"A piece of paper is not the same as having someone to talk to": accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities.

Clarissa Giebel, Kerry Hanna, Hilary Tetlow, Kym Ward, Justine Shenton, Jacqueline Cannon, Sarah Butchard, Aravind Komuravelli, Anna Gaughan, Ruth Eley, Carol Rogers, Manoj Rajagopal, Stan Limbert, Steve Callaghan, Rosie Whittington

March 2021

Synopsis of Social media discussions

Many discussions highlight the key barriers faced by individuals with dementia in accessing care, such as financial and transportation challenges, with phrases like 'too many barriers' and 'social care system absolutely needs to be overhauled'. The consistent emphasis on the quote 'A piece of paper is not the same as having someone to talk to' signifies the importance of social support, while the tone of urgency and frustration reflects a deep concern for the community impacted by these inequalities.

A
Agreement
 Strong agreement

The majority of discussions express strong agreement with the findings of the publication.

I
Interest
 High level of interest

Participants show high interest in the topics of dementia care and the inequalities highlighted by the research.

E
Engagement
 Moderate level of engagement

While several discussions reference key issues, the depth of engagement varies, indicating some posts are more general in nature.

I
Impact
 High level of impact

There is a strong belief that the publication has significant implications for dementia care policies and practices.

Social Mentions

YouTube

2 Videos

Facebook

2 Posts

Twitter

124 Posts

Blogs

4 Articles

Metrics

Video Views

177

Total Likes

167

Extended Reach

579,457

Social Features

132

Timeline: Posts about article

Top Social Media Posts

Posts referencing the article

Impact of COVID-19 on Dementia Care Services

Impact of COVID-19 on Dementia Care Services

Stan Limbert, living with early onset Alzheimer's, highlights the severe impact COVID-19 has had on dementia services. This video discusses the challenges faced by the dementia community, including service closures and the need for better support for carers. Learn more about ARC NWCs research efforts.

ARC NWC

May 20, 2021

89 views

Impact of COVID-19 on Dementia Care Services and Inequities

Impact of COVID-19 on Dementia Care Services and Inequities

In this video, Rosie reflects on how COVID-19 has impacted dementia services. Access to social support services is crucial for people living with dementia, yet the pandemic revealed worsening access issues for individuals and their unpaid carers. Learn more about these challenges and necessary actions.

ARC NWC

May 20, 2021

89 views

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: @MichaelMarmot @AlzResearchUK Only 5 of the 12 risk factors for dementia? Yes, sadly dementia is linked to a myriad of…
    view full post

    December 24, 2023

    1

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    @MichaelMarmot @AlzResearchUK Only 5 of the 12 risk factors for dementia? Yes, sadly dementia is linked to a myriad of inequalities in both diagnosis and care, as my group investigates at Liverpool https://t.co/r59hKowxMo
    view full post

    December 24, 2023

    3

    1

  • Andrew Morris
    @andrewmorrisuk (Twitter)

    RT @ClarissaGiebel: @BetterResearch There continue to bee too many barriers to accessing #dementia care across the UK... also see here: ht…
    view full post

    April 20, 2023

    1

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    @BetterResearch There continue to bee too many barriers to accessing #dementia care across the UK... also see here: https://t.co/r59hKowxMo
    view full post

    April 20, 2023

    2

    1

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    Read our Covid research into inequalities in post-diagnostic dementia care, published here: https://t.co/r59hKowxMo
    view full post

    February 15, 2023

    1

  • DemSCAPE
    @DemSCAPEbc (Twitter)

    RT @JoeyWong_oy: So much more to be done in the field and to learn from the voice of people with lived experiences. I appreciated how resea…
    view full post

    December 2, 2022

    1

  • Joey Wong
    @JoeyWong_oy (Twitter)

    So much more to be done in the field and to learn from the voice of people with lived experiences. I appreciated how research enables these voices to be heard ❤️ https://t.co/WRkxPO3JSi
    view full post

    December 2, 2022

    2

    1

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    October 28, 2022

    4

  • Marcus Hansen
    @TourismMarcus (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    October 28, 2022

    4

  • Andrew Morris
    @andrewmorrisuk (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    October 28, 2022

    4

  • Shannen Beadle
    @SBdischargefac (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    October 28, 2022

    4

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and since COVID-19 and associated #inequalities https://t.co/r59hKoeWnO
    view full post

    October 28, 2022

    7

    4

  • ARC North West Coast
    @arc_nwc (Twitter)

    RT @ClarissaGiebel: Inequalities in accessing post-diagnostic #dementia care are far too common, and have only been exacerbated since the p…
    view full post

    September 21, 2022

    1

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    Inequalities in accessing post-diagnostic #dementia care are far too common, and have only been exacerbated since the pandemic, as our @arc_nwc has shown: #WorldAlzheimersDay https://t.co/r59hKox5BW
    view full post

    September 21, 2022

    7

    1

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: If you want to find out more about how post-diagnostic #dementia care and support has been subjected to even more barri…
    view full post

    August 22, 2022

    3

  • Gary Hodge
    @GaryHodge1968 (Twitter)

    RT @ClarissaGiebel: If you want to find out more about how post-diagnostic #dementia care and support has been subjected to even more barri…
    view full post

    August 22, 2022

    3

  • Andrew Morris
    @andrewmorrisuk (Twitter)

    RT @ClarissaGiebel: If you want to find out more about how post-diagnostic #dementia care and support has been subjected to even more barri…
    view full post

    August 22, 2022

    3

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    If you want to find out more about how post-diagnostic #dementia care and support has been subjected to even more barriers since the pandemic, read our #LiverpoolDementia research here: @KerryLHanna https://t.co/r59hKowxMo
    view full post

    August 22, 2022

    4

    3

  • natasha nicole roffe @natwhatyou’dexpect
    @NRoffe (Twitter)

    RT @ClarissaGiebel: To find out more about how the pandemic has increased inequalities in accessing #dementia care after a diagnosis, read…
    view full post

    July 1, 2022

    3

  • Dr Kerry Hanna
    @KerryLHanna (Twitter)

    RT @ClarissaGiebel: To find out more about how the pandemic has increased inequalities in accessing #dementia care after a diagnosis, read…
    view full post

    June 29, 2022

    3

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: To find out more about how the pandemic has increased inequalities in accessing #dementia care after a diagnosis, read…
    view full post

    June 29, 2022

    3

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    To find out more about how the pandemic has increased inequalities in accessing #dementia care after a diagnosis, read our study here: @KerryLHanna @alzheimerssoc https://t.co/r59hKowxMo
    view full post

    June 29, 2022

    3

    3

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: Particularly looking forward to this session at #ASAC222. There are too many barriers and inequities in receiving the r…
    view full post

    May 18, 2022

    5

  • Janice Hine
    @HineJanice (Twitter)

    RT @ClarissaGiebel: Particularly looking forward to this session at #ASAC222. There are too many barriers and inequities in receiving the r…
    view full post

    May 18, 2022

    5

  • Nadine Mirza
    @thealmostpsych (Twitter)

    RT @ClarissaGiebel: Particularly looking forward to this session at #ASAC222. There are too many barriers and inequities in receiving the r…
    view full post

    May 17, 2022

    5

  • Andrew Morris
    @andrewmorrisuk (Twitter)

    RT @ClarissaGiebel: Particularly looking forward to this session at #ASAC222. There are too many barriers and inequities in receiving the r…
    view full post

    May 17, 2022

    5

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    Particularly looking forward to this session at #ASAC222. There are too many barriers and inequities in receiving the right #Dementia care, which has only been amplified during the pandemic #LiverpoolDementia https://t.co/r59hKowxMo https://t.co/fJl9Dm9Fq8
    view full post

    May 17, 2022

    8

    5

  • Dr. Tannahill Glen
    @tannahillglen (Twitter)

    "A piece of paper is not the same as having someone to talk to": accessing post-diagnostic dementia care before and… https://t.co/laOcc1aoXR
    view full post

    May 5, 2022

  • ARC North West Coast
    @arc_nwc (Twitter)

    RT @ClarissaGiebel: (4) Our research highlighted exacerbated and new inequalities in accessing #dementia care during the pandemic - how can…
    view full post

    December 14, 2021

    2

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: (4) Our research highlighted exacerbated and new inequalities in accessing #dementia care during the pandemic - how can…
    view full post

    December 14, 2021

    2

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    (4) Our research highlighted exacerbated and new inequalities in accessing #dementia care during the pandemic - how can we tackle them? @lbsorg @tide_carers @HilaryTetlow https://t.co/r59hKowxMo
    view full post

    December 14, 2021

    3

    2

  • ARC North West Coast
    @arc_nwc (Twitter)

    RT @ClarissaGiebel: I'll also be discussing our #LiverpoolDementia research into inequalities in dementia before and since the pandemic, in…
    view full post

    December 7, 2021

    4

  • Neil
    @Jackfrozzzt777 (Twitter)

    RT @ClarissaGiebel: I'll also be discussing our #LiverpoolDementia research into inequalities in dementia before and since the pandemic, in…
    view full post

    December 6, 2021

    4

  • Adelina ComasHerrera
    @AdelinaCoHe (Twitter)

    RT @ClarissaGiebel: I'll also be discussing our #LiverpoolDementia research into inequalities in dementia before and since the pandemic, in…
    view full post

    December 6, 2021

    4

  • Heather Pearson
    @Pearson124 (Twitter)

    RT @ClarissaGiebel: Inequalities in #dementia care have been exacerbated since the pandemic (see our latest paper below), but how has the p…
    view full post

    December 1, 2021

    5

  • Melinda Szöllősi
    @MeliSzollosi (Twitter)

    RT @ClarissaGiebel: 1 conference down (#31AEC), 1 more tomorrow (@IPA_Online)+ already prepping for the 3rd one next week - thx @AdelinaCoH…
    view full post

    November 30, 2021

    7

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: 1 conference down (#31AEC), 1 more tomorrow (@IPA_Online)+ already prepping for the 3rd one next week - thx @AdelinaCoH…
    view full post

    November 30, 2021

    7

  • Alzheimer Europe
    @AlzheimerEurope (Twitter)

    RT @ClarissaGiebel: 1 conference down (#31AEC), 1 more tomorrow (@IPA_Online)+ already prepping for the 3rd one next week - thx @AdelinaCoH…
    view full post

    November 30, 2021

    7

  • Global Observatory of Long-Term Care
    @GlobalObLTC (Twitter)

    RT @ClarissaGiebel: 1 conference down (#31AEC), 1 more tomorrow (@IPA_Online)+ already prepping for the 3rd one next week - thx @AdelinaCoH…
    view full post

    November 30, 2021

    7

  • Adelina ComasHerrera
    @AdelinaCoHe (Twitter)

    RT @ClarissaGiebel: 1 conference down (#31AEC), 1 more tomorrow (@IPA_Online)+ already prepping for the 3rd one next week - thx @AdelinaCoH…
    view full post

    November 30, 2021

    7

  • Andrew Morris
    @andrewmorrisuk (Twitter)

    RT @ClarissaGiebel: 1 conference down (#31AEC), 1 more tomorrow (@IPA_Online)+ already prepping for the 3rd one next week - thx @AdelinaCoH…
    view full post

    November 30, 2021

    7

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    1 conference down (#31AEC), 1 more tomorrow (@IPA_Online)+ already prepping for the 3rd one next week - thx @AdelinaCoHe for inviting me to present at @LTCcovid about inequalities in accessing #dementia care during COVID19: https://t.co/r59hKowxMo
    view full post

    November 30, 2021

    12

    7

  • Alzheimer Europe
    @AlzheimerEurope (Twitter)

    RT @ClarissaGiebel: Inequalities in #dementia care have been exacerbated since the pandemic (see our latest paper below), but how has the p…
    view full post

    November 30, 2021

    5

  • Andrew Morris
    @andrewmorrisuk (Twitter)

    RT @ClarissaGiebel: Inequalities in #dementia care have been exacerbated since the pandemic (see our latest paper below), but how has the p…
    view full post

    November 30, 2021

    5

  • Raymond Smith
    @_Raymond_Smith (Twitter)

    RT @ClarissaGiebel: Inequalities in #dementia care have been exacerbated since the pandemic (see our latest paper below), but how has the p…
    view full post

    November 30, 2021

    5

  • Chris Bintener
    @ChrisBintener (Twitter)

    RT @ClarissaGiebel: Inequalities in #dementia care have been exacerbated since the pandemic (see our latest paper below), but how has the p…
    view full post

    November 30, 2021

    5

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    Inequalities in #dementia care have been exacerbated since the pandemic (see our latest paper below), but how has the pandemic affected dementia care globally? Tune in to Session P.09 at #31AEC @AlzheimerEurope now
    view full post

    November 30, 2021

    4

    5

  • Global Observatory of Long-Term Care
    @GlobalObLTC (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    November 6, 2021

    2

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    November 5, 2021

    2

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and since COVID-19 and associated inequalities https://t.co/r59hKowxMo
    view full post

    November 5, 2021

    4

    2

  • Sally Hilton
    @S411Y100 (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    October 29, 2021

    6

  • tricia long
    @TrishaL8 (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    October 29, 2021

    6

  • Dr Catherine Talbot
    @CatherineTalb (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    October 25, 2021

    6

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    October 25, 2021

    6

  • Mal (she/her)
    @Mal_RahmanAmin (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    October 25, 2021

    6

  • Global Observatory of Long-Term Care
    @GlobalObLTC (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    October 25, 2021

    6

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and since COVID-19 and associated inequalities @GBHI_Fellows @KerryLHanna @InterdemEurope https://t.co/r59hKowxMo
    view full post

    October 24, 2021

    13

    6

  • Krzysztof Potempa
    @BRAINCURES (Twitter)

    RT @CatherineTalb: My @Mental_Elf blog about inequalities in accessing dementia social support services is now available online ✨ You can…
    view full post

    September 28, 2021

    6

  • Prof. Linda K. Kaye
    @LindaKKaye (Twitter)

    RT @CatherineTalb: My @Mental_Elf blog about inequalities in accessing dementia social support services is now available online ✨ You can…
    view full post

    September 28, 2021

    6

  • Emily Fletcher
    @EmilyFletcher1 (Twitter)

    RT @CatherineTalb: My @Mental_Elf blog about inequalities in accessing dementia social support services is now available online ✨ You can…
    view full post

    September 28, 2021

    6

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    RT @CatherineTalb: My @Mental_Elf blog about inequalities in accessing dementia social support services is now available online ✨ You can…
    view full post

    September 28, 2021

    6

  • Derek A. Laffan
    @dereklaffan (Twitter)

    RT @CatherineTalb: My @Mental_Elf blog about inequalities in accessing dementia social support services is now available online ✨ You can…
    view full post

    September 28, 2021

    6

  • The Mental Elf
    @Mental_Elf (Twitter)

    RT @CatherineTalb: My @Mental_Elf blog about inequalities in accessing dementia social support services is now available online ✨ You can…
    view full post

    September 28, 2021

    6

  • Dr Catherine Talbot
    @CatherineTalb (Twitter)

    My @Mental_Elf blog about inequalities in accessing dementia social support services is now available online ✨ You can read the paper by @ClarissaGiebel and colleagues here: https://t.co/U6Hvs9NRkW https://t.co/5EpTVC52hG
    view full post

    September 28, 2021

    17

    6

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    August 31, 2021

    3

  • Lewy Body Society
    @lbsorg (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    August 31, 2021

    3

  • Holly Bunty
    @hollybunty (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    August 31, 2021

    3

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and since COVID-19 and associated inequalities @lbsorg @HilaryTetlow @ManojRajagopal @InterdemEurope https://t.co/r59hKowxMo
    view full post

    August 31, 2021

    10

    3

  • MazMairi
    @MairiMaz (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    July 5, 2021

    6

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    June 29, 2021

    6

  • ARC North West Coast
    @arc_nwc (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    June 29, 2021

    6

  • Global Observatory of Long-Term Care
    @GlobalObLTC (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and si…
    view full post

    June 29, 2021

    6

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic #dementia care before and since COVID-19 and associated inequalities @HilaryTetlow @lbsorg @SURFLiverpool @jc_cannon13 @arc_nwc https://t.co/r59hKowxMo
    view full post

    June 29, 2021

    11

    6

  • Algar Goredema-Braid
    @AILAHT0909 (Twitter)

    RT @ClarissaGiebel: @anniebliss0 @DamianGreen Absolutely, but as we've shown digital social care does not provide the same benefits as face…
    view full post

    May 25, 2021

    1

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    @anniebliss0 @DamianGreen Absolutely, but as we've shown digital social care does not provide the same benefits as face-to-face care, plus there are too many inequalities in accessing care digitally #THFGetCareDone https://t.co/r59hKowxMo
    view full post

    May 25, 2021

    2

    1

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    RT @arc_nwc: This paper highlights exacerbated inequalities in dementia since the pandemic, identifying five themes: Service issues, Access…
    view full post

    May 22, 2021

    2

  • Sandra SmithMND
    @SandraSmithmnd (Twitter)

    RT @arc_nwc: This paper highlights exacerbated inequalities in dementia since the pandemic, identifying five themes: Service issues, Access…
    view full post

    May 22, 2021

    2

  • ARC North West Coast
    @arc_nwc (Twitter)

    This paper highlights exacerbated inequalities in dementia since the pandemic, identifying five themes: Service issues, Access issues, Relying on own initiative, New inequalities due to COVID-19, and Missing out on the benefits of support services: https://t.co/hj0w0CLc42
    view full post

    May 22, 2021

    2

  • Chris Roberts.
    @mason4233 (Twitter)

    RT @ClarissaGiebel: @AlzSocCymru @alzheimerssoc The social care system absolutely needs to be overhauled and prioritised, something that ha…
    view full post

    May 20, 2021

    2

  • Clh
    @clhclhhiggsees (Twitter)

    RT @ClarissaGiebel: @AlzSocCymru @alzheimerssoc The social care system absolutely needs to be overhauled and prioritised, something that ha…
    view full post

    May 20, 2021

    2

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    @AlzSocCymru @alzheimerssoc The social care system absolutely needs to be overhauled and prioritised, something that has been promised far too long. My research highlights how people with #dementia face many barriers in accessing care: https://t.co/r59hKowxMo
    view full post

    May 20, 2021

    4

    2

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    @Jmswats Hmm strange, I can see this underneath your SR. We referred to it in our inequalities analysis: https://t.co/r59hKowxMo
    view full post

    May 12, 2021

    1

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    The pandemic has exacerbated existing inequalities for people with #dementia in accessing care, when will these be addressed?? https://t.co/r59hKoeWnO
    view full post

    April 27, 2021

  • Jacqui Bingham
    @JacquiBingham (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic dementia care before and sin…
    view full post

    April 8, 2021

    2

  • Sandra SmithMND
    @SandraSmithmnd (Twitter)

    RT @ClarissaGiebel: “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic dementia care before and sin…
    view full post

    April 8, 2021

    2

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities https://t.co/r59hKowxMo
    view full post

    April 8, 2021

    1

    2

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @arc_nwc: “A piece of paper is not the same as having someone to talk to” accessing post-diagnostic dementia care before and since COVID…
    view full post

    March 24, 2021

    4

  • Tom Faulkner
    @twfaulkner2 (Twitter)

    RT @arc_nwc: “A piece of paper is not the same as having someone to talk to” accessing post-diagnostic dementia care before and since COVID…
    view full post

    March 24, 2021

    4

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    RT @arc_nwc: “A piece of paper is not the same as having someone to talk to” accessing post-diagnostic dementia care before and since COVID…
    view full post

    March 24, 2021

    4

  • ARC North West Coast
    @arc_nwc (Twitter)

    “A piece of paper is not the same as having someone to talk to” accessing post-diagnostic dementia care before and since COVID19 and associated inequalities. Research led by @ClarissaGiebel just published. Thank you to all members/public advisers involved https://t.co/ACiyyoHC1V
    view full post

    March 24, 2021

    7

    4

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    (2) The pandemic has exacerbated existing #inequalities in accessing formal #dementia care @InterdemEurope @alzheimerssoc @tide_carers @sarahbutchard https://t.co/r59hKoeWnO
    view full post

    March 23, 2021

    1

    2

  • ARC North West Coast
    @arc_nwc (Twitter)

    RT @ClarissaGiebel: #COVID19 has increased existing inequalities in accessing #dementia care and highlighted the digital divide in older ad…
    view full post

    March 22, 2021

    12

  • Chris Maddocks
    @chris40781 (Twitter)

    RT @ClarissaGiebel: #COVID19 has increased existing inequalities in accessing #dementia care and highlighted the digital divide in older ad…
    view full post

    March 19, 2021

    12

  • CCCU-CASCADEEU
    @CCCUCascade (Twitter)

    RT @ClarissaGiebel: #COVID19 has increased existing inequalities in accessing #dementia care and highlighted the digital divide in older ad…
    view full post

    March 17, 2021

    12

  • Evidently Better
    @EvidentlyBetter (Twitter)

    New research into accessing post-diagnostic #dementia care before and since #COVID19 https://t.co/rzg3UkBJfJ
    view full post

    March 17, 2021

  • CCCU-CASCADEEU
    @CCCUCascade (Twitter)

    RT @ClarissaGiebel: People with #dementia face concerning inequalities in accessing formal care - this has only been amplified by #COVID19:…
    view full post

    March 16, 2021

    5

  • Jean Gajardo
    @jean_gajardo (Twitter)

    RT @ClarissaGiebel: #COVID19 has increased existing inequalities in accessing #dementia care and highlighted the digital divide in older ad…
    view full post

    March 16, 2021

    12

  • InterdemEurope
    @InterdemEurope (Twitter)

    RT @ClarissaGiebel: #COVID19 has increased existing inequalities in accessing #dementia care and highlighted the digital divide in older ad…
    view full post

    March 16, 2021

    12

  • Sandra SmithMND
    @SandraSmithmnd (Twitter)

    RT @ClarissaGiebel: #COVID19 has increased existing inequalities in accessing #dementia care and highlighted the digital divide in older ad…
    view full post

    March 16, 2021

    12

  • Dr. Christian Winter
    @DrChristianWin1 (Twitter)

    RT @ClarissaGiebel: People with #dementia face concerning inequalities in accessing formal care - this has only been amplified by #COVID19:…
    view full post

    March 16, 2021

    5

  • Lewy Body Society
    @lbsorg (Twitter)

    RT @ClarissaGiebel: #COVID19 has increased existing inequalities in accessing #dementia care and highlighted the digital divide in older ad…
    view full post

    March 16, 2021

    12

  • Global Observatory of Long-Term Care
    @GlobalObLTC (Twitter)

    RT @ClarissaGiebel: People with #dementia face concerning inequalities in accessing formal care - this has only been amplified by #COVID19:…
    view full post

    March 16, 2021

    5

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: People with #dementia face concerning inequalities in accessing formal care - this has only been amplified by #COVID19:…
    view full post

    March 15, 2021

    5

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: #COVID19 has increased existing inequalities in accessing #dementia care and highlighted the digital divide in older ad…
    view full post

    March 15, 2021

    12

  • Global Observatory of Long-Term Care
    @GlobalObLTC (Twitter)

    RT @ClarissaGiebel: #COVID19 has increased existing inequalities in accessing #dementia care and highlighted the digital divide in older ad…
    view full post

    March 15, 2021

    12

  • The Brain Charity
    @TheBrainCharity (Twitter)

    RT @ClarissaGiebel: #COVID19 has increased existing inequalities in accessing #dementia care and highlighted the digital divide in older ad…
    view full post

    March 15, 2021

    12

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    #COVID19 has increased existing inequalities in accessing #dementia care and highlighted the digital divide in older adults - read our latest @LivUni @arc_nwc study here: @InterdemEurope https://t.co/LoP7xiK4QC https://t.co/ylxn6IMCNg
    view full post

    March 15, 2021

    16

    12

  • Boltondementiasupportuk
    @Boltondementia2 (Twitter)

    RT @ClarissaGiebel: People with #dementia face concerning inequalities in accessing formal care - this has only been amplified by #COVID19:…
    view full post

    March 15, 2021

    5

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    People with #dementia face concerning inequalities in accessing formal care - this has only been amplified by #COVID19: https://t.co/LoP7xiK4QC
    view full post

    March 15, 2021

    5

    5

  • EQE Health
    @EqeSteve (Twitter)

    RT @ClarissaGiebel:
    view full post

    March 14, 2021

    7

  • Presbyterian SeniorCare Network
    @PSrCare (Twitter)

    "A piece of paper is not the same as having someone to talk to": accessing post-diagnostic dementia care before and… https://t.co/gWeFFcAKaX
    view full post

    March 13, 2021

  • Sarah Donnelly
    @sarahmdonnelly1 (Twitter)

    RT @ClarissaGiebel:
    view full post

    March 13, 2021

    7

  • Health Services Research at BMC
    @HSRatBMC (Twitter)

    “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities https://t.co/O98chqzLbu
    view full post

    March 12, 2021

  • Dr Mikaela Jorgensen
    @mikaelajorgensn (Twitter)

    RT @ClarissaGiebel:
    view full post

    March 12, 2021

    7

  • Lewy Body Society
    @lbsorg (Twitter)

    RT @ClarissaGiebel: @WillyGilder @LivUni @vsmacdonald @InterdemEurope @GdnSocialCare @BBCNWT @bbcmerseyside @TheBrainCharity @arc_nwc @livP…
    view full post

    March 12, 2021

    1

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel: And here is the link!: https://t.co/LoP7xiK4QC
    view full post

    March 12, 2021

    3

  • Hilary Tetlow
    @HilaryTetlow (Twitter)

    RT @ClarissaGiebel:
    view full post

    March 12, 2021

    7

  • Jana Mikova
    @jana_mik (Twitter)

    RT @ClarissaGiebel: And here is the link!: https://t.co/LoP7xiK4QC
    view full post

    March 12, 2021

    3

  • Richard Ward (he/him)
    @Richard_Ward_1 (Twitter)

    RT @ClarissaGiebel: And here is the link!: https://t.co/LoP7xiK4QC
    view full post

    March 12, 2021

    3

  • Global Observatory of Long-Term Care
    @GlobalObLTC (Twitter)

    RT @ClarissaGiebel:
    view full post

    March 12, 2021

    7

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    @WillyGilder @LivUni @vsmacdonald @InterdemEurope @GdnSocialCare @BBCNWT @bbcmerseyside @TheBrainCharity @arc_nwc @livPCMH @house_memories @lbsorg @HilaryTetlow @tide_carers @SURFLiverpool @AravindKomurav2 @sarahbutchard Yes of course! Here you go: https://t.co/LoP7xiK4QC
    view full post

    March 12, 2021

    1

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)


    view full post

    March 12, 2021

    12

    7

  • Dr Clarissa Giebel
    @ClarissaGiebel (Twitter)

    And here is the link!: https://t.co/LoP7xiK4QC
    view full post

    March 12, 2021

    2

    3

  • Int Journal for Equity in Health
    @equityhealthj (Twitter)

    “A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities https://t.co/a7WqvfR82q
    view full post

    March 12, 2021

    4

    1

Abstract Synopsis

  • Access to social support services, like day care centers, is crucial for people living with dementia to remain at home longer.
  • The study explored the inequalities in accessing these services before and after the COVID-19 pandemic, revealing persistent and worsening access issues for individuals and their unpaid carers.
  • Key barriers identified included transportation, finances, and location, with additional struggles during the pandemic related to securing basic necessities like food and medication.