Publications by authors named "Mareen Datema"

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Key lessons from the first international treatment eligibility committee: the case of metachromatic leukodystrophy.
Daphne H Schoenmakers, Marije A B C Asbreuk, Tamara Martin, Mareen Datema, Shanice Beerepoot

Eur J Paediatr Neurol· July 2025

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Framework for Multistakeholder Patient Registries in the Field of Rare Diseases: Focus on Neurogenetic Diseases.
Daphne H Schoenmakers, Sibren van den Berg, Lonneke Timmers, Laura A Adang, Tobias Bäumer, Mareen R Datema

Neurology· September 2024

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Establishing Treatment Effectiveness in Fabry Disease: Observation-Based Recommendations for Improvement.
Bram C F Veldman, Daphne H Schoenmakers, Laura van Dussen, Mareen R Datema, Mirjam Langeveld

Int J Mol Sci· September 2024

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Inherited metabolic disorders in adults: systematic review on patient characteristics and diagnostic yield of broad sequencing techniques (exome and genome sequencing).
Elise A Ferreira, Mark J N Buijs, Robin Wijngaard, Joost G Daams, Mareen R Datema

Front Neurol· July 2023

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ECG Changes during Adult Life in Fabry Disease: Results from a Large Longitudinal Cohort Study.
Mohamed El Sayed, Pieter G Postema, Mareen Datema, Laura van Dussen, Jan A Kors

Diagnostics (Basel)· January 2023

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Development and validation of the food allergy severity score.
Montserrat Fernández-Rivas, Ismael Gómez García, Alejandro Gonzalo-Fernández, Manuel Fuentes Ferrer, Sabine Dölle-Bierke, Mareen R Datema

Allergy· May 2022

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Influence of sex and phenotype on cardiac outcomes in patients with Fabry disease.
Mohamed El Sayed, Alexander Hirsch, Matthijs Boekholdt, Laura van Dussen, Mareen Datema

Heart· December 2021

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Estimating the Risk of Severe Peanut Allergy Using Clinical Background and IgE Sensitization Profiles.
Mareen R Datema, Sarah A Lyons, Montserrat Fernández-Rivas, Barbara Ballmer-Weber, André C Knulst

Front Allergy· June 2021

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Walnut Allergy Across Europe: Distribution of Allergen Sensitization Patterns and Prediction of Severity.
Sarah A Lyons, Mareen R Datema, Thuy-My Le, Riccardo Asero, Laura Barreales

J Allergy Clin Immunol Pract· January 2021

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Ratios of specific IgG over IgE antibodies do not improve prediction of peanut allergy nor of its severity compared to specific IgE alone.
Mareen R Datema, Esben Eller, Aeilko H Zwinderman, Lars K Poulsen, Serge A Versteeg

Clin Exp Allergy· February 2019

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Hazelnut allergy across Europe dissected molecularly: A EuroPrevall outpatient clinic survey.
Mareen R Datema, Laurian Zuidmeer-Jongejan, Riccardo Asero, Laura Barreales, Simona Belohlavkova

J Allergy Clin Immunol· August 2015

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