Publications by authors named "Molly Pam"

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"Find ways to work parenting into cystic fibrosis": A PhotoVoice exploration of being a parent and having CF.
Olivia M Stransky, Savvy Benipal, Molly Pam, Jennifer L Taylor-Cousar, Patricia Documet

Pediatr Pulmonol· May 2023

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Engaging Stakeholders in the Development of a Reproductive Goals Decision AID for Women with Cystic Fibrosis.
Olivia M Stransky, Molly Pam, Sigrid L Ladores, Mehret Birru Talabi, Sonya Borrero

J Patient Exp· February 2022

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A model for building a national, patient-driven database to track contraceptive use in women with rare diseases.
Tatiana Josephy, Deena R Loeffler, Molly Pam, Emily M Godfrey

J Am Med Inform Assoc· January 2022

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Development and evaluation of a virtual patient-centered outcomes research training program for the cystic fibrosis community.
Emily M Godfrey, Erin K Thayer, Laura Mentch, Traci M Kazmerski, Georgia Brown, Molly Pam

Res Involv Engagem· December 2021

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Best Practices for Virtual Engagement of Patient-Centered Outcomes Research Teams During and After the COVID-19 Pandemic: Qualitative Study.
Erin K Thayer, Molly Pam, Morhaf Al Achkar, Laura Mentch, Georgia Brown

J Particip Med· March 2021

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Educational Needs and Preferences for Patient-Centered Outcomes Research in the Cystic Fibrosis Community: Mixed Methods Study.
Emily M Godfrey, Traci M Kazmerski, Georgia Brown, Erin K Thayer, Laura Mentch, Molly Pam

JMIR Form Res· March 2021

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