern, Ramona Otto, Corinna Bergelt

Heliyon· October 2024

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Experiences and the psychosocial situation of parental caregivers of children with spinal muscular atrophy against the background of new treatment options: a qualitative interview study.
Maja Brandt, Joenna Driemeyer, Jessika Johannsen, Jonas Denecke, Laura Inhestern

BMC Psychol· October 2024

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Patient experiences of interprofessional collaboration and intersectoral communication in rare disease healthcare in Germany - a mixed-methods study.
Laura Inhestern, Ramona Otto, Maja Brandt, David Zybarth, Ralf Oheim

Orphanet J Rare Dis· May 2024

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Exploring the perspective of adolescent childhood cancer survivors on follow-up care and their concerns regarding the transition process-A qualitative content analysis.
Jana Winzig, Laura Inhestern, Désirée Sigmund, Verena Paul, Lesley-Ann Hail

Cancer Med· May 2024

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Reintegration into school, kindergarten and work in families of childhood cancer survivors after a family-oriented rehabilitation program.
Laura Inhestern, Mona L Nasse, Konstantin A Krauth, Daniela Kandels, Stefan Rutkowski

Front Pediatr· March 2024

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Child-centredness in paediatric magnetic resonance imaging: Information needs and experiences of children requiring magnetic resonance imaging and their parents.
Laura Inhestern, Jochen Herrmann, Jana Schürmann, Rieke Lisa Meister, Marie Teresa Nawka

Child Care Health Dev· January 2024

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[Consequences of a pandemic for people living with rare diseases and recommendations for maintaining healthcare and participation].
David Zybarth, Maja Brandt, Christine Mundlos, Laura Inhestern

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz· January 2024

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And what about today? Burden and support needs of adolescent childhood cancer survivors in long-term follow-up care-A qualitative content analysis.
Jana Winzig, Laura Inhestern, Désirée Sigmund, Verena Paul, Lesley-Ann Hail

Child Care Health Dev· January 2024

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Exploring the perspectives of cancer patients parenting minor children: A qualitative study on family-centered cancer care experiences.
Lene Johannsen, Wiebke Frerichs, Laura Inhestern, Corinna Bergelt

Patient Educ Couns· December 2023

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Effectiveness of a training program for healthcare professionals on parental cancer: Results of a randomized controlled pilot-study.
Lene Marie Johannsen, Wiebke Frerichs, Rebecca Philipp, Laura Inhestern, Corinna Bergelt

Psychooncology· October 2023

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Impact of the COVID-19 pandemic on health care and daily life of patients with rare diseases from the perspective of patient organizations - a qualitative interview study.
David Zybarth, Maja Brandt, Christine Mundlos, Laura Inhestern

Orphanet J Rare Dis· June 2023

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