Publications by authors named "Sandra Paci"

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POPUP: an observational digital study reporting general population norms for the EQ-5D-5-L and HUI-3 in 8 countries.
Sarah Dewilde, Nafthali Hananja Tollenaar, Glenn Phillips, Sandra Paci, Mathieu F Janssen

Arch Public Health· July 2025

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Caregiving burden among caregivers of people with myasthenia gravis.
Sarah Dewilde, Nafthali H Tollenaar, Pierre Boulanger, Annie Archer, Raquel Pardo, Sandra Paci

Orphanet J Rare Dis· June 2025

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A cost analysis of reductions in work productivity for MG patients and their caregivers by symptom severity.
Sarah Dewilde, Cynthia Z Qi, Femke De Ruyck, Sandra Paci, Lucas Van de Veire

Front Public Health· May 2025

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Concordance between patient- and physician-reported Myasthenia Gravis Activities of Daily Living (MG-ADL) scores.
Sarah Dewilde, M F Janssen, Nafthali H Tollenaar, Fiammetta Vanoli, Rita Frangiamore, Sandra Paci

Muscle Nerve· July 2023

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Real world study on prevalence, treatment and economic burden of myasthenia gravis in Italy.
Giovanni Antonini, Francesco Habetswallner, Maurizio Inghilleri, Renato Mantegazza, Carmelo Rodolico, Sandra Paci

Heliyon· June 2023

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Patient-reported impact of myasthenia gravis in the real world: findings from a digital observational survey-based study (MyRealWorld MG).
Sonia Berrih-Aknin, Jacqueline Palace, Andreas Meisel, Kristl G Claeys, Srikanth Muppidi, Sandra Paci

BMJ Open· May 2023

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Patient-reported burden of myasthenia gravis: baseline results of the international prospective, observational, longitudinal real-world digital study MyRealWorld-MG.
Sarah Dewilde, Glenn Philips, Sandra Paci, Jon Beauchamp, Silvia Chiroli

BMJ Open· January 2023

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Patient-reportedimpact of myasthenia gravis in the real world: protocol for a digital observational study (MyRealWorld MG).
Sonia Berrih-Aknin, Kristl G Claeys, Nancy Law, Renato Mantegazza, Hiroyuki Murai, Sandra Paci

BMJ Open· July 2021

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