Using Clinical Characteristics and Patient-Reported Outcome Measures to Categorize Systemic Lupus Erythematosus Subtypes.

Jennifer L Rogers, Amanda M Eudy, David Pisetsky, Lisa G Criscione-Schreiber, Kai Sun, Jayanth Doss, Megan E B Clowse

March 2021 Arthritis Care Res (Hoboken)

Synopsis of Social media discussions

The discussions reflect a recognition of the relevance of the research, with comments like 'This doesn't seem surprising' and references to categorizing subtypes based on symptoms, which demonstrate an understanding of the article's focus. The tone is generally supportive and acknowledges the potential for improved communication and treatment, indicating a moderate but meaningful engagement with the findings.

A
Agreement
 Moderate agreement

Most discussions agree with the study's premise that categorizing lupus based on clinical features and patient-reported outcomes is valuable, as shown by phrases like 'doesn't seem surprising' and references to new approaches.

I
Interest
 Moderate level of interest

The posts demonstrate moderate interest, especially by highlighting potential improvements in understanding and treating lupus, but they do not delve deep into specifics, indicating a general curiosity.

E
Engagement
 Moderate level of engagement

Posts show some engagement through sharing opinions and acknowledging the significance of the research, but lack detailed critique or extensive discussion, suggesting a surface-level engagement.

I
Impact
 Moderate level of impact

Participants seem to recognize the study’s importance in advancing lupus research and patient care, hinting at a moderate impact on clinical perspectives or future research directions.

Social Mentions

YouTube

1 Videos

Twitter

6 Posts

Metrics

Video Views

36

Total Likes

15

Extended Reach

17,320

Social Features

7

Timeline: Posts about article

Top Social Media Posts

Posts referencing the article

Advances in Patient-Reported Outcomes from ACR 2021 Conference

Advances in Patient-Reported Outcomes from ACR 2021 Conference

At the ACR 2021 annual congress, approximately 112 abstracts highlighted patient-reported outcomes across various rheumatic diseases, emphasizing assessment tools, quality of life, and disease perception.

Meed

December 14, 2021

36 views

  • Marco S Massarotti
    @msmassarotti (Twitter)

    RT @drbags71: This doesn't seem surprising to me! How about a new approach to lupus: Type 1 symptoms (inflammation) and Type 2 (chronic p…
    view full post

    February 2, 2021

    1

  • Megan Clowse
    @drbags71 (Twitter)

    This doesn't seem surprising to me! How about a new approach to lupus: Type 1 symptoms (inflammation) and Type 2 (chronic pain, fatigue, brain fog). The Type 2 drive people into trials, but the study drugs target pathways for Type 1 disease. https://t.co/CtKTSCsp4k https://t.co/ZqbKIXfcCM
    view full post

    February 1, 2021

    5

    1

  • Dalila
    @dalilatm (Twitter)

    RT @ACR_Journals: Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to…
    view full post

    January 11, 2020

    3

  • Noreen Nasir
    @noreenasir (Twitter)

    RT @ACR_Journals: Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to…
    view full post

    January 11, 2020

    3

  • Susana hasel Prudencio Aban
    @SusanaHasel (Twitter)

    RT @ACR_Journals: Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to…
    view full post

    January 10, 2020

    3

  • ACR_Journals
    @ACR_Journals (Twitter)

    Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to categorize lupus subtypes https://t.co/PBV1lpo96G https://t.co/x8YsofYUXW
    view full post

    January 10, 2020

    2

    3

Abstract Synopsis

  • The study proposes a new way to categorize systemic lupus erythematosus (SLE) into subtypes based on clinical features and patient-reported outcomes, especially focusing on symptoms like fatigue, pain, sleep issues, and mood disorders.
  • Researchers identified four SLE groups (type 1, type 2, mixed, and minimal) and found that patients with fibromyalgia (FM) reported higher symptom scores regardless of disease activity, leading to differences between what patients feel and what doctors observe.
  • The findings suggest that recognizing symptoms characteristic of type 2 SLE can improve communication between patients and doctors, and that tools like the SLAQ might need adjustment to better reflect the severity of FM when assessing patient symptoms.