Publications by authors named "Susan Apkon"

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Healthcare Self-Management, Executive Functioning, and Social Determinants of Health in Young Adults with Pediatric-Onset Disabilities: a Pilot Study.
Christine L Petranovich, Emma Drenth, Cristina Sarmiento, Ann Lantagne, Sarah Graber, Susan Apkon

Arch Clin Neuropsychol· November 2025

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Letter to the editor: A case of spinal muscular atrophy type 0 treated with nusinersen without progression of early-onset scoliosis.
Meghan Moore Burk, Carolyn Kelley, Kelli Browning, Anne Stratton, Susan Apkon

Brain Dev· October 2025

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Determination of core knowledge and skills for Pediatric Rehabilitation Medicine certification: A systematic practice analysis.
Kevin P Murphy, David W Pruitt, Susan Apkon, Carolyn L Kinney, Mikaela M Raddatz

J Pediatr Rehabil Med· August 2025

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Health Care, Educational, and Vocational Transitions in Young Adults With Pediatric-Onset Disabilities: Associations With Social Determinants of Health.
Christine L Petranovich, Karlisha Person-Jones, Samantha Koerber, Ann Lantagne, Sarah Graber, Susan Apkon

Arch Phys Med Rehabil· May 2025

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A Parent Project Muscular Dystrophy-sponsored International Workshop Report on Endocrine and Bone Issues in Patients with Duchenne Muscular Dystrophy: An Ever-changing Landscape.
Leanne M Ward, David R Weber, Sze Choong Wong, Susan Apkon, Paula R Clemens

J Neuromuscul Dis· May 2025

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Emotional well-being in transition-age adults with pediatric-onset disabilities: A cross-sectional study.
Christine L Petranovich, Samantha Koerber, Cristina Sarmiento, Sarah Graber, Michael Dichiaro, Susan Apkon

Rehabil Psychol· January 2025

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Barriers to diverse clinical trial participation in Duchenne muscular dystrophy: Engaging Hispanic/Latina caregivers and health professionals.
Norah L Crossnohere, Nicola B Campoamor, Eric Camino, Erin Dresnick, Daphne Oluwaseun Martschenko, Susan Apkon

Orphanet J Rare Dis· May 2024

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The Early Care (0-3 Years) In Duchenne Muscular Dystrophy Meeting Report.
Niki Armstrong, Susan Apkon, Kiera N Berggren, Catherine Braun, Emma Ciafaloni

J Neuromuscul Dis· March 2024

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Quantitative measures of motor development in Angelman syndrome.
Jessica Duis, Austin Skinner, Robert Carson, Arnaud Gouelle, Melanie Annoussamy, Susan Apkon

Am J Med Genet A· July 2023

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Challenges and Opportunities in Academic Physiatry: An Environmental Scan.
David C Morgenroth, Tiffany Knowlton, Susan Apkon, Cheri A Blauwet, Anthony S Burns

Am J Phys Med Rehabil· February 2023

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Respiratory outcomes in children with congenital myotonic dystrophy.
Jaclyn Omura, Maida Chen, Miriam Haviland, Susan Apkon

J Pediatr Rehabil Med· June 2022

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Meta-analyses of deflazacort versus prednisone/prednisolone in patients with nonsense mutation Duchenne muscular dystrophy.
Perry B Shieh, Gary Elfring, Panayiota Trifillis, Claudio Santos, Stuart W Peltz, Susan Apkon

J Comp Eff Res· December 2021

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Parent Project Muscular Dystrophy Females with Dystrophinopathy Conference, Orlando, Florida June 26 - June 27, 2019.
Susan Apkon, Kathi Kinnett, Linda Cripe, Dongsheng Duan, Jamie L Jackson

J Neuromuscul Dis· October 2021

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Feasibility and Acceptability of a Telephone-Based Intervention for Hispanic Children to Promote Treatment Adherence After Traumatic Brain Injury: A Pilot Study.
Nathalia Jimenez, Molly Fuentes, Alyssa Virtue, Laura Alonso-Gonzalez, Edgar Lopez, Susan Apkon

J Head Trauma Rehabil· October 2021

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Steroid switching in dystrophinopathy treatment: a US chart review of patient characteristics and clinical outcomes.
Jessica R Marden, Claudio Santos, Brian Pfister, Richard Able, Henry Lane, Susan Apkon

J Comp Eff Res· October 2021

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Reliability and construct validity of the Duchenne Video Assessment.
Marielle G Contesse, Amber T L Sapp, Susan D Apkon, Linda P Lowes, Laura Dalle Pazze

Muscle Nerve· August 2021

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Children With Disabilities Must Be More Than an Afterthought in School Reopening.
Maurice G Sholas, Susan D Apkon, Amy J Houtrow

JAMA Pediatr· April 2021

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Transforaminal intrathecal delivery of nusinersen for older children and adults with spinal muscular atrophy and complex spinal anatomy: an analysis of 200 consecutive injections.
John J Weaver, Danial K Hallam, Jeffrey Forris Beecham Chick, Sandeep Vaidya, David S Shin, Susan Apkon

J Neurointerv Surg· January 2021

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School reopening during COVID-19 pandemic: Considering students with disabilities.
Joline E Brandenburg, Lainie K Holman, Susan D Apkon, Amy J Houtrow, Robert Rinaldi

J Pediatr Rehabil Med· December 2020

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Pediatric neuromuscular disorders: Care considerations during the COVID-19 pandemic.
Anne Troike Stratton, Richard Ogden Roberts Iii, Oren Kupfer, Terri Carry, Julie Parsons, Susan Apkon

J Pediatr Rehabil Med· December 2020

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The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic.
Aravindhan Veerapandiyan, Kathryn R Wagner, Susan Apkon, Craig M McDonald, Katherine D Mathews

Muscle Nerve· July 2020

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Restoration of Walking After Surgical Management of Equinus in a Non-ambulatory Child With Duchenne Muscular Dystrophy: A Case Presentation.
Maryse Bouchard, Leslie F Vogel, Susan D Apkon

PM R· November 2019

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Rehabilitation Management of the Patient With Duchenne Muscular Dystrophy.
Laura E Case, Susan D Apkon, Michelle Eagle, Ann Gulyas, Laura Juel

Pediatrics· October 2018

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Orthopedic and Surgical Management of the Patient With Duchenne Muscular Dystrophy.
Susan D Apkon, Ben Alman, David J Birnkrant, Robert Fitch, Robert Lark

Pediatrics· October 2018

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Primary Care and Emergency Department Management of the Patient With Duchenne Muscular Dystrophy.
Garey Noritz, James Naprawa, Susan D Apkon, Kathi Kinnett, Fabrizio Racca

Pediatrics· October 2018

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