Publications by authors named "Sue Burrell"

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Quantifying the impact of symptomatic acute hepatic porphyria on well-being via patient-reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (POWER) study.
Amy Dickey, Kristen Wheeden, Desiree Lyon, Sue Burrell, Sean Hegarty

JIMD Rep· January 2023

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Patient Perspective on Acute Hepatic Porphyria with Sporadic Attacks: A Chronic Disease with Substantial Health-Related Quality of Life Impacts.
Kristen Wheeden, Desiree Lyon Howe, Sue Burrell, Liz Gill, John Chamberlayne

Adv Ther· September 2022

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Patient and caregiver experiences of living with acute hepatic porphyria in the UK: a mixed-methods study.
Liz Gill, Sue Burrell, John Chamberlayne, Stephen Lombardelli, Jordanna Mora

Orphanet J Rare Dis· April 2021

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