May 2023 PMID 37143135

Pediatric joint hypermobility: a diagnostic framework and narrative review.

Louise Jane Tofts, Jane Simmonds, Sarah B Schwartz, Roberto M Richheimer, Constance O'Connor, Ellen Elias, Raoul Engelbert, Katie Cleary, Brad T Tinkle, Antonie D Kline, Alan J Hakim, Marion A J van Rossum, Verity Pacey

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Mentions

33
Peak: 22 in May 2023
across 5 sources since May 2023

Extended reach

65,052
potential audience

Total likes

416

Video views

8,127

Mentions per month

May 2023 – Oct 2025

Where it's discussed

  • X / Twitter27 posts
  • YouTube3 videos
  • Facebook1 posts
  • Instagram1 posts
  • News1 articles

AI synopsis

What people are saying

The discussions reveal mixed feelings about the new diagnostic framework, with posts labeling the guidelines as 'terrible' and emphasizing the importance of support regardless of diagnosis, which reflect skepticism and concern. Simultaneously, posts sharing comprehensive links and calling the publication a 'must read' demonstrate active engagement and recognition of its relevance for clinical practice.

AgreementLow agreement

Most discussions criticize the new guidelines, calling them 'terrible' and expressing dissatisfaction, indicating some disagreement.

InterestModerate interest

There is a moderate level of interest, with attention given to the new guidelines and their implications, but some posts show skepticism.

EngagementModerate engagement

Participants are actively engaging by sharing links, commenting on the guidelines, and referencing multiple sources, suggesting thoughtful involvement.

ImpactModerate impact

The discussions highlight that these guidelines may change practice and are considered important by professionals, indicating a noticeable impact.

Abstract in brief

  • This article discusses the challenges of diagnosing pediatric joint hypermobility, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility spectrum disorders (HSD) due to the lack of specific biomarkers and adult-based criteria.
  • The Pediatric Working Group has developed a new diagnostic framework with four main components—generalized joint hypermobility, skin and tissue abnormalities, musculoskeletal issues, and core comorbidities—to better categorize and understand hypermobility in children and adolescents.
  • The framework introduces eight subgroups to identify children with varying phenotypes and symptoms, emphasizing the importance of age-specific criteria and clarifying diagnosis and management strategies for pediatric hypermobility-related conditions.

Top posts

Most liked on X and Bluesky
Prof Cylie Williams
@CyliePaedspod · X

Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things have changed!! @PaceyVerity https://t.co/yTfDMFx67t

May 4, 2023 · 23 likes · 10 shares · 2,279 followers View post →
Prof Jane Simmonds
@jvsimmonds01 · X

Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Text - open access https://t.co/E8JxhwXEZs

May 6, 2023 · 17 likes · 7 shares · 2,197 followers View post →
OhTWIST.bsky.social now too
@H2OhTwist · X

Hat tip a friend off Twitter for tipping me off to both a) these new, TERRIBLE pediatric #HSD and EDS diagnostic guidelines And b) This great, albeit long, but super helpful in depth take down of same. Watch in chunks: https://t.co/PiidCpFOWJ #EDS #NEISvoid #MedEd #hEDS

Oct 5, 2023 · 6 likes · 2 shares · 8,348 followers View post →
OhTWIST.bsky.social now too
@H2OhTwist · X

In which new diagnostic guidelines for children are introduced: Pediatric joint hypermobility: a diagnostic framework and narrative review May 2023 Tofts, Simmonds, Schwartz et al https://t.co/10B8uuNRV2 #EhlersDanlos #EDS #hEDS #Hypermobility #HSD #NEISvoid #MedEd #Genetics https://t.co/oiSNnwdCTS

Oct 3, 2023 · 4 likes · 8,348 followers View post →
It’s not just anxiety
@notjustanxiety · X

@linzi_mcintosh @SEDSConnective @fibrocanada https://t.co/SOPJIbyTHW These are the new paediatric guidelines - they don’t often diagnose EDS in children anymore. Support and symptom belief definitely still needed whatever label is used

May 13, 2024 · 2 likes · 110 followers View post →
dazzle4rare
@dazzle4rare · X

Pediatric joint hypermobility: a diagnostic framework and narrative review https://t.co/1Dy2IjPrkT

May 6, 2023 · 1 like · 1,365 followers View post →

All mentions

Norton Children's Provider
@NCProvider · X

Dr. Jacqueline Fabricius shared key insights on pediatric MSK pain and rheumatologic conditions at the 2025 'Just for Kids' Symposium. Now available on-demand! Watch here: https://t.co/k2aT7AaXDN https://t.co/vVJufLBZDF

Sep 12, 2025 · 221 followers View post →
It’s not just anxiety
@notjustanxiety · X

@linzi_mcintosh @SEDSConnective @fibrocanada https://t.co/SOPJIbyTHW These are the new paediatric guidelines - they don’t often diagnose EDS in children anymore. Support and symptom belief definitely still needed whatever label is used

May 13, 2024 · 2 likes · 110 followers View post →
Szyzygy
@Szyzygy2 · X

RT @H2OhTwist: Hat tip a friend off Twitter for tipping me off to both a) these new, TERRIBLE pediatric #HSD and EDS diagnostic guidelines…

Oct 5, 2023 · 2 shares · 1,173 followers View post →
OhTWIST.bsky.social now too
@H2OhTwist · X

Hat tip a friend off Twitter for tipping me off to both a) these new, TERRIBLE pediatric #HSD and EDS diagnostic guidelines And b) This great, albeit long, but super helpful in depth take down of same. Watch in chunks: https://t.co/PiidCpFOWJ #EDS #NEISvoid #MedEd #hEDS

Oct 5, 2023 · 6 likes · 2 shares · 8,348 followers View post →
OhTWIST.bsky.social now too
@H2OhTwist · X

In which new diagnostic guidelines for children are introduced: Pediatric joint hypermobility: a diagnostic framework and narrative review May 2023 Tofts, Simmonds, Schwartz et al https://t.co/10B8uuNRV2 #EhlersDanlos #EDS #hEDS #Hypermobility #HSD #NEISvoid #MedEd #Genetics https://t.co/oiSNnwdCTS

Oct 3, 2023 · 4 likes · 8,348 followers View post →
PaedPhysioKHFT
@KHFTPaedPhysio · X

@thepaediatricp1 @jvsimmonds01 @TheEDSociety @ehlersdanlosuk @HMSACharity Here’s another link to the paper

May 7, 2023 · 190 followers View post →
Sinead Murphy
@corkphysio · X

RT @jvsimmonds01: Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Tex…

May 6, 2023 · 7 shares · 713 followers View post →
Matt Pearson
@MPearsonPO · X

RT @jvsimmonds01: Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Tex…

May 6, 2023 · 7 shares · 1,093 followers View post →
Dr Janet Deane PhD
@DrJanetDeane · X

RT @jvsimmonds01: Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Tex…

May 6, 2023 · 7 shares · 1,655 followers View post →
M.C. Scheper
@Doctor_Stretch · X

RT @jvsimmonds01: Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Tex…

May 6, 2023 · 7 shares · 1,036 followers View post →
@UniHertsPhysio
@UniHertsPhysio · X

RT @jvsimmonds01: Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Tex…

May 6, 2023 · 7 shares · 791 followers View post →
Matthew Low
@MattLowPT · X

RT @jvsimmonds01: Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Tex…

May 6, 2023 · 7 shares · 7,829 followers View post →
claire robertson
@clairepatella · X

RT @jvsimmonds01: Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Tex…

May 6, 2023 · 7 shares · 9,839 followers View post →
Prof Jane Simmonds
@jvsimmonds01 · X

Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Text - open access https://t.co/E8JxhwXEZs

May 6, 2023 · 17 likes · 7 shares · 2,197 followers View post →
dazzle4rare
@dazzle4rare · X

Pediatric joint hypermobility: a diagnostic framework and narrative review https://t.co/1Dy2IjPrkT

May 6, 2023 · 1 like · 1,365 followers View post →
Ellie Mayhew
@physioels · X

RT @CyliePaedspod: Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things h…

May 6, 2023 · 10 shares · 461 followers View post →
James Welch
@Ablefeet · X

This is essential for all those assessing kids with #hypermobility #podiatry #paediatrics https://t.co/Kk7z4yQMFK @PaceyVerity

May 5, 2023 · 1,033 followers View post →
ACPSEMdance
@ACPSEMdance · X

RT @CyliePaedspod: Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things h…

May 5, 2023 · 10 shares · 2,969 followers View post →
Andrew Pontin
@PontinAndrew · X

RT @CyliePaedspod: Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things h…

May 5, 2023 · 10 shares · 292 followers View post →
Rachel Kennedy, PhD
@Physio_Rachel · X

RT @CyliePaedspod: Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things h…

May 4, 2023 · 10 shares · 495 followers View post →
Angus Chard PhD (USyd)
@anguschard · X

RT @CyliePaedspod: Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things h…

May 4, 2023 · 10 shares · 203 followers View post →
Kirsty Murray (Mosley)
@MosleyKirsty · X

RT @CyliePaedspod: Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things h…

May 4, 2023 · 10 shares · 25 followers View post →
Kath Thacker
@kaththacker · X

RT @CyliePaedspod: Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things h…

May 4, 2023 · 10 shares · 439 followers View post →
Nicole
@Nicole_pates · X

RT @CyliePaedspod: Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things h…

May 4, 2023 · 10 shares · 32 followers View post →
Luke Kelly
@FootScience · X

RT @CyliePaedspod: Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things h…

May 4, 2023 · 10 shares · 2,421 followers View post →
Children's Podiatry Special Advisory Group
@Podopaeds · X

RT @CyliePaedspod: Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things h…

May 4, 2023 · 10 shares · 999 followers View post →
Prof Cylie Williams
@CyliePaedspod · X

Hot off the press!! If you play a role in diagnosis or assessing kids with #hypermobility this is a must read. Things have changed!! @PaceyVerity https://t.co/yTfDMFx67t

May 4, 2023 · 23 likes · 10 shares · 2,279 followers View post →
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