Publications by authors named "Raymond Saich"

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Exploring Quality of Life in Adults Living With Late-onset Pompe Disease: A Combined Quantitative and Qualitative Analysis of Patient Perceptions from Australia, France, Italy, and the Netherlands.
Holly Lumgair, Lisa Bashorum, Alasdair MacCulloch, Elizabeth Minas, George Timmins, Raymond Saich

J Health Econ Outcomes Res· January 2025

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Is Newborn Screening the Ultimate Strategy to Reduce Diagnostic Delays in Pompe Disease? The Parent and Patient Perspective.
Raymond Saich, Renee Brown, Maddy Collicoat, Catherine Jenner, Jenna Primmer

Int J Neonatal Screen· March 2020

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The role of patient advocacy organizations in shaping medical research: the Pompe model.
Tiffany House, Kevin O'Donnell, Raymond Saich, Fabio Di Pietro, Ria Broekgaarden

Ann Transl Med· July 2019

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