Publications by authors named "Sarah Youssof"

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Measurement Properties of the Dysphagiameter for the Assessment of Dysphagia in Oculopharyngeal Muscular Dystrophy.
Claudia Côté, Bernard Brais, Charles Sèbiyo Batcho, Jean-Denis Brisson, Sarah Youssof

Dysphagia· August 2025

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Introducing the Dysphagiameter: a novel patient-reported outcome measure for evaluating dysphagia in oculopharyngeal muscular dystrophy - from conceptual framework to initial development.
Claudia Côté, Bernard Brais, Charles Sèbiyo Batcho, Jean-Denis Brisson, Sarah Youssof

Neuromuscul Disord· November 2023

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Cross-cultural adaptation of the SWAL-QOL and the Sydney Swallow Questionnaire (SSQ) into French-Canadian and preliminary assessment for their use in an oculopharyngeal muscular dystrophy (OPMD) population.
Claudia Côté, Julie Fortin, Bernard Brais, Sarah Youssof, Cynthia Gagnon

Qual Life Res· January 2022

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Patient-reported disease burden in oculopharyngeal muscular dystrophy.
Nicolette S Kurtz, Claudia Cote, Chad Heatwole, Cynthia Gagnon, Sarah Youssof

Muscle Nerve· December 2019

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The requirement for a disease-specific patient-reported outcome measure of dysphagia in oculopharyngeal muscular dystrophy.
Claudia Côté, Cynthia Gagnon, Sarah Youssof, Nicolette sKurtz, Bernard Brais

Muscle Nerve· April 2019

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Dysphagia-related quality of life in oculopharyngeal muscular dystrophy: Psychometric properties of the SWAL-QOL instrument.
Sarah Youssof, Carol Romero-Clark, Teddy Warner, Emily Plowman

Muscle Nerve· July 2017

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The relationship between physical symptoms and health-related quality of life in oculopharyngeal muscular dystrophy.
Sarah Youssof

Muscle Nerve· May 2016

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Hip flexion weakness is associated with impaired mobility in oculopharyngeal muscular dystrophy: a retrospective study with implications for trial design.
Sarah Youssof, Ronald Schrader, David Bear, Leslie Morrison

Neuromuscul Disord· March 2015

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Reply: To PMID 24259282.
Sarah Youssof, Michael Spafford

Muscle Nerve· November 2014

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The NIH Office of Rare Diseases Research patient registry Standard: a report from the University of New Mexico's Oculopharyngeal Muscular Dystrophy Patient Registry.
Shamsi Daneshvari, Sarah Youssof, Philip J Kroth

AMIA Annu Symp Proc· May 2014

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Safety of botulinum toxin for dysphagia in oculopharyngeal muscular dystrophy.
Sarah Youssof, Ronald M Schrader, Carol Romero-Clark, Gulmohor Roy, Michael Spafford

Muscle Nerve· April 2014

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Systematic review: efficacy and safety of medical marijuana in selected neurologic disorders [RETIRED]: report of the Guideline Development Subcommittee of the American Academy of Neurology.
Barbara S Koppel, John C M Brust, Terry Fife, Jeff Bronstein, Sarah Youssof

Neurology· April 2014

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Isolated facial sensory loss in stroke restricted to the ventroposteromedial nucleus.
Leo L Chen, Sarah Youssof, Navaz Karanjia, David S Liebeskind

Arch Neurol· July 2008

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Manual versus electric vacuum aspiration for early first-trimester abortion: a controlled study of complication rates.
Alisa B Goldberg, Gillian Dean, Mi-Suk Kang, Sarah Youssof, Philip D Darney

Obstet Gynecol· January 2004

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