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The discussions reveal widespread concern about diagnostic delays, as many posts cite waiting lists and misdiagnoses, while personal stories, such as those of women who underwent hysterectomies or share their pain experiences, demonstrate deep engagement. The tone varies from frustration to advocacy, reflecting both emotional investment and recognition of the disease's substantial impact.
Many discussions support the importance of recognizing and addressing endometriosis, with some expressing frustration about delayed diagnoses and inadequate care, indicating general agreement on its seriousness.
Posts show high engagement with detailed medical insights, personal stories, and calls to action, reflecting strong interest in understanding and improving endometriosis awareness and treatment.
Numerous discussions include sharing personal experiences, medical details, and advocacy efforts, demonstrating deep involvement and thoughtful engagement.
The discussions highlight how the disease profoundly affects lives, emphasizes the need for better healthcare policies, and shares new research advances, indicating a moderate but meaningful level of impact.
Esto no es nuevo; parte de mi historia clinica en el SAS respecto a mi seguimiento en el servicio de ginecología por mi endometriosis también ha desaparecido "misteriosamente"
This week is Invisible Disabilities Week, so I thought I’d get a bit vulnerable. I am chronically ill in so many different ways, and not a single one of them is visible. I have POTS and fibromyalgia, endometriosis and Celiac disease and so many other things doctors are struggling to figure out. 1/
I have endometriosis. I graduated into the Great Recession. I couldn’t purchase an insurance plan. I didn’t qualify for the Texas High Risk Pool. The ACA has kept me insured since it was enacted. I am so thankful for it!
I had a small non-science-related win
Cosmo has released a Phase III trial result they claim will cure male pattern baldness. Meanwhile women are coping with debilitating endometriosis and adenomyosis, PCOS, perimenopause that get virtually no funding because they primarily impact women. But sure, let’s cure baldness.
Having menstrual pain is not normal and can indicate endometriosis. This disease depends on female hormones and causes inflammation, pain during sex, defecation, and urination. Diet plays a vital role in symptom…
Endometriosis is a condition where uterine lining tissue grows outside the uterus, leading to chronic pelvic pain and systemic symptoms. It affects up to 70% of women with chronic pelvic pain, especially those aged 25…
RT @norahscorner: "I wish i had a chronic inflammatory pelvic disease that gives me debilitating pain and worsens my quality of life and ha…
RT @EndometriosisSA: [WATCH] Endometriosis is EXPENSIVE. This is just a rough cost breakdown + estimate for how much you could end up spe…
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
Be part of the Endometriosis Voices Conversation that can strengthen health systems response to Endometriosis and improve women's lives diagnosed with Endometriosis. Connect with us. **Details mentioned below. #Endometriosis #Delhi #Bangalore https://t.co/cQpPHtEdwx
RT @norahscorner: "I wish i had a chronic inflammatory pelvic disease that gives me debilitating pain and worsens my quality of life and ha…
@iosonoaida اندومتریوز (Endometriosis)
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
RT @legaltweetz: February 2012. My lesbian life was so different than it is today. I was a confident & masculine woman until endometriosis…
Have you considered that maybe she was taking birth control for something other than contraception, e.g, acne, heavy/painful/irregular periods, endometriosis, etc? Also, has she been checked? Has her husband been checked? Or we have a hammer, so every problem must be a nail?
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
After dealing with endometriosis since she was a teenager, Claudia Zimmerman had a hysterectomy at age 29. This was the start of a 17-year struggle.
Shock stat. The waiting time for an #endometriosis diagnosis has increased by nearly two years since 2023. It is simply unacceptable to leave women like Courtney here in such pain and mental torture for so long https://t.co/B4cbdhBy0N
Develop essential ultrasound skills to support accurate endometriosis diagnosis. This course provides crucial insights that can transform patient care. Register now: https://t.co/FqqshsRyWn https://t.co/o4FCLxkqMw
VERFEHLTE BILDGEBUNG BEI DIR ENDOMETRIOSE?! WENN JA: BITTE SCHREIB MIR EINEN COMMENT
@pixelesbians @KLobstar Yeah a GI tried say to weight loss & lack of appetite (no nausea) was this. It was endometriosis, big ovarian cysts, a massive hidden bacterial infection, and polyps. Stupid and nasty.
@philosophysux me except i was horribly depressed, sick with endometriosis, had memory loss. in another life i'm probably getting married to them, i wouldn't be a burden to them and i'd be a good partner. i had to say no because i wasn't sure if i was going to live. in another life.
Endometriosis: así es la enfermedad que afecta a millones de mujeres y tarda años en ser diagnosticada https://t.co/Bym6pnmHxl
RT @norahscorner: "I wish i had a chronic inflammatory pelvic disease that gives me debilitating pain and worsens my quality of life and ha…
RT @GraceGym_: Women's Health Awareness: Endometriosis
RT @GraceGym_: Women's Health Awareness: Endometriosis
RT @mwende_kyalo_: This!! Also, in that field of study, was that the most pressing thing to be researched? For example, they funded en…
RT @mwende_kyalo_: This!! Also, in that field of study, was that the most pressing thing to be researched? For example, they funded en…
@NEJMEvidence The exploration of non-invasive diagnostic methods like saliva micro-RNA signatures for conditions such as endometriosis represents a fascinating development in #Medicine. It’s exciting to consider how this could simplify the diagnostic process and potentially improve patient
RT @norahscorner: "I wish i had a chronic inflammatory pelvic disease that gives me debilitating pain and worsens my quality of life and ha…
RT @FibroidNetwork: How many more Hysteroscopy procedure scandals but NEVER Any National Safety Review/Audits?: #Mesh implanting/removals E…
Hysteroscopy for migrated/displaced IUDs has limited use if the IUD has perforated the womb & is found outside the womb in the abdomen. This can cause pain & bleeding & is often misdiagnosed for #Endometriosis Ultrasound No
RT @norahscorner: "I wish i had a chronic inflammatory pelvic disease that gives me debilitating pain and worsens my quality of life and ha…
RT @mwende_kyalo_: This!! Also, in that field of study, was that the most pressing thing to be researched? For example, they funded en…
Ultrasound is a technique used to diagnosis: Conditions related to Period issues -Fibroids, Size,No,Locations in & outside womb -endometriosis, Stages -appendicitis -standard & ectopic pregnancy -assess efficacy of prior Ops &/or Drugs -Mesh Hysteroscopy shows less & Costs more https://t.co/lhRr7biunl
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
I'm one of the 120,000 and probably so are a lot of your friends. Very good to see a new study out on the 'burden' of #endometriosis, as one more data point to help drive better healthcare policy. www.scoop.co.nz/stories/GE25...
RT @FibroidNetwork: Nobody seems to care in Govt , that there's never been a National HQIP Audit of Hysteroscopy procedures, Mesh, Endometr…
Echoes of Hope is a project that uses art - photography, film & dance to raise awareness on endometriosis. We have a webinar with a panel full of endo warriors & Dr. Muteshi. We hope to help endo patients but its open to everyone to learn. Register here: https://t.co/C8lJzVh55p https://t.co/cCpb1DfixU
Endometriosis: así es la enfermedad que afecta a millones de mujeres y tarda años en ser diagnosticada https://t.co/CP8VWkh7pq
@Warachitos @FitSurgeon Causando probables sangrados en órganos o internos. Es muy raro la condición que describes porque no le afecta a menos del 1% de personas sin útero, y no causaría sangrado. Creo que puedo hablar de ello teniendo endometriosis.
@Warachitos @FitSurgeon Los cólicos dan en muchos órganos huecos por compresión de los músculos, ahora, la endometriosis da a las mujeres, es un transformo que se comporta como un Cáncer por el simple hecho de que las células endometriales dentro del útero se desplazan por fuera y hacia otros órganos+
@sxngmingx @Misantropa___ Depende de la condición, yo tengo endometriosis y los cólicos me doblan del dolor y me incapacitan, me provocan cólicos intestinales, a veces fiebre.
We are excited to announce that ENDOWORLD 2025 is happening from 12th–14th December! A premier global gathering of experts in Endometriosis, Gynaecological Endoscopy & Fertility, bringing cutting-edge knowledge, live workshops, and scientific excellence under one roof.
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
RT @elizaego: Also, birth control isn’t only for sex. It helps regulate periods, reduce cramps, manage bleeding and support people with con…
RT @EndometriosisSA: [WATCH] Endometriosis is EXPENSIVE. This is just a rough cost breakdown + estimate for how much you could end up spe…
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
@Doom_destructor @FitSurgeon Si, así como los cólicos intestinales. Son dolores intensos, pero cada uno es diferente. No es lo mismo un cólico intestinal que un cólico menstrual, e incluso los cólicos menstruales varían si tienes alguna condición, como quistes o endometriosis.
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
RT @GraceGym_: Women's Health Awareness: Endometriosis
Leaflets and posters will be available to secondary schools covering menstrual health, endometriosis, pelvic health and menopause https://t.co/qpWjMDsY68
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
RT @elizaego: Also, birth control isn’t only for sex. It helps regulate periods, reduce cramps, manage bleeding and support people with con…
RT @mwende_kyalo_: This!! Also, in that field of study, was that the most pressing thing to be researched? For example, they funded en…
RT @GraceGym_: Women's Health Awareness: Endometriosis
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
RT @Timmysofine: Using birth control as a single woman is “madness”? Some women are literally prescribed birth control to: • regulate pain…
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
@PauliWalnuts3 @viperdemie I would of said something similar if it was for a standard like BBL or breast implants or something stupid. Endometriosis is no joke in women's health needs to be studied heavily and it has been recently thank goodness because there's more needed for health in general.
@viperdemie @viperdemie hey best of luck endometriosis is no joke if you ever get a chance take a look at the documentary called "below the belt". Wish you nothing but the best.
RT @elizaego: Also, birth control isn’t only for sex. It helps regulate periods, reduce cramps, manage bleeding and support people with con…
RT @GraceGym_: Women's Health Awareness: Endometriosis
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
RT @GraceGym_: Women's Health Awareness: Endometriosis
@margaret_ez @Doom_destructor @paupatro1 @FitSurgeon q los cólicos menstruales duelen mucho, sí, y más con endometriosis pero no se puede comparar a un cólico nefrítico
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
RT @norahscorner: "I wish i had a chronic inflammatory pelvic disease that gives me debilitating pain and worsens my quality of life and ha…
RT @mwende_kyalo_: This!! Also, in that field of study, was that the most pressing thing to be researched? For example, they funded en…
RT @SmrutisikhaR: @nishant94349752 Period cramps, PCOS, PCOD, endometriosis what do you wanna more want to talk about? And they call male b…
RT @GraceGym_: Women's Health Awareness: Endometriosis
RT @Timmysofine: Using birth control as a single woman is “madness”? Some women are literally prescribed birth control to: • regulate pain…
RT @mwende_kyalo_: This!! Also, in that field of study, was that the most pressing thing to be researched? For example, they funded en…
RT @froglet80: random woman on twitter: (journals their endometriosis battle leading to hysterectomy) random terf on twitter: accuses them…
RT @conflict_chick: Day 41 of 100 — Facts on Endometriosis: Not Always Visible on Scans A pelvic scan may appear normal. Endometriosis can…
RT @GraceGym_: Women's Health Awareness: Endometriosis
RT @mwende_kyalo_: This!! Also, in that field of study, was that the most pressing thing to be researched? For example, they funded en…
RT @SameerYogi14: @IhabFathiSulima Catamenial pneumothorax. On the 2nd–3rd day of menstruation, spontaneous recurrent pneumothorax can occu…
Pre operation talk w/ the hospital today!! #endometriosis
Pre operation talk w/ the hospital today!! #endometriosis
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
All these things are superstitious beliefs. Birth control has very little damage compared to other health issues with women such as ovarian cysts, fibroid, endometriosis. This is why women should always see a gynecologist. https://t.co/spI9d7QS85
RT @GraceGym_: Women's Health Awareness: Endometriosis
It's just a *little* irksome how you cannot talk about experiences like your own with endometriosis, which is a problem exclusive to women, without bringing up annoying men in dresses. You know exactly what you are doing. https://t.co/kvQIXAShxb
RT @elizaego: Also, birth control isn’t only for sex. It helps regulate periods, reduce cramps, manage bleeding and support people with con…
RT @legaltweetz: February 2012. My lesbian life was so different than it is today. I was a confident & masculine woman until endometriosis…
RT @conflict_chick: Day 41 of 100 — Facts on Endometriosis: Not Always Visible on Scans A pelvic scan may appear normal. Endometriosis can…
Nuevo #GrandesMinorías, Martina tiene #endometriosis: “Ahora ya no hablo desde un lugar de dolor, rabia, malestar y uso diferente lenguaje, pero yo tenía mucha rabia contenida, estaba muy enfadada. Estaba sufriendo. Nadie te cree y te aguantas el #dolor y te lo tragas porque no
quieres verte débil. Me cuesta pedir ayuda, decir que me duele, no sé cómo comunicar el malestar. Con los años y la terapia todo ha ido mejorando” https://t.co/WEQBls0Vdh
RT @WomenNewsVzla: La endometriosis se asocia a otros síntomas, como dolor durante la menstruación y las relaciones sexuales, alteraciones…
Nuevo #GrandesMinorías, Martina tiene #endometriosis: “No llores, a las mujeres les duele. Ya está, cómo que no vas a ir al colegio. Te acostumbras. No sabía que no era normal” #dolor grandesminorias.20minutos.es/endometriosi...
@ColonelTamar @TonyLaneNV Yup. Rule #1 in the World of Mad Libs: When they pull out their victim card, you loudly show them a bigger one. “I just had surgery.” “I get motion sickness & need the window”. “I have Stage IV Endometriosis and need to lean like this on my right”, etc. Whatever it takes;
RT @DialogosCanal11:
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
struggling with pcos, ovarian cyst n endometriosis
@OkayBiology She is too old for those tiny skirts.. And I have the privilege of Endometriosis and Menopause. Funny how trans women don't want that.. nor mammograms..
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
RT @robpatt___: we have diseases like pcos, fibromyalgia, endometriosis which significantly reduces a woman’s quality of life w no treatmen…
RT @GraceGym_: Women's Health Awareness: Endometriosis
RT @JoyTaylorTalks: Honoring my amazing sisters across my country today
RT @legaltweetz: February 2012. My lesbian life was so different than it is today. I was a confident & masculine woman until endometriosis…
RT @isa_ipmp: On my way to hospital appointment 2 out of 3 this month. I truly, truly don’t wanna go to this one. SAVE ME. Endometriosis su…
RT @afrofeminas: Me diagnosticaron bipolaridad por llorar del dolor. Años después supe que era endometriosis. Esta es mi historia sobre dol…
RT @_celia_bedelia_: I’ve been extremely clear about this - you don’t get to weaponize my endometriosis and hysterectomy to be a transphobe…
RT @Sedolor: El Dr. Jesús de Santiago @ChusMoraga , Coordinador del Grupo de Trabajo de cannabinoides de la SED, recuerda los usos que tend…
i'm laughing my ass off bc babe i literally have a uterus that is a pain in the fucking ass and i may have pcos or endometriosis
RT @ultimahoracol_: #Noticias El caso de Melissa Gaona, una joven de 25 años que sufre dolor crónico por endometriosis, ha generado polémic…
Woke up with an endometriosis flareup again, I think my meds fully stopped working for me. Anyway, time for work! So happy to raise some shareholder value today!
RT @mwende_kyalo_: This!! Also, in that field of study, was that the most pressing thing to be researched? For example, they funded en…
Clwyd Alyn becomes Endometriosis Friendly Employer
We're going to need a lot better way of diagnosing endometriosis if we're going to start checking for it in people without pretty significant symptoms.
Just auto screen us for migraines, hEDS/hypermobility and the rest of the trifecta, and endometriosis if we have or have had a uterus.
A friend of mine died by suicide due to endometriosis pain, too. They found it in the autopsy. She was one of the best people I ever knew.
CW: #suicide . " #Endometriosis destroys lives. Ladies, if you can, please have the courage to tell the graphic version of your story. Tell it, write it, share it, photograph it, and post it. You don’t have to be afraid.": buff.ly/h7523sh via Endofound #advocate #ChronicPain #WomensHealth
I took it to stop periods for endometriosis!! Eventually had a hysterectomy but omg loved yeeting the period!!
And we even know WHY it works. Because endometriosis tissue expresses aromatase and becomes self-sustaining even if ovarian hormones are suppressed.
What I read in 2025 (13) Susie Ferguson's Bloody Minded: War, Womanhood, and Finding My Voice What's putting on a flak jacket as a war correspondent compared to the daily horror of endometriosis, lack of diagnosis, lack of care? Fierce and intelligent about the forms of PTSD that women live with
Delilah Belle Hamlin on Endometriosis Diagnosis, Surgery Emilia Clarke's Brain Aneurysm Emilia Clarke filmed battle scenes for Game of Thrones, but in 2019, she published an essay in The New Yorker titled "A Battle for My Life." Having a bad headache at the gym, "I reached the toilet, sank to my…
Lisa Rinna and Harry Hamlin’s daughter Delilah Belle Hamlin candidly reflected on her endometriosis journey and shared show she underwent surgery to reverse the diagnosis.
Is it weird to be relieved that my daughter has endometriosis? I mean, she went in for surgery to confirm it, and deep down I knew that was it, but there's always that chance that it's something else. I really feel shitty being relieved about it, because Endometriosis is no joke either.
They found endometriosis. >:D I'm not crazy OR a little bitch.
Centering on neuroimaging data. Two USC researchers have recently won a $3 million grant from the NIH to investigate pain pathways in the brain, aiming to better understand which patients respond to treatment for #endometriosis, who do not, and why. #ResearchSky #Neuroscience #MedEd
I CAST ENDOMETRIOSIS!
Postmenopausal #endometriosis and chronic pelvic pain What happens when symptoms persist after #menopause? Join EMAS live on Jan 14 at 16:00 CET with Tamer Erel, Ludwig Kiesel, and Elena Armeni. Captions in 30+ languages.
Absolutely asinine comments. Are they saying my two surrogate born nieces (whom my SIL could not carry herself because she had such bad endometriosis from a very young age and had to have a hysterectomy after harvesting her eggs) should starve to death? F*cking idiots
Did you know? Hormonal contraceptives can sometimes hide the symptoms of endometriosis and PCOS, making diagnosis harder and delaying care. New research highlights why awareness and informed decision-making are essential. Learn more: bit.ly/4iSjgwF
Dysgu am broblemau merched Ysgolion ledled Cymru am gael adnoddau i ddysgu am y mislif, endometriosis, iechyd y pelfis a’r menopôs #CylchgrawnGolwg ✍️ Barry Thomas
patchcord.bandcamp.com/track/endome... New track unlocked: Endometriosis
Since it takes, on average, 10 years to diagnose endometriosis and requires a laproscopy, this is a major advancement.
Rompiendo el tabú: la infertilidad también afecta a mujeres jóvenes. Endometriosis, diagnósticos tardíos (8-12 años) y comentarios como "relájate" invisibilizan un problema de salud real. Es hora de hablar, visibilizar y priorizar la salud femenina.
I CAST ENDOMETRIOSIS!
Our members call for one-stop-clinics to treat #endometriosis. Far from being costly, these would reduce the vast spend on A&E and GP visits endometriosisawarenessnorth.com
So the jury is out on if GLP1s affect adenomyosis or endometriosis symptoms. Dr Google says it should as GLP1s have been shown to reduce signs of inflammation. However, a deep dive into various subreddits devoted to these things says that the results are mixed.
Yeah, my endometriosis laughs at vitD and sunlight.
Canberra doctor ordered to stop botox injections for endometriosis pain: https://www.abc.net.au/news/2025-12-09/act-doctor-ordered-to-stop-botox-injections-for-endometriosis/106119880
Patients have described the procedure as "life changing" but pelvic botox injections are no longer available publicly in the ACT, with Canberra Health Services ceasing the procedure "as a precaution due to unknown risks". #endometriosis #health
And based on prior experience with my endometriosis, there's a chance this is entirely behind my long covid symptoms, and I had been saying something went wrong with my hormones for years and regular doctors told me I couldn't know what I was talking about.
I still want someone to do a case study on me because I started T and my body started converting it all to E even on extremely low doses, which sleuthing has led me to believe is because of my endometriosis which seems to have been reactivated by covid,
Cancer, diabetes (types 1 & 2), Hashimoto’s thyroiditis, endometriosis, celiac disease, rheumatoid arthritis, osteoarthritis, gout, macular degeneration, retinal detachment, asthma, psoriasis, hypertension, congestive heart failure…
Currently going through my semi monthly debate of whether I have endometriosis (I vote yes but am very afraid of getting surgery and being wrong). Meanwhile I look 6+ months pregnant due to unexplained bloating.
and god cast them both out and then invented endometriosis because he was an asshole
Warren A, Andreou D, Warren D, Wieland J, Mantzouratou A. Endometriosis - on the intersection of modern environmental pollutants and ancient genetic regulatory variants. Eur J Hum Genet. 2025. doi: 10.1038/s41431-025-01977-9 www.nature.com/articles/s41...
#Endometriosis Risk May Be Shaped by Neanderthal Genes and Modern Pollutants Ancient DNA and epigenetic variants may interact with modern chemicals to raise endometriosis risk. #Epigenetics #Denisovan #Neanderthal www.technologynetworks.com/applied-scie...
I had a small non-science-related win
ir al baño en cero coma cuando menos te lo esperas. Crohn, colon irritable, intolerancias alimentarias, SIBO, o incluso endometriosis son algunas enfermedades o trastornos que te exigen ir al baño de un momento a otro cuando menos lo esperas.
Maybe endometriosis too, huh. Dammit.
I CAST ENDOMETRIOSIS!
JMIR Res Protocols: Online Cognitive-Behavioral Programs for Women Living With Endometriosis: #Protocol for a Scoping Review
lmaoooo love to learn, after having my hysterectomy, that i have in fact had endometriosis this whole fucking time and was handwaved by doctors/obgyns about it for yeaaaaars i know this is a common experience but JESUS CHRIST
Endometriosis age 22, Perimenopause by age 28, 9 months after delivering last child, and a hysterectomy by age 40 with premalignant ovarian cancer cells both ovaries. I was having to read books that were over a decade old by early 2000s.
I hate having endometriosis so much i want to d word
¿QUÉ ES LA ENDOMETRIOSIS? #ELPUENTE [Infobae] Read more
- I had to have my tubes removed, along with the severe scarring in my uterus that caused the endometriosis, via laparoscopy. - I later had a laparoscopic hysterectomy. - in 2023, I developed a severe infection in my laparoscopy scar. There was no perceived reason why.
If you don’t know the whole story, let me give you a basic rundown: - 2018, a gynecologist diagnosed me with fibroid tumors and scheduled me for a hysteroscopic myomectomy. - this doctor fudged the process so badly that I ended up devolving endometriosis of the Fallopian tubes.
Like how long am I supposed to wait for my literal endometriosis Dr to believe im sick again
Endometriosis Risk May Be Shaped by Neanderthal Genes and Modern Pollutants ->Technology Networks | More from Lil Dr Glen EcoChat at BigEarthData.ai
In this week’s newsletter -Canna for endometriosis + your sinuses -Bongs may not be filtering out anything -In bipolar people, canna use improved decision-making -Canna laws = less opioid OD deaths -Mindfulness helps inflammation via the ECS? -So much on the horrors of Prohibition bit.ly/48q8jif
Among the subjects are Adrian Hill, director of the Jenner Institute, who worked on the Oxford Covid-19 vaccine; Rachel Upthegrove, whose work in psychosis research has informed early intervention services for child mental health; and endometriosis researcher Krina Zondervan.
I CAST ENDOMETRIOSIS!
C&P#167: endometriosis, sinuses, opioid overdoses, mindfulness & the placebo of bong water • CHS added as WHO diagnostic code + Trump’s ‘double tap’ boat strike
So important! I especially liked how endometriosis was embedded within the overarching topic of studying women's health.
Tengo unas nauseas que parece que voy borracha por la calle pero la mierda de perro la he esquivando como campeona de slalom #endometriosis
I’m having a severe endometriosis flare up and I can’t make it into work. I’ve been in pain since Saturday. I feel like such a let down though. I hate this
signs point to this being a fun new endometriosis location. which sucks but better than yet another condition, so sure I'll take it
Some 896 women are on waiting lists for endometriosis treatment in the Rotunda, Tallaght University Hospital, Cork University Maternity Hospital and the Coombe Hospital
Endometriosis: claves para la detección y el abordaje con un equipo multidisciplinario de expertos
Government blasted for not taking women's health seriously as endometriosis care figures released Some 896 women are on waiting lists for endometriosis treatment in the Rotunda, Tallaght University Hospital, Cork University Maternity Hospital and the Coombe Hospital
Oh, and anemia. But I had that before due to endometriosis. So that's not new.
Because that’s such a horrible “affliction!” Our daughter has PCOS, another friend suffered greatly from endometriosis…but hey, helping bald guys is much more important!
Cosmo has released a Phase III trial result they claim will cure male pattern baldness. Meanwhile women are coping with debilitating endometriosis and adenomyosis, PCOS, perimenopause that get virtually no funding because they primarily impact women. But sure, let’s cure baldness.
related: many chronic illnesses including endometriosis can affect the results of blood tests, masking iron deficiency www.theguardian.com/australia-ne...
Fellow endometriosis warrior?
That sounds like endometriosis or at least pelvic adhesive disease. But I am not a doctor.
My mom became perimenopausal when she was 32. To treat my endometriosis, I was placed into medical menopause with tamoxifen and nafarelin while I was in my mid-20s. I have a clear memory of hot flashes. … I just had my first one last night.
None of these things I received through prescription, that’s been physical and pelvic floor therapies and an endometriosis specialist at a Women’s Health clinic.
As a human w/ #endometriosis heating pads/packs, massage gun, and the soft ice packs that clip around undies like reusable packs 10/10 continued helpful items High pain days: mobility supports, cane to upright scooter - the latter helped me get thru to surgery.
It also reflects findings from Victoria’s recent Inquiry into Women’s Pain, which showed most women live with conditions like period pain, endometriosis, or arthritis – often with daily or constant pain.
two things I am deeply passionate about: endometriosis care and excision surgery #endometriosis #endometriosisawareness #adenomyosis #pelvicpain #mallorystuparichmd
first thing i’ll do when i have health coverage here is get a doctor to take seriously that i have every single symptom of endometriosis despite inconclusive ultrasounds
The biggest lesson I learned is to go straight to a pelvic surgeon experienced in treating Endometriosis and PCOS who practices excision surgery. You need someone actively studying the best treatments. Research is limited & recent, so you need someone actively involved in this field of medicine
Yup! I'm happy to answer any questions you may have about my experience. I've had two surgeries to treat my Endometriosis: the 2nd was an amazing & life changing surgery, the 1st was kinda useless & felt like a waste of time and money. I've learned a lot from my journey and I am happy to share!
I recommend keeping a journal to track your symptoms. It is very helpful to the doc if you can identify what times of your cycle are the most painful. Go straight to an expert. Don't bother with a general obgyn - they're typically not trained in the latest treatments of endometriosis or PCOS.
Hello! I had excision surgery to treat endometriosis over a year ago and I feel much better now. Look for a surgeon that practices excision, because that is really the only way to treat the disease and prevent progression. Use this resource for finding a doctor: www.reddit.com/r/Endo/comme...
If it were up to you joanne, women up and down the country would be in absolute agony or dead from being ignored or refused abortions, treatment for crippling endometriosis or ovarian cancers, that could easily be prevented!!
Cambridge Endometrial Network - launching on 15 December! Spread the word amongst researchers across disciplines with interest in the endometrium, an organ central to reproductive success and to conditions such as endometriosis and endometrial cancer. www.repro.cam.ac.uk/cambridge-en...
I have taken off work occasionally for what I call a "bad endometriosis day", and they would just act...annoyed? Like calling out for a tension headache. NO. IT IS NOT LIKE A HEADACHE.
24 Days of Xmas 2025: Katy And The Wild Ones - "Christmas Time Is Finally Here" in aid of Endometriosis UK Added to our playlist, and for a very worthy cause! www.moshville.co.uk/feature/24-s... #rock #pop #music #xmas #24SongsOfXmas #MoshvilleTimes
Endometriosis: la relación entre lo que comemos y los síntomas del dolor invisible que afecta al 13% de mujeres elcomercio.pe/somos/e…
Almost 900 women on waiting lists for endometriosis care across four hospitals https://www.newsbeep.com/ie/179094/ Figures from the HSE reveal that 896 women are on waiting lists for treatment for endometriosis across four…
Almost 900 women on waiting lists for endometriosis care across four hospitals https://www.europesays.com/ie/219927/ Figures from the HSE reveal that 896 women are on waiting lists for treatment for endometriosis across four…
Almost 900 women on waiting lists for endometriosis care across four hospitals Endometriosis causes cells, similar to those in the lining of the womb, to grow outside the uterus and can cause a range of symptoms, with some people experiencing chronic, debilitating pain
What I can wear varies wildly from day to day, depending on if I am having an endometriosis flare or not, and how the fabric feels on me, among other factors.
Uff, te entiendo perfectamente. En los tratamientos de las FIVs, los pinchazos eran 2 diarios y llegó el momento en que se convirtió un suplicio y le pedía a Mr. Osako que me pinchará (y sólo me sirvieron para aumentar la endometriosis, no para tener hijos)
They're not removing anything, technically, just seeing if I have endometriosis... but knowing how they'll have to perform this procedure on me scares me shitless. Especially since I won't be able to breathe on my own..
hi pals, i am looking to see a doctor re: potential endometriosis or pcos diagnosis, any tips on the doctor picking process or being taken seriously would be greatly appreciated!
Lulz, no doubt But THEN the doctors. I have some things to say about what passing a kidney stone is like for someone with endometriosis and fibromyalgia, so chronic pain (hint: they don’t even notice) But today’s not the day to try saying it
I am here to tell women you can have it all* *endometriosis and adenomyosis
Katy And The Wild Ones Christmas Charity song in aid of Endometriosis uk youtu.be/MmDjI9NEF6I?si… #endometrosis #christmas #ChristmasSongs
They should invent an endometriosis that doesn't exist
I CAST ENDOMETRIOSIS!
medical gaslighting causes real harm #endometriosis #medicaltrauma #adenomyosis #medicalgaslighting #mallorystuparichmd
Uf, lo siento muchísimo. Qué rabia me da esto de que nos tomen por el pito del sereno y ninguneen siempre nuestros síntomas. Yo lo viví también durante años con la endometriosis. Mucho ánimo.
The proportion of women presenting to Australian general practice with endometriosis almost doubled between 2011-2021, according to a new study. womensagenda.com.au/life/womens-...
I've been reading a lot about new treatments, testing, amd research in ME, fibromyalgia, hEDS, and endometriosis lately. And lots about interactions between the different conditions I have. Apparently coeliac is common in people with endometriosis for example. Having a tough flare up of endo atm
The proportion of women presenting to Australian general practice with endometriosis almost doubled between 2011-2021, according to a new study. womensagenda.com.au/life/womens-...
The only good side effect to endometriosis
Considering anarchy today but endo said “not today, queen.” The feminine rage is real. #EndoAwareness #FeminineRage #ChronicPainChronicles #SoftAnarchy #endometriosis #bluesky #australianbluesky
Had some R&R due to endometriosis flare up, will hopefully continue with creative schedule soon ⚡️ Keep track via the link in my bio
CANSAGE’s Endometriosis Care Education Program (funded by Health Canada) is conducting a Primary Care Needs Assessment survey for family physicians, residents, PAs & NPs. Survey: www.surveymonkey.com/r/F2DG72T @cmadocs.bsky.social @cfpc-cmfc.bsky.social @jossreimer.bsky.social
Cis woman. Congrats on the pregnancy risk and/or endometriosis!
Leslie Mehta knows firsthand how personal and complex reproductive health decisions can be. From IVF to endometriosis to a hysterectomy, her story is proof that these choices belong to patients, not politicians.
Pro-endometriosis macrophage release of IL-33 is key for endometriosis pain and lesion formation https://www.biorxiv.org/content/10.1101/2025.10.20.683510v1
Pro-endometriosis macrophage release of IL-33 is key for endometriosis pain and lesion formation https://www.biorxiv.org/content/10.1101/2025.10.20.683510v1
Endometriosis, un periplo desgastante, dolor y rabia @elsaltodiario.com www.elsaltodiario.com/salud/endome...
Endometriosis Rabbit
One of the surgeons who diagnosed my endometriosis @alt-nihscience4all.altgov.info she had no @cornelluniversity.bsky.social affiliation @aclu.org once again, schimenti wants other people's credit. There was another surgeon, awesome, I forgot her name. @fda.gov @usdagov.bsky.social
Science: oh, right, women. Women with cramps, migraines, endometriosis: why tf you take so long? Mice: Mean
i have endometriosis so i will be topping from now on for medical reasons. thank you very much /half joking
Endometriosis is a silent mdfk. You don't need to bleed a lot or have a painful periods. Get checked if you can
My mom called to tell me that Endometriosis runs so hard in our family that 5 of the family members on her side had to get hysterectomies in their 30s so. I need to update my medical history XD I doubt I have it because my periods aren't painful, just miserable in every other way but its good to
dude i have endometriosis and a cyst potentially on my ovary 2025 sucks fat cocks
New noninvasive endometriosis tests are on the rise Endometriosis biomarker tests rely on a range of technologies, including single-cell RNA sequencing and mass spectrometry that can identify thousands of proteins simultaneously. “These instruments are very good at precisely identifying a…
New video!
All of it? Do you have endometriosis? D:
I recently held a roundtable on the important issue of endometriosis and the significant impact it has on women. I am grateful to all the attendees who joined this discussion. Read more about this in the article below
Opponents talk about the pill like it's a soulless medication stripping us of joy. Birth control let me plan my beautiful family, allowing us to be financially stable & emotionally ready to become parents. It also helps some of my friends manage their endometriosis so they can live their lives.
I have my 2 week post op with my surgeon on Halloween. Tests will be back by then and we will see if it was endometriosis causing my intestines to fuse to my pelvic wall or if it was an injury from my hysterectomy. I’m sure it was endometriosis since we already know I have it. Bitch ass disease.
El nuevo estudio indagó como afecta la acumulación de lípidos en el riesgo de desarrollar #endometriosis, hallando un incremento de este sobre todo en mujeres adultas
We’re supporting EDAP TMS, an innovator in robotic and energy-based therapies, with a €36 million loan. Backed by #InvestEU, the project will scale up non-invasive ultrasound technology to treat prostate cancer and endometriosis. ➡️ go.eib.org/EDAP_EIB
Good morning! Today’s Endometriosis Pain is an 8/10. For comparison? At rest, there’s a constant burning sensation in my legs. When I walk, there are shooting pains in my legs to add to the burning sensation. A 9 is if I can’t walk. A 10 sends me to the hospital. Lord Jesus be a speedy clock.
New endometriosis tests could help patients get an accurate diagnosis quickly and noninvasively, speeding access to treatments and management strategies, including surgery, hormonal medications, and pelvic floor physical therapy.
New noninvasive endometriosis tests are on the rise #Science #HealthandMedicine #InfectiousDiseases #Endometriosis #NoninvasiveTests #HealthInnovation
#genderstudies #bioengineering "Lab mice can now have periods like humans Studies of rodents with a menstrual on/off switch could help people with endometriosis and other disorders"
Breakthrough Alert: Noninvasive tests for endometriosis are emerging, promising easier diagnoses and better privacy for patients' health data. Stay informed on how this innovation impacts data security in healthcare!
Cyclana Bio raises £5M to advance drug discovery for endometriosis https://www.newsbeep.com/ie/94554/ Cyclana Bio, a biotechnology company pioneering tissue-level approaches to women’s health, today announced the close of a £5M…
Fuck everybody monetizing endometriosis when they don't give a shit about actual ppl with it.
Esto no es nuevo; parte de mi historia clinica en el SAS respecto a mi seguimiento en el servicio de ginecología por mi endometriosis también ha desaparecido "misteriosamente"
" #Excision by some1 who knows what they’re doing is like digging out that #endometriosis by the roots..the better the #surgeon the better he’ll be at..knowing how to get all of those roots out & finding the other weeds growing in your garden": buff.ly/AzYKBIs by laurachamberlain #WomensHealth
Endometriosis really sucks
TMI warning. #endometriosis #adenomyosis #hysterectomy
Hii! I would love to be moots! I also saw you have endometriosis! Me too!
Comparison of sociodemographic factors, lifestyle, and gastrointestinal symptoms between patients with endometriosis and IBS | BMC Gastroenterology https://www.europesays.com/ie/135534/ Recruitment of endometriosis patients took place during March 2013–March 2017, and February 2022–March 2023 …
Comparison of sociodemographic factors, lifestyle, and gastrointestinal symptoms between patients with endometriosis and IBS | BMC Gastroenterology https://www.newsbeep.com/ie/94203/ Recruitment of endometriosis patients took place during March 2013–March 2017, and February 2022–March 2023 at …
La dilación en diagnósticos sanitarios afecta a más enfermedades. En Andalucía se calcula que alrededor de 400.000 mujeres padecen endometriosis, sin embargo, no se puede confirmar debido a la tardanza de las diagnosis. @elsaltodiario.com ✍️ Irene Mira Gutiérrez www.elsaltodiario.com/sevilla/endo...
I CAST ENDOMETRIOSIS!
Regain Comfort with Endometriosis Excision Surgery in Dubai t.ly/Uqei9 #endometriosisexcisionsurgeryinDubai #endometriosisexcisionsurgeryDubai #endometriosisexcisionsurgery #endometriosisexcisioninDubai #endometriosisexcision #GynaecologistsDubai #DrUshaKiranTalakere #Womanaari #Dubai #uae
do NOT. give femshiki endometriosis
I can't do large amounts of soy, sadly. Estrogen makes endometriosis run amuck & I can't risk any potentially missed tissue post-hysterectomy deciding to COME ALIVE.
A woman with no health insurance and endometriosis.
Like many things that affect mainly women that aren’t studied. See for example: Endometriosis.
No Talmon, it’s not weird, what is weird is that I am a 55 yr old menopausal woman who’s suffered from so many disorders/diseases, vitiligo, melanoma, endometriosis, cysts & a plethora of other illnesses & will not be able to get or afford insurance at all, any longer. That makes me mad!
This was my life 1992-2002. They ran every damn GI test and imaging multiple times. It was endometriosis. Only diagnosed because of infertility and an exploratory laparoscopy. I hope you get answers.
Endometriosis affects millions of women, and celebrities are finally talking about it.
I CAST ENDOMETRIOSIS!
I want to get up and draw or paint something but I feel like if I sit up, I’m going to start getting those horrible jolts up my spine In case you didn’t know, endometriosis is horrible
To get your endometriosis treated you have to go through the seven medical tests of Hercules
Day 21 of spooky charity!! We’re yapping while we fish and then figuring out what to do later Twitch.tv/bluesguu Charity: Endometriosis Foundation of America #twitch #charity #endometriosis #chronicdisease #streamer #videogames #pngtuber
Minister for Health launches Ireland’s First National Endometriosis Framework rcnireland.blogspot.com/2025/10/mini...
I definitely fall into the category of "Not pitiful enough so you're mooching off the gov't." Even though I have endometriosis in my navel, and likely on my liver. To say nothing of my AuDHD and Depression. When you say stuff like this, you're telling folks like me that we deserve to suffer.
Pre-ACA, my doctors refused to diagnose my endometriosis because it would have made me uninsurable. By the time the ACA passed, my fertility was toast. My son has Medicaid thru an adoption subsidy, but TX refuses to expand so there are limited providers who take it. We NEED healthcare access.
I had 2 c-sections. I couldn't get insured for any sort of gynecological care until the ACA. Good thing that I didn't have cancer, endometriosis, or any of the myriad things that can happen with lady parts.
These people should talk to the 10% of women who have endometriosis where the gold standard of treatment is major abdominal surgery. It ain’t cheap!
My greatest fear is thinking I’m having a normal painful #endometriosis flare up; me taking meds and powering though - only for it to be in reality an ovarian cyst and I pass out while driving
What a great article! And so true. Mine wasn't fab either, IVF, no idea if it would mean the end of endometriosis, very early, etc. But yes, huge benefits after, no monthly pain/vomiting/fainting. No HRT for me, wasn't able to. Just headed for next chapter. And yes the stigma needs to end!
This week is Invisible Disabilities Week, so I thought I’d get a bit vulnerable. I am chronically ill in so many different ways, and not a single one of them is visible. I have POTS and fibromyalgia, endometriosis and Celiac disease and so many other things doctors are struggling to figure out. 1/
I love how much of a joke endometriosis is to everyone else but it's ruined my life for the last 12yrs. They'll give you everything but pain meds
My immediate thought, too. Bodies that can make babies are complicated. Monthly pill prescription or IUDs. Annual Pap smears. Endometriosis. Fibroids. Even without pregnancies to pay for, lucky me got to have surgery to remove what looked like a tumor and turned out to be an ovarian cyst.
That's how trans women can get endometriosis, it's from having a bit more of the prostatic utricle than normal, and having chronic high estrogen levels without progesterone.
I CAST ENDOMETRIOSIS!
I'm casually watching some YouTube shorts from medical professionals and I get pole-axed. What do you MEAN Endometriosis is associated with gall-bladder problems? My GYN knew I'd had my gall bladder out, and didn't bother to mention this? The simultaneous hungry/bloated/nauseous thing is endo too?
With plastics breaking down into microscopic particles that enter the food chain, researchers are investigating how they may affect reproductive health. Full story at www.nchealthnews.org #plastics #microplastics #endometriosis #reproductivehealth #womenshealth.
www.theguardian.com/society/2025... “The health effects of BPA are extensive: breast cancer, prostate cancer, endometriosis, heart disease, obesity, diabetes, altered immune system, effects on reproduction, brain development and behaviour, including behaviour in children.”
Sorry to hear it it. I wonder if its endometriosis or fibromyalgia. Those always seem to be mysterious sources of chronic pain. Hope not though.
Cyclana Bio raises £5m for endometriosis drug discovery www.uktech.news/medtech/cycl... #UKtech
With plastics breaking down into microscopic particles that enter the food chain, researchers are investigating how they may affect reproductive health. #plastics #microplastics #endometriosis #reproductivehealth #womenshealth buff.ly/6VSPGAN
EMAS Issues New Clinical Guide on Endometriosis and Menopausal Health. A clinical guide providing evidence-based recommendations for management of endometriosis in women during and after the menopausal transition. spkl.io/63325An26h
That sounds so horrible. Its devastating that endometriosis is still not taken seriously. My mother ended up in hospital this september because of sepsis (CPR250) and it was just in time to save her life, i cannot imagine how scary it must have been for you. I send my support.
As the husband of a person suffering with late stage endometriosis... Wishing you so much love, care and a speedy recovery.
Has Jennifer Carroll MacNeill responded to anyone of the queries regarding the (terrible)National Framework for treatment of endometriosis she released over the weekend or is she just interfering in something she shouldn't be rather than doing her job?
Cyclana Bio today announced the close of a £5M pre-seed funding round that will enable the Company to develop functional disease models and its platform, for the identification of druggable targets in endometriosis. More here: www.cyclanabio.com/general-8
Cyclana Bio Raises £5M to Reverse Endometriosis Through Extracellular Matrix Targeting femtechinsider.com/cyclana-bio-...
Waterways to wombs: threats of plastic pollution https://www.byteseu.com/1467503/ by Will Atwater, North Carolina Health News October 20, 2025 By Will Atwater Endometriosis affects one in 10 girls/teens and women of childbearing age, according to the World Health Organization. Endometriosis is …
Es que no le deseo endometriosis ni a mi peor enemiga
#PubSaludMurcia Systemic Immune and Tumor Marker Profiles in Ovarian and Deep Infiltrating Endometriosis: Associations with Disease Severity and Symptom Burden @AreaUnoArrixaca @Area2Cartagena @Area7ReinaSofia
he leído en un artículo que se ha encontrado una forma no invasiva de confirmar endometriosis. ojalá sea cierto, ojalá se extienda y se respete a las pacientes sin hacerlas pasar por procesos humillantes en los que no son respetadas. ojalá, además, que se extienda a los ovarios poliquísticos.
Getting hit by a truck and thrown 20 feet sideways-and the 3 knee surgeries (so far; I will need at least one more) hurt far less than any period I ever had. Thanks, endometriosis and adenomyosis!
I have endometriosis. I graduated into the Great Recession. I couldn’t purchase an insurance plan. I didn’t qualify for the Texas High Risk Pool. The ACA has kept me insured since it was enacted. I am so thankful for it!
“Below the Belt” shines a light on endometriosis. Free screening + panel Q&A Thu, Oct 30 • 6–8 PM • SAC 20 (WSU Spokane) #EndometriosisAwareness #WSUSpokane #CougNurses #GoCougs
cw: period stuff having both pmdd and endometriosis sucks, because what do you MEAN im depressed and bleeding at the same time and cant ever predict when its going to happen
I came across a girl on tt raising awareness for endometriosis and was talking about everything she was planning but then in the comments was saying completely untrue things about endo that is actually incredibly damaging. Seemed so promising too :/
Actually not sick, it’s just the endometriosis flaring up
"Macrophages are recruited to the peritoneum & lesions of endometriosis. This process usually occurs in the sites of hypoxia & tissue stress...In murine, macrophages are required for lesion establishment & growth"
"Endometriosis-associated pain is related not only to the number and distribution of nerves but also to some neurotrophins, especially BDNF and NGF" NGF implicated in: Pain, inflammation Neurodegenerative disorders Cancer Nerve growth/survival/function
"Once C sensory nerve fibers transmitting the pain signal are activated, even if inflammation has been eliminated, continuous electrical activity & pain still exist" "local levels of estrogen are higher in menstrual blood & PF [peritoneal fluid] of patients with endometriosis"
Number of (activated) mast cells (MCs) are higher in endo especially in deep infiltrating endo (DIE) "studies have indicated a higher prevalence of allergic disease among endometriosis patients" "MCs can cause tissue damage with sustained activation, as in chronic inflammation"
Autonomic nervous system and inflammation interaction in endometriosis-associated pain jneuroinflammation.biomedcentral.com/articles/10.... Some highlights
Especialista en reproducción asistida. Ha resultado ser más eficiente con la Endometriosis que algunos ginecólogos.
After being forced to leave an event early yesterday, I'm considering giving Michelle endometriosis. Sharing the pain with one of my characters could be cathartic. Fortunately for her, it doesn't add anything to the narrative, so she's safe... for now.
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