Publications by authors named "Maureen Lyon"

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Outcomes of a Randomized Controlled Trial Testing the Feasibility, Acceptability and Preliminary Efficacy of a Digital, Coach-Assisted Intervention to Enhance Hope and Quality of Life Among Young Adult Cancer Survivors.
Carla J Berg, Darcey M McCready, Pamela S Hinds, Maureen E Lyon, Kyla Dennis

Psychooncology· November 2025

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"" Parental Treatment Preferences for Children With Rare Diseases: A Content Analysis of Pediatric Advance Care Plans.
Tamiko Younge, Hailey Moore, Jessica D Thompkins, Maureen E Lyon

Am J Hosp Palliat Care· November 2025

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Profiles of quality of life among US young adult cancer survivors and their associations with potential psychosocial intervention targets of hope and psychological flexibility.
Carla J Berg, Laura C Schubel, Darcey M McCready, Sheena Shajan, Palash Bhanot, Maureen E Lyon

Qual Life Res· September 2025

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Parental Goals of Care for Children With Rare Diseases: A Content Analysis of Pediatric Advance Care Planning Conversations.
Tamiko Younge, Hailey Moore, Jessica D Thompkins, Maureen E Lyon

Am J Hosp Palliat Care· July 2025

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Pediatric Advance Care Planning and Adolescent Preparedness and Quality of Life: An RCT.
Sarah Friebert, Eduardo A Trujillo Rivera, Justin N Baker, Jessica D Thompkins, Daniel Grossoehme, Maureen E Lyon

Pediatrics· February 2025

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Impact of mental health in persons living with rare disease: Findings from the AMCP Market Insights Program.
Terry Richardson, Michelle Rice, Maureen Ellen Lyon, Michael Kobernick, Lesa Brackbill

J Manag Care Spec Pharm· July 2024

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Advance Care Planning for Children With Rare Diseases: A Pilot RCT.
Maureen E Lyon, Jamie L Fraser, Jessica D Thompkins, Heidi Clark, Nicola Brodie

Pediatrics· June 2024

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Recruitment and retention challenges and strategies in randomized controlled trials of psychosocial interventions for children with cancer and their parents: a collective case study.
Anne van Driessche, Kim Beernaert, Luc Deliens, Marijke C Kars, Maureen E Lyon

Eur J Pediatr· October 2023

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Examining the Cultural Appropriateness of Advance Care Planning Tools for Adolescents and Young Adults With Cancer: An Example of Cross-Cultural Adaptation of the Voicing My CHOiCES Tool.
Holly E Evans, Sophie Jessop, Sima Z Bedoya, Maureen E Lyon, Lori Wiener

Curr Probl Cancer· October 2023

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Voicing their choices: Advance care planning with adolescents and young adults with cancer and other serious conditions.
Lori Wiener, Sima Bedoya, Haven Battles, Leonard Sender, Keri Zabokrtsky, Maureen Lyon

Palliat Support Care· August 2022

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Effect of the Family-Centered Advance Care Planning for Teens with Cancer Intervention on Sustainability of Congruence About End-of-Life Treatment Preferences: A Randomized Clinical Trial.
Jennifer Susan Needle, Sarah Friebert, Jessica D Thompkins, Daniel H Grossoehme, Justin N Baker, Maureen E Lyon

JAMA Netw Open· July 2022

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Special Issue: Psychosocial Considerations for Children and Adolescents Living with a Rare Disease.
Maureen E Lyon, Lori Wiener

Children (Basel)· July 2022

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Adolescent and Young Adult Initiated Discussions of Advance Care Planning: Family Member, Friend and Health Care Provider Perspectives.
Sima Z Bedoya, Abigail Fry, Mallorie L Gordon, Maureen E Lyon, Jessica Thompkins

Front Psychol· June 2022

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An Intervention in Congruence for End-of-Life Treatment Preference: A Randomized Trial.
Justin N Baker, Sarah Friebert, Jennifer Needle, JiJi Jiang, Jichuan Wang, Maureen E Lyon

Pediatrics· May 2022

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The Transition to Adulthood for Youth Living with Rare Diseases.
Melanie Sandquist, TjaMeika Davenport, Jana Monaco, Maureen E Lyon

Children (Basel)· May 2022

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"It Is a Whole Different Life from the Life I Used to Live": Assessing Parents' Support Needs in Paediatric Palliative Care.
Samar M Aoun, Roswitha Stegmann, Renee Deleuil, Suzanne Momber, Lisa Cuddeford, Maureen E Lyon

Children (Basel)· March 2022

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Family-Centered Advance Care Planning: What Matters Most for Parents of Children with Rare Diseases.
Karen Fratantoni, Jessica Livingston, Sandra E Schellinger, Samar M Aoun, Maureen E Lyon

Children (Basel)· March 2022

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The intersectionality of gender and poverty on symptom suffering among adolescents with cancer.
Maureen E Lyon, Yao I Cheng, Jennifer Needle, Sarah Friebert, Justin N Baker

Pediatr Blood Cancer· August 2021

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What Do Adults With HIV Want? End-of-Life Care Goals, Values and Beliefs by Gender, Race, Sexual Orientation.
Katherine B Grill, Jichuan Wang, Rachel K Scott, Debra Benator, Lawrence J D'Angelo, Maureen E Lyon

Am J Hosp Palliat Care· June 2021

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Advance Care Planning-Complex and Working: Longitudinal Trajectory of Congruence in End-of-Life Treatment Preferences: An RCT.
Maureen E Lyon, Sarah Caceres, Rachel K Scott, Debra Benator, Linda Briggs

Am J Hosp Palliat Care· June 2021

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Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT.
Jessica D Thompkins, Jennifer Needle, Justin N Baker, Linda Briggs, Yao I Cheng, Maureen E Lyon

Pediatrics· June 2021

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Provider Discussion about Lifestyle by Cancer History: A Nationally Representative Survey.
Hannah Arem, Xuejing Duan, Diane K Ehlers, Maureen E Lyon, Julia H Rowland

Cancer Epidemiol Biomarkers Prev· February 2021

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The Effect of FAmily-CEntered (FACE) Pediatric Advanced Care Planning Intervention on Family Anxiety: A Randomized Controlled Clinical Trial for Adolescents With HIV and Their Families.
Christopher J Lin, Yao I Cheng, Patricia A Garvie, Lawrence J D'Angelo, Jichuan Wang, Maureen E Lyon

J Fam Nurs· November 2020

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The Role of Religiousness and Spirituality in Health-related Quality of Life of Persons Living with HIV: A Latent Class Analysis.
Katherine B Grill, Jichuan Wang, Yao I Cheng, Maureen E Lyon

Psycholog Relig Spiritual· November 2020

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The profile and support needs of parents in paediatric palliative care: comparing cancer and non-cancer groups.
Samar M Aoun, Fenella J Gill, Marianne B Phillips, Suzanne Momber, Lisa Cuddeford, Maureen E Lyon

Palliat Care Soc Pract· September 2020

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