Publications by authors named "Rowan Forbes Shepherd"

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How We Approach the Integration of Psychological Services in the Care of Children With Cancer Predisposition Syndromes.
Joan W Hanania, Rowan Forbes Shepherd, Lori Wiener, Katianne M Howard Sharp, Morgan N Similuk

Pediatr Blood Cancer· December 2025

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Concerns about the consequences of cancer predisposition and relationships with quality of life in young adults with Li-Fraumeni syndrome.
Rowan Forbes Shepherd, Camella J Rising, Richard P Moser, Chloe O Huelsnitz, Patrick Boyd

Eur J Hum Genet· November 2025

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Navigating disclosure in new romantic partnerships as an adolescent or young adult with Li-Fraumeni syndrome.
Camella J Rising, Chloe O Huelsnitz, Rowan Forbes Shepherd, Catherine Wilsnack, Patrick Boyd

Fam Cancer· September 2025

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Relational Aspects to Screening-Associated Distress Among Individuals With Li-Fraumeni Syndrome: "The All-Clear for Me Is Good. The All-Clear for My Kids Is Great".
Chloe O Huelsnitz, Allison Werner-Lin, Rowan Forbes Shepherd, Paul K J Han, Payal P Khincha

Qual Health Res· September 2025

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'I told them they had to get tested, and they did': social influence among siblings with Li-Fraumeni syndrome.
Chloe O Huelsnitz, Allison Werner-Lin, Ashley S Thompson, Camella J Rising, Rowan Forbes Shepherd

Psychol Health· July 2025

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'Finding Comfort in Discomfort': A Qualitative Study of Cancer Clinicians and Researchers' Experiences of Conducting a Cancer Rapid Autopsy Program.
Erin Tutty, Philomena Horsley, Rowan Forbes Shepherd, Laura Forrest

Psychooncology· May 2025

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Relating to the Body Under Chronic Cancer Threat: Implications for Psychosocial Health Among Adolescents and Young Adults with Cancer Predisposition Syndromes.
Camella J Rising, Rowan Forbes Shepherd, Alix G Sleight, Patrick Boyd, Catherine Wilsnack

J Adolesc Young Adult Oncol· April 2025

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Defining the complex needs of families with rare diseases-the example of telomere biology disorders.
Catherine Wilsnack, Camella J Rising, Emily E Pearce, Rowan Forbes Shepherd, Ashley S Thompson

Eur J Hum Genet· December 2024

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A "rotating menu" of medical uncertainty for families affected by telomere biology disorders: A qualitative interview study.
Emily Pearce, Alina Majid, Toniya Brown, Catherine Wilsnack, Camella Rising, Rowan Forbes Shepherd

SSM Qual Res Health· December 2024

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"Crying in the Wilderness"-The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis.
Emily Eidenier Pearce, Alina Majid, Toniya Brown, Rowan Forbes Shepherd, Camella Rising

JMIR Form Res· December 2024

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Diet and physical activity behaviors: how are they related to illness perceptions, coping, and health-related quality of life in young people with hereditary cancer syndromes?
Camella J Rising, Chloe O Huelsnitz, Rowan Forbes Shepherd, William M P Klein, Alix G Sleight

J Behav Med· August 2024

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Exploring Consumers' Motivations and Experiences of Engaging as Partners in Cancer Research.
Jamie L Waterland, Cassandra Beer, Rowan Forbes Shepherd, Laura E Forrest

Patient· July 2024

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Correction: Exploring Consumers' Motivations and Experiences of Engaging as Partners in Cancer Research.
Jamie L Waterland, Cassandra Beer, Rowan Forbes Shepherd, Laura E Forrest

Patient· July 2024

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Patient communication and experiences in cancer clinical drug trials: a mixed-method study at a specialist clinical trials unit.
Rowan Forbes Shepherd, Ashleigh Bradford, Marian Lieschke, Kylie Shackleton, Amelia Hyatt

Trials· June 2023

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Becoming and being a parent with an inherited predisposition to diffuse gastric cancer: A qualitative study of young adults with a pathogenic variant.
Erin Tutty, Rowan Forbes Shepherd, Cass Hoskins, Rebecca Purvis, Mary Shanahan

J Psychosoc Oncol· April 2023

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How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? "With Li-Fraumeni syndrome, it's just an intermission".
Allison Werner-Lin, Rowan Forbes Shepherd, Camella J Rising, Ashley S Thompson, Chloe Huelsnitz

Psychooncology· March 2023

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The Clinical and Psychosocial Outcomes for Women Who Received Unexpected Clinically Actionable Germline Information Identified through Research: An Exploratory Sequential Mixed-Methods Comparative Study.
Laura E Forrest, Rowan Forbes Shepherd, Erin Tutty, Angela Pearce, Ian Campbell

J Pers Med· July 2022

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Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body.
Allison Werner-Lin, Rowan Forbes Shepherd, Jennifer L Young, Catherine Wilsnack, Shana L Merrill

Soc Sci Med· May 2022

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Reproduction and Genetic Responsibility: An Interpretive Description of Reproductive Decision-Making for Young People With Li-Fraumeni Syndrome.
Rowan Forbes Shepherd, Allison Werner-Lin, Louise A Keogh, Martin B Delatycki, Laura E Forrest

Qual Health Res· January 2022

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Unselected Women's Experiences of Receiving Genetic Research Results for Hereditary Breast and Ovarian Cancer: A Qualitative Study.
Rowan Forbes Shepherd, Laura E Forrest, Erin Tutty, Angela Pearce, Lisa Devereux

Genet Test Mol Biomarkers· December 2021

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"I need to know if I'm going to die young": Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome.
Rowan Forbes Shepherd, Allison Werner-Lin, Louise A Keogh, Martin B Delatycki, Laura E Forrest

J Psychosoc Oncol· September 2021

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Benefits and burdens of risk management for young people with inherited cancer: A focus on Li-Fraumeni syndrome.
Rowan Forbes Shepherd, Louise A Keogh, Allison Werner-Lin, Martin B Delatycki, Laura E Forrest

Aust J Gen Pract· August 2021

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Finding the five-year window: A qualitative study examining young women's decision-making and experience of using tamoxifen to reduce BRCA1/2 breast cancer risk.
Laura E Forrest, Rowan Forbes Shepherd, Mary-Anne Young, Louise A Keogh, Paul A James

Psychooncology· February 2021

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The art and science of recruitment to a cancer rapid autopsy programme: A qualitative study exploring patient and clinician experiences.
Erin Tutty, Philomena Horsley, Rowan Forbes Shepherd, Laura E Forrest

Palliat Med· February 2021

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Health professionals' practice for young people with, or at risk of, Li-Fraumeni syndrome: An Australasian survey.
Rowan Forbes Shepherd, Louise A Keogh, Allison Werner-Lin, Martin B Delatycki, Laura E Forrest

J Genet Couns· October 2020

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