Publications by authors named "Rachel Burman"

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"I wanna live and not think about the future" what place for advance care planning for people living with severe multiple sclerosis and their families? A qualitative study.
Jonathan Koffman, Clarissa Penfold, Laura Cottrell, Bobbie Farsides, Catherine J Evans, Rachel Burman

PLoS One· May 2022

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A realist review of advance care planning for people with multiple sclerosis and their families.
Laura Cottrell, Guillaume Economos, Catherine Evans, Eli Silber, Rachel Burman

PLoS One· December 2020

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Making ordinary decisions in extraordinary times.
Rachel Burman, Ruth Cairns, Sergio Canestrini, Robert Elias, Victoria Metaxa

BMJ· August 2020

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Effect of Short-term Integrated Palliative Care on Patient-Reported Outcomes Among Patients Severely Affected With Long-term Neurological Conditions: A Randomized Clinical Trial.
Wei Gao, Rebecca Wilson, Nilay Hepgul, Deokhee Yi, Catherine Evans, Rachel Burman

JAMA Netw Open· August 2020

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Relative preservation of triceps over biceps strength in upper limb-onset ALS: the 'split elbow'.
Roaya Khalaf, Sarah Martin, Cathy Ellis, Rachel Burman, Jemeen Sreedharan

J Neurol Neurosurg Psychiatry· July 2019

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The benefit of evolving multidisciplinary care in ALS: a diagnostic cohort survival comparison.
Sarah Martin, Emma Trevor-Jones, Sabyha Khan, Keelan Shaw, Deepti Marchment, Rachel Burman

Amyotroph Lateral Scler Frontotemporal Degener· November 2017

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'End of life could be on any ward really': A qualitative study of hospital volunteers' end-of-life care training needs and learning preferences.
Lisa Jane Brighton, Jonathan Koffman, Vicky Robinson, Shaheen A Khan, Rob George, Rachel Burman

Palliat Med· October 2017

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Primary care physicians' educational needs and learning preferences in end of life care: A focus group study in the UK.
Lucy Ellen Selman, Lisa Jane Brighton, Vicky Robinson, Rob George, Shaheen A Khan, Rachel Burman

BMC Palliat Care· March 2017

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Decision Making About Gastrostomy and Noninvasive Ventilation in Amyotrophic Lateral Sclerosis.
Naomi H Martin, Vanessa Lawrence, Joanna Murray, Anna Janssen, Irene Higginson, Rachel Burman

Qual Health Res· August 2016

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Improving confidence and competence of healthcare professionals in end-of-life care: an evaluation of the 'Transforming End of Life Care' course at an acute hospital trust.
Lucy Selman, Vicky Robinson, Lara Klass, Shaheen Khan, Rob George, Rachel Burman

BMJ Support Palliat Care· June 2016

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'It doesn't do the care for you': a qualitative study of health care professionals' perceptions of the benefits and harms of integrated care pathways for end of life care.
Katherine E Sleeman, Jonathan Koffman, Katherine Bristowe, Caroline Rumble, Rachel Burman

BMJ Open· September 2015

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Exploring meanings of illness causation among those severely affected by multiple sclerosis: a comparative qualitative study of Black Caribbean and White British people.
Jonathan Koffman, Cassie Goddard, Wei Gao, Diana Jackson, Pauline Shaw, Rachel Burman

BMC Palliat Care· April 2015

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The evaluation of pain in amyotrophic lateral sclerosis: a case controlled observational study.
Victoria C J Wallace, Cathy M Ellis, Rachel Burman, Catherine Knights, Christopher E Shaw

Amyotroph Lateral Scler Frontotemporal Degener· December 2014

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Psychological as well as illness factors influence acceptance of non-invasive ventilation (NIV) and gastrostomy in amyotrophic lateral sclerosis (ALS): a prospective population study.
Naomi H Martin, Sabine Landau, Anna Janssen, Rebecca Lyall, Irene Higginson, Rachel Burman

Amyotroph Lateral Scler Frontotemporal Degener· September 2014

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Progression, symptoms and psychosocial concerns among those severely affected by multiple sclerosis: a mixed-methods cross-sectional study of Black Caribbean and White British people.
Jonathan Koffman, Wei Gao, Cassie Goddard, Rachel Burman, Diana Jackson

PLoS One· June 2014

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Estimating clinical stage of amyotrophic lateral sclerosis from the ALS Functional Rating Scale.
Rubika Balendra, Ashley Jones, Naheed Jivraj, Catherine Knights, Catherine M Ellis, Rachel Burman

Amyotroph Lateral Scler Frontotemporal Degener· June 2014

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Healthcare professionals' views on the provision of gastrostomy and noninvasive ventilation to amyotrophic lateral sclerosis patients in England, Wales, and Northern Ireland.
Tamatha O Ruffell, Naomi H Martin, Anna Janssen, Lokesh Wijesekera, Catherine Knights, Rachel Burman

J Palliat Care· April 2014

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Comparisons of Costs between Black Caribbean and White British Patients with Advanced Multiple Sclerosis in the UK.
Wayne Smith, Paul McCrone, Cassie Goddard, Wei Gao, Rachel Burman

Mult Scler Int· March 2014

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Development and evaluation of the feasibility and effects on staff, patients, and families of a new tool, the Psychosocial Assessment and Communication Evaluation (PACE), to improve communication and palliative care in intensive care and during clinical uncertainty.
Irene J Higginson, Jonathan Koffman, Philip Hopkins, Wendy Prentice, Rachel Burman

BMC Med· October 2013

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Symptom prevalence, severity and palliative care needs assessment using the Palliative Outcome Scale: a cross-sectional study of patients with Parkinson's disease and related neurological conditions.
Tariq Z Saleem, Irene J Higginson, K Ray Chaudhuri, Anne Martin, Rachel Burman

Palliat Med· September 2013

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Symptoms and quality of life in late stage Parkinson syndromes: a longitudinal community study of predictive factors.
Irene J Higginson, Wei Gao, Tariq Zaffer Saleem, K Ray Chaudhuri, Rachel Burman

PLoS One· April 2013

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Eating-derived pleasure in amyotrophic lateral sclerosis as a predictor of non-oral feeding.
Julia Johnson, P Nigel Leigh, Christopher E Shaw, Cathy Ellis, Rachel Burman

Amyotroph Lateral Scler· October 2012

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A proposed staging system for amyotrophic lateral sclerosis.
Jose C Roche, Ricardo Rojas-Garcia, Kirsten M Scott, William Scotton, Catherine E Ellis, Rachel Burman

Brain· March 2012

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Evaluation of a new model of short-term palliative care for people severely affected with multiple sclerosis: a randomised fast-track trial to test timing of referral and how long the effect is maintained.
Irene J Higginson, Massimo Costantini, Eli Silber, Rachel Burman, Polly Edmonds

Postgrad Med J· November 2011

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