Mentions
Extended reach
Total likes
Video views
AI synopsis
The collective discussions show a strong focus on treatment options, such as IVIG, and the importance of accurate diagnosis, highlighted by mentions of clinical features, research updates, and personal stories like Richard Sperry’s experience. The tone varies from informative to hopeful, reflecting significant interest and recognition of MMN’s clinical relevance, which contributes to moderately positive potential impact.
Most discussions acknowledge MMN as a real and significant neurological disorder, with some posts emphasizing its distinctness from other diseases like ALS.
Posts are highly engaged with the topic, highlighting new research, treatments, and personal stories, indicating strong interest.
Many posts include detailed information, personal anecdotes, treatment options, and references to clinical studies, showing deep engagement with the subject.
The discussions often mention the importance of awareness, diagnosis, and treatment advancements, suggesting moderate but meaningful impact on understanding and managing MMN.
GBS Variants -Acute motor axonal neuropathy -Acute motor sensory axonal neuropathy -Acute pure sensory neuropathy -Acute pandysautonomia -Pharyngeal cervical-brachial syndrome -Multifocal motor neuropathy -Fisher syndrome -Miller-Fisher syndrom -Bickerstaff brainstem encephalitis
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology
@LazyDoctor07 The diagnoses you should not miss are motor CIDP, multifocal motor neuropathy, and paraneoplastic neuropathy. I really like this review from prof @nervecentrals Old but gold https://t.co/BgA5etJMBW
P2. Population - Focuses on the class or type of neurons (or axons) involved (e.g., motor, sensory, autonomic). - Specific types help narrow the list of potential diagnoses. For example:
After Rameez Cassiem - a former break-dancer, graffiti artist, and radio presenter - survived a near-fatal car accident he fell into a month-long coma. As a result, he was later diagnosed with a rare nerve disease, Multifocal Motor Neuropathy (MMN). REMO – A True Story, directed https://t.co/x7LknsNMFj
Multifocal motor neuropathy is a treatable chronic immunemediated disorder that mimics other neuromuscular conditions. Early recognition and timely treatment are crucial for preserving motor function. Dr. Jennifer…
Multifocal motor neuropathy is a treatable motor neuropathy that can mimic other neuromuscular disorders. Early diagnosis and management are crucial to prevent long-term motor function loss.
What is Multifocal Motor Neuropathy (MMN)? https://t.co/a8019tafsa via @YouTube
"now here’s a fun thing: Donny has no public appearances on his schedule for today." It's the first of the month. Is trump again disappearing for a few days for medical treatment? I wonder if he has Multifocal Motor Neuropathy which requires monthly infusions. But there is no cognitive issue.
RT @neurogenicpoet: Multifocal Motor Neuropathy is rare. It presents like a mononeuropathy multiplex involving one nerve at a time It only…
Multifocal Motor Neuropathy Pipeline Insights 2025: Emerging Therapies and Breakthrough Clinical Developments Signal New Era for Rare Neurological Disorder Treatment | DelveInsight https://t.co/3yYSG0fYJa #Business #HealthMedicine #MarketingSales #PharmaceuticalsBiotech https://t.co/9wbFPsoRPv
#5️⃣ Multifocal Motor Neuropathy Easily mislabeled as ALS. But unlike ALS, MMN often responds dramatically to IVIG.
Multifocal Motor Neuropathy Pipeline Drugs Report 2025: An Analytical Outlook Covering Emerging Drugs, Strategic Pharma Partnerships, Clinical Advancements, and Evolving Market… https://t.co/BWrjq77LZK #Business #HealthMedicine #PharmaceuticalsBiotech #Science #Services https://t.co/Kd31r3smc9
Key examples include Guillain-Barré Syndrome (GBS), an acute condition, and Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP), a chronic one. Other types include vasculitic neuropathies, multifocal motor neuropathy (MMN), and paraproteinemic neuropathies.
[Multifocal motor neuropathy: MMN] Cheng and Katzberg: "Krarup et al. demonstrate that axonal excitability was compared between two MMN patients with continuous involuntary finger movements and 11 MMN patients without movements." doi.org/10.1016/j.cl... doi.org/10.1016/j.cl...
[Multifocal motor neuropathy: MMN] Cheng and Katzberg: "Krarup et al. demonstrate that axonal excitability was compared between two MMN patients with continuous involuntary finger movements and 11 MMN patients without movements." https://t.co/YK3cYBNkqE https://t.co/hgjhllhJe7 https://t.co/LKIeLgPicv
This study investigated the frequency and relevance of the MYD88L256P mutation in chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) and multifocal motor neuropathy (MMN).
@Colin_O_Scopie @DavidWolfe Monocytopenia Mononeuritis Mononeuropathy multiplex Morphea Morvan syndrome Mouth swelling Moyamoya disease Multifocal motor neuropathy Multiple organ dysfunction syndrome Multiple sclerosis Multiple sclerosis relapse Multiple sclerosis relapse prophylaxis
@PamelaStephensn Hi @PamelaStephensn, I hope all is progressing well. When reading your article about the individual with multifocal motor neuropathy in The Guardian, I think about The Penis Book by Dr. Aaron Spitz, MD, and learn a bit about the rare autoimmune disease. What I've come to https://t.co/gdy7tuClkj
Frequency and Relevance of MYD88L256P Mutation in Chronic Inflammatory Demyelinating Polyradiculoneuropathy and Multifocal Motor Neuropathy https://t.co/JEI9KyvPsD
@1SEAR1 Multifocal motor neuropathy, a spine alteration.
Guillain–Barré syndrome (GBS) and multifocal motor neuropathy (MMN) Approximate Superconductivity in the Continuum-Model Description of Twisted WSe² Correlated Sincerely Muhayadin Abdirshid.A.G.A. @MuhayadinA38422 @BillGates @JeffBezos
Multifocal Motor Neuropathy (MMN) is a rare autoimmune disorder causing progressive, asymmetric muscle weakness, mainly in the arms and hands, without major sensory loss. Learn more: www.gbs-cidp.org You may be rare, but you're not alone! #rareDisease #rareDiseaseAwareness
Lymphoma-Associated MMN With Conduction Block in HIV—A Red Flag in Neuro-Oncology An Uncommon Neurological Presentation of an Overlapping Immunologic and Oncologic Process In clinical practice, multifocal motor neuropathy (MMN) is a rare, immune-mediated peripheral nerve https://t.co/o9Cj3tHVCN
@AdamMeakins Multifocal Motor Neuropathy (MMN). Seen that in recent times, now thats a peculiar condition
Description: Product approval information is indicated for: • Replacement therapy for primary humoral immunodeficiency (PI) in adult and pediatric patients two years of age or older. • Maintenance therapy to improve muscle strength and disability in adult patients with Multifocal Motor Neuropathy
RT @CyclingLegends1:
RT @CyclingLegends1:
RT @CyclingLegends1:
Multifocal motor neuropathy (MMN) is often misdiagnosed as other conditions. How does that affect outcomes in patients who ultimately receive an MMN diagnosis? jheor.org/article/140817 #HEOR #raredisease #HCRU
Empasiprubart, a C2-binding agent, continues to show promise in motor neuron neuropathy. New ARDA phase 2 data support safety + efficacy, as it moves into the phase 3 EMPASSION trial
https://t.co/SewMMX2Hxp
Anyone else out there have Multifocal Motor Neuropathy? Comment if you do as I'd love to hear other peoples story. #MMN #MultifocalMotorNeuropathy #ImmuneDisorder #EMG #IVIG #MuscleWeakness #NCS #Antibodies #Neurology #WeakHands
Multifocal Motor Neuropathy (MMN) is a rare but serious chronic disorder that affects the nerves responsible for controlling muscle movement. #MultifocalMotorNeuropathy @axolotlbiologix @VertexPharma @AbbVie @ClinuvelNews @AcadiaPharma @Moonlaketx
Plasma-derived medicines are life-changing for those who need them. Richard Sperry lives with multifocal motor neuropathy and uses plasma-derived medicines to lead a healthy life. He is joined by his daughter, Elena, on Capitol Hill today for the #2025PPTAFlyIn to educate https://t.co/wufvWTsqNk
Meet Clive Phillips — living with Multifocal Motor Neuropathy and not letting it slow him down. He’s joining a team of British military vets to ride 3200km
RT @neurochecklists: We have just updated our multifocal motor neuropathy clinical features checklist with this paper https://t.co/14CvMAli…
RT @MarcusVPinto: @LazyDoctor07 The diagnoses you should not miss are motor CIDP, multifocal motor neuropathy, and paraneoplastic neuropath…
RT @MarcusVPinto: @LazyDoctor07 The diagnoses you should not miss are motor CIDP, multifocal motor neuropathy, and paraneoplastic neuropath…
RT @MarcusVPinto: @LazyDoctor07 The diagnoses you should not miss are motor CIDP, multifocal motor neuropathy, and paraneoplastic neuropath…
RT @MarcusVPinto: @LazyDoctor07 The diagnoses you should not miss are motor CIDP, multifocal motor neuropathy, and paraneoplastic neuropath…
RT @MarcusVPinto: @LazyDoctor07 The diagnoses you should not miss are motor CIDP, multifocal motor neuropathy, and paraneoplastic neuropath…
RT @MarcusVPinto: @LazyDoctor07 The diagnoses you should not miss are motor CIDP, multifocal motor neuropathy, and paraneoplastic neuropath…
@LazyDoctor07 The diagnoses you should not miss are motor CIDP, multifocal motor neuropathy, and paraneoplastic neuropathy. I really like this review from prof @nervecentrals Old but gold https://t.co/BgA5etJMBW
This study conducted a survey to determine current practice in diagnosis and treatment of multifocal motor neuropathy (MMN) in the U.K.
Check out the new work from James K. L. Holt and colleagues: Diagnosis and management of multifocal motor neuropathy in the United Kingdom: a multicentre survey https://t.co/a7A8QfhTjW #JPNSXHighlights
A case of multifocal motor neuropathy 48/Male with upper limb onset tremors https://t.co/g1dz5HDasa
A case of multifocal motor neuropathy 48/Male with upper limb onset tremors https://t.co/xtjdG4mint
@Queso5300 That’s good at least!!! ☘️ and yeah, I’ve got Multifocal Motor Neuropathy and IVig infusions is the only thing that stops it from progressing
COVID-19 had a greater effect on the mental health of patients with chronic inflammatory demyelinating polyneuropathy and multifocal motor neuropathy than patients with motor neuron disease.
Le patient a été traité par IgIV, ce qui a permis d’améliorer le déficit moteur de la main droite. Source : doi.org/10.1136/jnnp... Seeing the blocks: MRI of the brachial plexus in multifocal motor neuropathy
Next month our founder, Edward, is running a marathon in order to help support life altering research for others with Multifocal Motor Neuropathy Awareness Month (MMN)! Help support research for people with rare diseases by donating through the link in our bio!
https://t.co/MlSFWyVraF https://t.co/jM4SCPh5Y8
Multifocal motor neuropathy (MMN) is a rare but serious chronic disorder that affects the nerves responsible for controlling muscle movement, mainly in the hands, forearms, and lower legs. We are conducting this clinical study. DM or call us to learn more and see if you qualify! https://t.co/tXrmJcaBPF
@luv4annie @ashleys45527546 They diagnosed me with Multifocal Motor Neuropathy (MMN) which is where your body attacks the proteins on your motor nerves… I have severe muscle atrophy in BOTH my hands and just overall weakness in my hands, arms, legs and feet, but it’s the worst in my hands
GAMMAGARD LIQUID is a ready-to-use liquid medicine that is given in a vein (intravenously) or under the skin (subcutaneously) to treat primary immunodeficiency (PI) in people 2 years and older, given in a vein to treat multifocal motor neuropathy (MMN) in adults. https://t.co/GoHpwRoy7n
@askdheeraj @bobvarkey Another pure motor neuropathy would be multifocal motor neuropathy which is a differential of ALS and other motor neuron diseases I have only seen one case Its a very slow disease and does not present acutely as per theory
@FiatLuxGenesis @Bernade55207000 I am a retired, nurse and they’ve given me a diagnosis of Multifocal Motor Neuropathy. I’ve been on the IVIG for about 10 months. It was hard for me to decide if it was working exactly, but I did feel like my motor decline had slowed or stopped. There is virtually no information.
February is Multifocal Motor Neuropathy Awareness Month! Multifocal Motor Neuropathy (MMN) is a rare disorder in which focal areas of multiple motor nerves are attacked by one’s immune system. Learn more about MMN
@briansetzer59 Is it MMN? Multifocal motor neuropathy? Wishing you the best.
RT @expressoshow: After Rameez Cassiem - a former break-dancer, graffiti artist, and radio presenter - survived a near-fatal car accident h…
After Rameez Cassiem - a former break-dancer, graffiti artist, and radio presenter - survived a near-fatal car accident he fell into a month-long coma. As a result, he was later diagnosed with a rare nerve disease, Multifocal Motor Neuropathy (MMN). REMO – A True Story, directed https://t.co/x7LknsNMFj
RT @neurochecklists: We have just updated our multifocal motor neuropathy clinical features checklist with this paper https://t.co/14CvMAli…
ALS, amyotrophic lateral sclerosis; CB, conduction block; dHMN, distal hereditary motor neuropathy; MMA, monomelic amyotrophy; MMN, multifocal motor neuropathy; MND, motor neuron disease; NCS, nerve conduction studies;
RT @neurochecklists: We have just updated our multifocal motor neuropathy clinical features checklist with this paper https://t.co/14CvMAli…
RT @neurochecklists: We have just updated our multifocal motor neuropathy clinical features checklist with this paper https://t.co/14CvMAli…
We have just updated our multifocal motor neuropathy clinical features checklist with this paper https://t.co/14CvMAliua https://t.co/DwcXsJfHKx
RT @euro_nmd: ➡️#EURONMD webinar w/ @ERN_RND & @EANeurology
RT @euro_nmd: ➡️#EURONMD webinar w/ @ERN_RND & @EANeurology
➡️#EURONMD webinar w/ @ERN_RND & @EANeurology
February is Multifocal Motor Neuropathy (MMN) Awareness Month! MMN is a rare neurological disorder characterized by progressive muscle weakness. Here we discuss symptoms, self-management tips, and treatment options. https://t.co/VLT5GhXE0u #MMNAwareness #MMN
February is #MMNAwarenessMonth Multifocal Motor Neuropathy is a rare disorder in which focal areas of multiple motor nerves are attacked by one’s own immune system. Typically, MMN is slowly progressive, resulting in asymmetrical weakness of a patient’s limbs. Learn more about https://t.co/4rxsp7I81O
MMN is not life threatening. Drug treatment for MMN is limited to continual immune globulin g (human) and in some instances, cyclophosphamide. For further info on Multifocal Motor Neuropathy, go to https://t.co/UaQ7YOoTEb. End 2/2 https://t.co/XHhAkbUhvC
Bits and Pieces: Multifocal Motor Neuropathy (MMN) is a rare neuropathy with progressive, asymmetric muscle weakness and atrophy. Symptoms are weakness in the lower arms and legs with wrist and foot drop. MMN is believed to be an autoimmune response. More 1/2 #PhunQuiz https://t.co/lO7dGuH4WZ
Unraveling Multifocal Motor Neuropathy (MMN)—here's some key symptoms, cutting-edge treatments, and self-management strategies for this progressive condition. Learn more about this rare disease here: https://t.co/VLT5GhXE0u #RareDisease #NeurologicalHealth #Neuropathy
RT @ClinicalNeuroph: [Neuropathy] Krarup et al.: "Multifocal motor neuropathy may have a spectrum of changes associated with instability of…
[Neuropathy] Krarup et al.: "Multifocal motor neuropathy may have a spectrum of changes associated with instability of the axonal membrane which may be due to paranodal myelin loosening." doi.org/10.1016/j.cl...
[Neuropathy] Krarup et al.: "Multifocal motor neuropathy may have a spectrum of changes associated with instability of the axonal membrane which may be due to paranodal myelin loosening." https://t.co/hgjhllhJe7 https://t.co/8RSN3KMDzn
One for the nerve nerds. Multifocal Motor Neuropathy (MMN). Slowly progressive or stepwise progressive, focal, asymmetrical limb weakness. Motor involvement in the motor nerve distribution of at least two nerves. Often includes atrophy of the arm, hand leg, and foot. Includes
RT @RareDiseases: Do you have Multifocal Motor #Neuropathy (#MMN)? NORD and @gbscidp's Patient Assistance Program may provide financial sup…
Do you have Multifocal Motor #Neuropathy (#MMN)? NORD and @gbscidp's Patient Assistance Program may provide financial support to help with your out-of-pocket healthcare costs. Apply online: https://t.co/PoQB0pEhQ4 Email MMN@rarediseases.org for help with your application. https://t.co/lC2dUdoLkd
Multifocal motor neuropathy and asymptomatic Hashimoto's thyroiditis: first report of an association - Neuromuscular Disorders https://t.co/6vpJB8rMEV
P2. Population - Focuses on the class or type of neurons (or axons) involved (e.g., motor, sensory, autonomic). - Specific types help narrow the list of potential diagnoses. For example:
LOL. Someone in a support group just explained the antibodies of "uncertain significance" I tested positive for in the US (GM1 asialo ganglioside antibodies, for the nerds) are indicative of guillain barre (GBS) or multifocal motor neuropathy (MMN).
Bilateral arm weaknesses with muscle twitching in young adults. No sensory symptoms. NCV show bilateral conduction blocks. Yes, it’s a multifocal motor neuropathy with conduction blocks, another form of autoimmune peripheral nerve neuropathy.
@DrSoluri I get 100grams weekly for MMN (Multifocal motor neuropathy)
A #pediatric case of #multifocal #motor #neuropathy with the #conductionblock | KHYBER MEDICAL UNIVERSITY JOURNAL https://t.co/CmcNUMlmZ6
Charles Elwert describes his experience as the sole caregiver for his wife during her 77,000-hour battle with #OvarianCancer, breast cancer and multifocal motor neuropathy. https://t.co/gHtikHeGRD
Multifocal motor neuropathy (MMN) is a rare neurological disorder characterized by progressive muscle weakness, primarily affecting the arms and legs. Here's some symptoms to look out for as well as treatment options. https://t.co/TnbJjYZI55 #MMN #MotorNeuropathy #RareDisease
@thegarybrecka I'd wish for a cure for Multifocal Motor Neuropathy, a progressive neuromuscular disease I've been fighting since 2011.
Multifocal motor neuropathy (MMN) is a rare neurological disorder characterized by progressive muscle weakness, primarily affecting the arms and legs. Here's some symptoms to look out for as well as treatment options. https://t.co/MpLFOof8KP
New Research: Dose, exposure, and treatment regimen of intravenous immunoglobulin G in multifocal motor neuropathy https://t.co/RI3peksW8c #FrontiersIn #Neurology
RT @neurochecklists: We have just updated our multifocal motor neuropathy checklist with this paper https://t.co/eDyMX68NGP https://t.co/PW…
New study for Multifocal Motor Neuropathy! Call now for more information. (941) 708-0005 https://t.co/EvUOs4dlDZ
@TSM_Humanist Two issues 1. What is Fisher syndrome? 1. Multifocal motor neuropathy is not a GBS variant at all. It is a CIDP variant according to certain sources.
RT @TSM_Humanist: GBS Variants -Acute motor axonal neuropathy -Acute motor sensory axonal neuropathy -Acute pure sensory neuropathy -Acute…
RT @TSM_Humanist: GBS Variants -Acute motor axonal neuropathy -Acute motor sensory axonal neuropathy -Acute pure sensory neuropathy -Acute…
RT @TSM_Humanist: GBS Variants -Acute motor axonal neuropathy -Acute motor sensory axonal neuropathy -Acute pure sensory neuropathy -Acute…
RT @TSM_Humanist: GBS Variants -Acute motor axonal neuropathy -Acute motor sensory axonal neuropathy -Acute pure sensory neuropathy -Acute…
RT @TSM_Humanist: GBS Variants -Acute motor axonal neuropathy -Acute motor sensory axonal neuropathy -Acute pure sensory neuropathy -Acute…
RT @TSM_Humanist: GBS Variants -Acute motor axonal neuropathy -Acute motor sensory axonal neuropathy -Acute pure sensory neuropathy -Acute…
RT @TSM_Humanist: GBS Variants -Acute motor axonal neuropathy -Acute motor sensory axonal neuropathy -Acute pure sensory neuropathy -Acute…
RT @TSM_Humanist: GBS Variants -Acute motor axonal neuropathy -Acute motor sensory axonal neuropathy -Acute pure sensory neuropathy -Acute…
RT @TSM_Humanist: GBS Variants -Acute motor axonal neuropathy -Acute motor sensory axonal neuropathy -Acute pure sensory neuropathy -Acute…
GBS Variants -Acute motor axonal neuropathy -Acute motor sensory axonal neuropathy -Acute pure sensory neuropathy -Acute pandysautonomia -Pharyngeal cervical-brachial syndrome -Multifocal motor neuropathy -Fisher syndrome -Miller-Fisher syndrom -Bickerstaff brainstem encephalitis
@vumcpmr @AANEMorg @VUmedicine This is a terrific example of how important #EMG education is for all #physiatry trainees- especially in sports & spine. Multifocal motor neuropathy is TREATABLE disease which is frequently mistaken for #ALS. Really important for PM&R docs to know! @ABPMR
@Alina_MSN_RN @mitchlafon There are very strict guidelines for IVIg in Canada. Pretty much only for primary immune deficiency, immune thrombocytopenic purpura, secondary immune deficiency states, chronic inflammatory demyelinating polyneuropathy, Guillain-Barré, multifocal motor neuropathy.
Multifocal motor neuropathy is a muscle disorder that causes weakness in the hands. Treatment varies. Some patients need no intervention, while others may need immunosuppressive therapy or intravenous immunoglobulin (IVIg). https://t.co/PkmYK1dv0W https://t.co/AkGh6LE4XM
RT @PatientWorthy: Multifocal Motor Neuropathy Trial to Proceed Following FDA Clearance https://t.co/ywmU7KGMjF #RareDisease #MultifocalMot…
Multifocal Motor Neuropathy Trial to Proceed Following FDA Clearance https://t.co/ywmU7KGMjF #RareDisease #MultifocalMotorNeuropathy #ClinicalTrial
MMN（Multifocal Motor Neuropathy ／ 多巣性運動ニューロパチー）
Multifocal motor neuropathy is my favorite song of the new album @VISCERAINFEST
Chronic inflammatory demyelinating polyneuropathy & multifocal motor neuropathy: how, when & how long should you manage these peripheral nervous system disorders? #CIDP #MMN Developed in partnership with @PennMedicine , @infusioncenter & @IAFaccess . ms.spr.ly/6016iEVfs
TM
EN
CM
MM
ES
RW
MA
A
PH
AY
IJ
S
KD
MN
CN
MA
JM
AD
DP
MB
AA
SM
N
TN
AM
P
SF
N
MK
YC
OH
MD
M
PC
PP
VS
MP
RA
HH
DS
JG
TS
CL
S
B
DR
II
ER
BP
P
M
NN
L
A
AW
KJ
CT
H
FN
BC
M
DH
S
AM
IH
AA
D
DA
DB
IM
KD
MN
H
PW
に衤
P