Arthritis Care Res (Hoboken) March 2021 PMID 31909888

Using Clinical Characteristics and Patient-Reported Outcome Measures to Categorize Systemic Lupus Erythematosus Subtypes.

Jennifer L Rogers, Amanda M Eudy, David Pisetsky, Lisa G Criscione-Schreiber, Kai Sun, Jayanth Doss, Megan E B Clowse

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Mentions

7
Peak: 4 in Jan 2020
across 2 sources since Jan 2020

Extended reach

17,320
potential audience

Total likes

15

Video views

36

Mentions per month

Jan 2020 – Dec 2021

Where it's discussed

  • X / Twitter6 posts
  • YouTube1 videos

AI synopsis

What people are saying

The discussions reflect a recognition of the relevance of the research, with comments like 'This doesn't seem surprising' and references to categorizing subtypes based on symptoms, which demonstrate an understanding of the article's focus. The tone is generally supportive and acknowledges the potential for improved communication and treatment, indicating a moderate but meaningful engagement with the findings.

AgreementModerate agreement

Most discussions agree with the study's premise that categorizing lupus based on clinical features and patient-reported outcomes is valuable, as shown by phrases like 'doesn't seem surprising' and references to new approaches.

InterestModerate interest

The posts demonstrate moderate interest, especially by highlighting potential improvements in understanding and treating lupus, but they do not delve deep into specifics, indicating a general curiosity.

EngagementModerate engagement

Posts show some engagement through sharing opinions and acknowledging the significance of the research, but lack detailed critique or extensive discussion, suggesting a surface-level engagement.

ImpactModerate impact

Participants seem to recognize the study’s importance in advancing lupus research and patient care, hinting at a moderate impact on clinical perspectives or future research directions.

Abstract in brief

  • The study proposes a new way to categorize systemic lupus erythematosus (SLE) into subtypes based on clinical features and patient-reported outcomes, especially focusing on symptoms like fatigue, pain, sleep issues, and mood disorders.
  • Researchers identified four SLE groups (type 1, type 2, mixed, and minimal) and found that patients with fibromyalgia (FM) reported higher symptom scores regardless of disease activity, leading to differences between what patients feel and what doctors observe.
  • The findings suggest that recognizing symptoms characteristic of type 2 SLE can improve communication between patients and doctors, and that tools like the SLAQ might need adjustment to better reflect the severity of FM when assessing patient symptoms.

Top posts

Most liked on X and Bluesky
Megan Clowse
@drbags71 · X

This doesn't seem surprising to me! How about a new approach to lupus: Type 1 symptoms (inflammation) and Type 2 (chronic pain, fatigue, brain fog). The Type 2 drive people into trials, but the study drugs target pathways for Type 1 disease. https://t.co/CtKTSCsp4k https://t.co/ZqbKIXfcCM

Feb 1, 2021 · 5 likes · 1 share · 455 followers View post →
ACR_Journals
@ACR_Journals · X

Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to categorize lupus subtypes https://t.co/PBV1lpo96G https://t.co/x8YsofYUXW

Jan 10, 2020 · 2 likes · 3 shares · 13,983 followers View post →
Marco S Massarotti
@msmassarotti · X

RT @drbags71: This doesn't seem surprising to me! How about a new approach to lupus: Type 1 symptoms (inflammation) and Type 2 (chronic p…

Feb 2, 2021 · 1 share · 1,221 followers View post →
Noreen Nasir
@noreenasir · X

RT @ACR_Journals: Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to…

Jan 11, 2020 · 3 shares · 816 followers View post →
Dalila
@dalilatm · X

RT @ACR_Journals: Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to…

Jan 11, 2020 · 3 shares · 718 followers View post →
Susana hasel Prudencio Aban
@SusanaHasel · X

RT @ACR_Journals: Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to…

Jan 10, 2020 · 3 shares · 63 followers View post →

All mentions

Marco S Massarotti
@msmassarotti · X

RT @drbags71: This doesn't seem surprising to me! How about a new approach to lupus: Type 1 symptoms (inflammation) and Type 2 (chronic p…

Feb 2, 2021 · 1 share · 1,221 followers View post →
Megan Clowse
@drbags71 · X

This doesn't seem surprising to me! How about a new approach to lupus: Type 1 symptoms (inflammation) and Type 2 (chronic pain, fatigue, brain fog). The Type 2 drive people into trials, but the study drugs target pathways for Type 1 disease. https://t.co/CtKTSCsp4k https://t.co/ZqbKIXfcCM

Feb 1, 2021 · 5 likes · 1 share · 455 followers View post →
Dalila
@dalilatm · X

RT @ACR_Journals: Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to…

Jan 11, 2020 · 3 shares · 718 followers View post →
Noreen Nasir
@noreenasir · X

RT @ACR_Journals: Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to…

Jan 11, 2020 · 3 shares · 816 followers View post →
Susana hasel Prudencio Aban
@SusanaHasel · X

RT @ACR_Journals: Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to…

Jan 10, 2020 · 3 shares · 63 followers View post →
ACR_Journals
@ACR_Journals · X

Just accepted in Arthritis Care & Research: Utilizing clinical characteristics and patient‐reported outcome measures to categorize lupus subtypes https://t.co/PBV1lpo96G https://t.co/x8YsofYUXW

Jan 10, 2020 · 2 likes · 3 shares · 13,983 followers View post →