Orphanet J Rare Dis April 2023 PMID 37020310

Orphan medical devices have come a long way.

M Dooms

Mentions

35
Peak: 10 in Apr 2023
across 4 sources since Apr 2023

Extended reach

4,557
potential audience

Total likes

4

Video views

29

Mentions per month

Apr 2023 – Jul 2024

Where it's discussed

  • X / Twitter23 posts
  • Reddit10 posts
  • YouTube1 videos
  • News1 articles

AI synopsis

What people are saying

The discussions include references to the evolution of orphan devices and regulatory perspectives, emphasizing the importance of official rules, as seen in comments mentioning US and Japan regulations or highlighting the historical use of homemade devices. The tone combines factual appreciation with optimism about future developments, demonstrating a moderate but meaningful engagement with the topic.

AgreementModerate agreement

Most discussions recognize the progress made in orphan medical devices, reflecting general support for the article's message.

InterestModerate interest

Posts show a moderate level of curiosity, with some commenters highlighting the importance of regulation and innovation.

EngagementModerate engagement

Many responses reference specific examples, such as unapproved devices or regulatory differences, indicating thoughtful engagement.

ImpactModerate impact

The discussions acknowledge that advancements in this field could influence patient care and regulatory policies, suggesting a notable impact.

Abstract in brief

  • Orphan medical devices have evolved, but only the US and Japan have official regulations, while other countries lack structured rules.
  • Historically, surgeons often used unapproved or homemade devices, such as pacemakers, braces, nerve stimulators, and mist tents, for rare conditions.
  • The article emphasizes the necessity of officially authorized medical devices alongside drugs to effectively treat rare, serious, or chronic illnesses.]

Top posts

Most liked on X and Bluesky
GrupoGPS_SEFH
@GrupoGPS_sefh · X

Para más información

Mar 20, 2024 · 4 likes · 1,752 followers View post →
dazzle4rare
@dazzle4rare · X

Orphan medical devices have come a long way https://t.co/sng4OYJJO6

Apr 7, 2023 · 1,365 followers View post →
Marc Dooms
@DoomsMarc · X

@medtecheurope https://t.co/R5jDu4J5n5

Apr 10, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@US_FDA https://t.co/R5jDu4J5n5

Apr 9, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@BrittBlocker_ https://t.co/R5jDu4J5n5

Apr 9, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@rarepatientvoic https://t.co/R5jDu4J5n5

Apr 9, 2023 · 62 followers View post →

All mentions

Marc Dooms
@DoomsMarc · X

https://t.co/R5jDu4J5n5

Jul 9, 2024 · 62 followers View post →
GrupoGPS_SEFH
@GrupoGPS_sefh · X

Para más información

Mar 20, 2024 · 4 likes · 1,752 followers View post →
Marc Dooms
@DoomsMarc · X

https://t.co/R5jDu4J5n5

Jan 30, 2024 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@RareDiseases @US_FDA https://t.co/R5jDu4J5n5

Dec 19, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@MerckHealthcare https://t.co/R5jDu4J5n5

Sep 19, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@historyatnih @NIHClinicalCntr https://t.co/R5jDu4J5n5

Jun 30, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@RareDiseases @CurePSP https://t.co/R5jDu4J5n5

Jun 6, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@FDADeviceInfo @US_FDA https://t.co/R5jDu4J5n5

May 19, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@eaHealthEU https://t.co/R5jDu4J5n5

May 16, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@AdvaMedUpdate https://t.co/R5jDu4J5n5

May 1, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@MDDIonline https://t.co/R5jDu4J5n5

May 1, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@MedTechCon https://t.co/R5jDu4J5n5

May 1, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@MedTechBoston https://t.co/R5jDu4J5n5

May 1, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@MedTechBoston https://t.co/R5jDu4J5n5

Apr 29, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@BioWorldMedTech @medicaldevices @FDADeviceInfo https://t.co/R5jDu4J5n5

Apr 10, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@medtecheurope https://t.co/R5jDu4J5n5

Apr 10, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@BrittBlocker_ https://t.co/R5jDu4J5n5

Apr 9, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@US_FDA https://t.co/R5jDu4J5n5

Apr 9, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@rarepatientvoic https://t.co/R5jDu4J5n5

Apr 9, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@Biomedalliance @EU_Commission @MarcGewillig https://t.co/R5jDu4J5n5

Apr 9, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@ESCAdvocacy @escardio @arbelo_e @EU_Health @peterliese @brandobenifei @MEPHeartGroup @Biomedalliance @EP_Environment https://t.co/R5jDu4J5n5

Apr 9, 2023 · 62 followers View post →
Marc Dooms
@DoomsMarc · X

@FrontiersIn @FrontPediatrics https://t.co/R5jDu4J5n5

Apr 8, 2023 · 62 followers View post →
dazzle4rare
@dazzle4rare · X

Orphan medical devices have come a long way https://t.co/sng4OYJJO6

Apr 7, 2023 · 1,365 followers View post →
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