Publications by authors named "Peter Jacoby"

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Prevalence of attention deficit hyperactivity disorder/hyperkinetic disorder of pediatric and adult populations in clinical settings: a systematic review, meta-analysis and meta-regression.
Simon Johnson, Eric Lim, Peter Jacoby, Stephen V Faraone, Benjamin Minche Su

Mol Psychiatry· January 2026

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Parent/caregiver perspectives of meaningful improvement in functional domains for people with CDKL5 deficiency disorder: a mixed-methods study.
Jessica Keeley, Zoe Skoda, Karen Utley, Eric D Marsh, Gabrielle A Conecker, Peter Jacoby

Qual Life Res· December 2025

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Psychometric validation of the quality of life Inventory - Disability (QI-Disability) among patients with Lennox-Gastaut syndrome and Dravet syndrome.
Drishti Shah, Peter Jacoby, Helen Doll, Hoan Do, J Scott Andrews

Epilepsy Behav· December 2025

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Development and initial validation of the Communication Inventory Disability - Observer Reported (CID-OR): a measure of communication in CDKL5 deficiency disorder.
Jenny Downs, Jessica Keeley, Peter Jacoby, Sofia Benson-Goldberg, Sarah Pillar

J Patient Rep Outcomes· December 2025

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Beyond Seizures as an Outcome Measure: A Global Severity Scoring System for CDKL5 Deficiency Disorder.
Peter Jacoby, Eric D Marsh, Scott Demarest, Jacinta M Saldaris, Helen Leonard

Brain Behav· November 2025

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Outcomes following a behaviour change intervention within hospitals to improve birth registrations and hospital utilisation for Aboriginal and/or Torres Strait Islander infants: a quasi-experimental and cohort study.
K McAuley, Natalie Ann Strobel, Daniel Christensen, Karen Margaret Edmond, Peter Jacoby

BMJ Open· October 2025

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Content Validation of the Communication Inventory Disability-Observer Reported (CID-OR).
Jessica Keeley, Jacinta Saldaris, Sofia Benson-Goldberg, Judy Lariviere, Helen Leonard, Peter Jacoby

J Child Neurol· September 2025

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Plasma Cortisol Levels in Infants With Respiratory Distress During Different Phases of Neonatal Transport: A Pilot Prospective Observational Before-After Study.
Saumil Desai, Beth Hazeldine, Harshad Panchal, Peter Jacoby, Steven Resnick

Air Med J· May 2025

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Septo-optic dysplasia and gastroschisis: trends in birth prevalence and association with maternal age.
David J Cullingford, Mary B Abraham, Aris Siafarikas, A Marie Blackmore, Jenny Downs, Peter Jacoby

Eur J Pediatr· April 2025

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Hospitalizations Following Complex Hip Surgery in Children with Intellectual Disability: A Self-Controlled Case Series Analysis.
Keerthi Anpalagan, Peter Jacoby, Katherine Stannage, Helen Leonard, Katherine Langdon

J Pediatr· March 2025

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Modification of a parent-report sleep scale for individuals with CDKL5 deficiency disorder: a psychometric study.
Jacinta M Saldaris, Scott Demarest, Peter Jacoby, Heather E Olson, Kiran Maski

J Clin Sleep Med· December 2024

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Parent-reported outcome measures evaluating communication in individuals with rare neurodevelopmental disorders: A systematic review.
Jacinta M Saldaris, Jeremiah Ayalde, Samali Kankanange, Jessica Keeley, Helen Leonard, Peter Jacoby

Int J Lang Commun Disord· November 2024

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Psychometric evaluation of clinician- and caregiver-reported clinical severity assessments for individuals with CDKL5 deficiency disorder.
Jacinta M Saldaris, Peter Jacoby, Jenny Downs, Eric D Marsh, Helen Leonard

Epilepsia· October 2024

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Validating the Communication and Symbolic Behavior Scales-Developmental Profile Infant-Toddler Checklist (CSBS-DP ITC) Beyond Infancy in the CDKL5 Deficiency Disorder.
Jacinta Saldaris, Helen Leonard, Kingsley Wong, Peter Jacoby, Mary Spence

J Autism Dev Disord· July 2024

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Communication of individuals with CDKL5 deficiency disorder as observed by caregivers: A descriptive qualitative study.
Jessica Keeley, Sofia Benson-Goldberg, Jacinta Saldaris, Judy Lariviere, Helen Leonard, Peter Jacoby

Am J Med Genet A· July 2024

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Risk of otitis media in offspring following maternal prenatal stress exposure.
Monique Robinson, David Burgner, Ashleigh Lin, Peter Jacoby, Robert Eikelboom

Int J Pediatr Otorhinolaryngol· July 2024

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Psychometric Properties of the EQ-5D-Y-5L for Children With Intellectual Disability.
Jenny Downs, Richard Norman, Brendan Mulhern, Peter Jacoby, Dinah Reddihough

Value Health· June 2024

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How Well Does the EQ-5D-Y-5L Describe Children With Intellectual Disability?: "There's a Lot More to My Child Than That She Can't Wash or Dress Herself.".
A Marie Blackmore, Brendan Mulhern, Richard Norman, Dinah Reddihough, Catherine S Choong, Peter Jacoby

Value Health· February 2024

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Influenza vaccination in Western Australian children: Exploring the health benefits and cost savings of increased vaccine coverage in children.
Christopher C Blyth, Parveen Fathima, Rebecca Pavlos, Peter Jacoby, Olivia Pavy

Vaccine X· December 2023

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The development, content and response process validation of a caregiver-reported severity measure for CDKL5 deficiency disorder.
Sonja I Ziniel, Alexandra Mackie, Jacinta Saldaris, Helen Leonard, Peter Jacoby

Epilepsy Res· November 2023

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Pneumococcal carriage, serotype distribution, and antimicrobial susceptibility in Papua New Guinean children vaccinated with PCV10 or PCV13 in a head-to-head trial.
Tilda Orami, Celestine Aho, Rebecca L Ford, William S Pomat, Andrew Greenhill, Peter Jacoby

Vaccine· August 2023

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Long-term outcomes of symptomatic optic pathway glioma: 32-year experience at a single Western Australian tertiary pediatric oncology center.
Revathi Rajagopal, Mumtaz Khan, Robert Lethbridge, Gabriel Lee, Sharon Lee, Peter Jacoby

Front Oncol· July 2023

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Early onset of otitis media is a strong predictor of subsequent disease in urban Aboriginal infants: Djaalinj Waakinj cohort study.
Holly J Richmond, Valerie M Swift, June E Doyle, Natasha R Morrison, Sharon A Weeks, Peter Jacoby

J Paediatr Child Health· May 2023

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Psychometric properties of QI-Disability in CDKL5 Deficiency Disorder: Establishing readiness for clinical trials.
Jacinta M Saldaris, Peter Jacoby, Helen Leonard, Tim A Benke, Scott Demarest

Epilepsy Behav· February 2023

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Quality of life beyond diagnosis in intellectual disability - Latent profiling.
Helen Leonard, Andrew Whitehouse, Peter Jacoby, Tim Benke, Scott Demarest

Res Dev Disabil· October 2022

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