The discussions reveal mixed feelings about the new diagnostic framework, with posts labeling the guidelines as 'terrible' and emphasizing the importance of support regardless of diagnosis, which reflect skepticism and concern. Simultaneously, posts sharing comprehensive links and calling the publication a 'must read' demonstrate active engagement and recognition of its relevance for clinical practice.
AgreementLow agreement
Most discussions criticize the new guidelines, calling them 'terrible' and expressing dissatisfaction, indicating some disagreement.
InterestModerate interest
There is a moderate level of interest, with attention given to the new guidelines and their implications, but some posts show skepticism.
EngagementModerate engagement
Participants are actively engaging by sharing links, commenting on the guidelines, and referencing multiple sources, suggesting thoughtful involvement.
ImpactModerate impact
The discussions highlight that these guidelines may change practice and are considered important by professionals, indicating a noticeable impact.
Abstract in brief
This article discusses the challenges of diagnosing pediatric joint hypermobility, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility spectrum disorders (HSD) due to the lack of specific biomarkers and adult-based criteria.
The Pediatric Working Group has developed a new diagnostic framework with four main components—generalized joint hypermobility, skin and tissue abnormalities, musculoskeletal issues, and core comorbidities—to better categorize and understand hypermobility in children and adolescents.
The framework introduces eight subgroups to identify children with varying phenotypes and symptoms, emphasizing the importance of age-specific criteria and clarifying diagnosis and management strategies for pediatric hypermobility-related conditions.
Hot off the press!!
If you play a role in diagnosis or assessing kids with #hypermobility this is a must read.
Things have changed!!
@PaceyVerity
https://t.co/yTfDMFx67t
May 4, 2023 · 23 likes · 10 shares · 2,279 followersView post →
PS
Prof Jane Simmonds
@jvsimmonds01 · X
Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Text - open access https://t.co/E8JxhwXEZs
May 6, 2023 · 17 likes · 7 shares · 2,197 followersView post →
OT
OhTWIST.bsky.social now too
@H2OhTwist · X
Hat tip a friend off Twitter for tipping me off to both
a) these new, TERRIBLE pediatric #HSD and EDS diagnostic guidelines
And
b) This great, albeit long, but super helpful in depth take down of same.
Watch in chunks:
https://t.co/PiidCpFOWJ
#EDS #NEISvoid #MedEd #hEDS
Oct 5, 2023 · 6 likes · 2 shares · 8,348 followersView post →
OT
OhTWIST.bsky.social now too
@H2OhTwist · X
In which new diagnostic guidelines for children are introduced:
Pediatric joint hypermobility: a diagnostic framework and narrative review May 2023 Tofts, Simmonds, Schwartz et al
https://t.co/10B8uuNRV2
#EhlersDanlos #EDS #hEDS #Hypermobility #HSD #NEISvoid #MedEd #Genetics https://t.co/oiSNnwdCTS
Oct 3, 2023 · 4 likes · 8,348 followersView post →
IA
It’s not just anxiety
@notjustanxiety · X
@linzi_mcintosh @SEDSConnective @fibrocanada https://t.co/SOPJIbyTHW
These are the new paediatric guidelines - they don’t often diagnose EDS in children anymore. Support and symptom belief definitely still needed whatever label is used
Discover the diagnostic criteria for hypermobile Ehlers-Danlos syndrome. This video explores signs and symptoms, utilizing the Ehlers-Danlos Society checklist to help identify this complex connective tissue disorder.
This video reviews the 2023 reclassification of pediatric hypermobility disorders, emphasizing a new diagnostic framework with four key components to improve diagnosis and management of hypermobility in children and…
The activity focuses on recognizing, evaluating, and managing common and uncommon pediatric musculoskeletal problems, including joint hypermobility and rheumatologic conditions, with strategies for accurate diagnosis…
Dr. Jacqueline Fabricius shared key insights on pediatric MSK pain and rheumatologic conditions at the 2025 'Just for Kids' Symposium.
Now available on-demand! Watch here: https://t.co/k2aT7AaXDN https://t.co/vVJufLBZDF
@linzi_mcintosh @SEDSConnective @fibrocanada https://t.co/SOPJIbyTHW
These are the new paediatric guidelines - they don’t often diagnose EDS in children anymore. Support and symptom belief definitely still needed whatever label is used
RT @H2OhTwist: Hat tip a friend off Twitter for tipping me off to both
a) these new, TERRIBLE pediatric #HSD and EDS diagnostic guidelines…
Oct 5, 2023 · 2 shares · 1,173 followersView post →
OT
OhTWIST.bsky.social now too
@H2OhTwist · X
Hat tip a friend off Twitter for tipping me off to both
a) these new, TERRIBLE pediatric #HSD and EDS diagnostic guidelines
And
b) This great, albeit long, but super helpful in depth take down of same.
Watch in chunks:
https://t.co/PiidCpFOWJ
#EDS #NEISvoid #MedEd #hEDS
Oct 5, 2023 · 6 likes · 2 shares · 8,348 followersView post →
OT
OhTWIST.bsky.social now too
@H2OhTwist · X
In which new diagnostic guidelines for children are introduced:
Pediatric joint hypermobility: a diagnostic framework and narrative review May 2023 Tofts, Simmonds, Schwartz et al
https://t.co/10B8uuNRV2
#EhlersDanlos #EDS #hEDS #Hypermobility #HSD #NEISvoid #MedEd #Genetics https://t.co/oiSNnwdCTS
Oct 3, 2023 · 4 likes · 8,348 followersView post →
P
PaedPhysioKHFT
@KHFTPaedPhysio · X
@thepaediatricp1 @jvsimmonds01 @TheEDSociety @ehlersdanlosuk @HMSACharity Here’s another link to the paper
RT @jvsimmonds01: Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Tex…
May 6, 2023 · 7 shares · 7,829 followersView post →
CR
claire robertson
@clairepatella · X
RT @jvsimmonds01: Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Tex…
May 6, 2023 · 7 shares · 9,839 followersView post →
PS
Prof Jane Simmonds
@jvsimmonds01 · X
Pediatric joint hypermobility: a diagnostic framework and narrative review | Orphanet Journal of Rare Diseases | Full Text - open access https://t.co/E8JxhwXEZs
May 6, 2023 · 17 likes · 7 shares · 2,197 followersView post →
DR
dazzle4rare
@dazzle4rare · X
Pediatric joint hypermobility: a diagnostic framework and narrative review https://t.co/1Dy2IjPrkT
RT @CyliePaedspod: Hot off the press!!
If you play a role in diagnosis or assessing kids with #hypermobility this is a must read.
Things h…
May 4, 2023 · 10 shares · 2,421 followersView post →
CG
Children's Podiatry Special Advisory Group
@Podopaeds · X
RT @CyliePaedspod: Hot off the press!!
If you play a role in diagnosis or assessing kids with #hypermobility this is a must read.
Things h…
May 4, 2023 · 10 shares · 999 followersView post →
PW
Prof Cylie Williams
@CyliePaedspod · X
Hot off the press!!
If you play a role in diagnosis or assessing kids with #hypermobility this is a must read.
Things have changed!!
@PaceyVerity
https://t.co/yTfDMFx67t
May 4, 2023 · 23 likes · 10 shares · 2,279 followersView post →
N
Clinical Manifestations and Diagnosis of Hypermobile Ehlers ...
News
https://ojrd.biomedcentral.com/articles/10.1186/s13023-023-02717-2 (Accessed on September 14, 2023). Reproduced under the terms of the Creative Commons ...