Res Involv Engagem June 2023 PMID 37308922

Reflections on patient engagement by patient partners: how it can go wrong.

Dawn P Richards, Sabrina Poirier, Vina Mohabir, Laurie Proulx, Sue Robins, Jeffery Smith

Download social card

Mentions

142
Peak: 55 in Jun 2023
across 5 sources since Apr 2023

Extended reach

519,768
potential audience

Total likes

256

Video views

86

Mentions per month

Apr 2023 – Sep 2025

Where it's discussed

  • X / Twitter125 posts
  • Facebook12 posts
  • YouTube3 videos
  • Bluesky1 posts
  • News1 articles

AI synopsis

What people are saying

The collective social discussions reveal a high level of interest and engagement, with posts emphasizing systemic issues such as unconscious bias and lack of support, and citing examples of ineffective patient partnerships, which underscore the article's focus on challenges. The tone is reflective and constructive, encouraging improvement rather than blame, illustrating the potential for meaningful impact through ongoing dialogue and awareness.

AgreementModerate agreement

Most discussions acknowledge the importance of patient engagement and recognize its challenges, supporting the article's points about systemic issues and the need for improvement.

InterestHigh interest

The posts demonstrate high curiosity, with many references to specific examples and calls for reflection, indicating strong engagement with the topic.

EngagementHigh engagement

Contributors actively share opinions, experiences, and suggestions, showing deep involvement and thoughtful participation in the discourse.

ImpactModerate impact

The discussions highlight that understanding and addressing the challenges of patient engagement can lead to meaningful improvements in healthcare research and practice, though some responses focus more on reflection than immediate change.

Abstract in brief

  • The article discusses common issues that can occur when involving patient partners in research and healthcare, such as unconscious bias, lack of support, and ignoring their vulnerability, highlighting that these problems are more frequent than often acknowledged.
  • It emphasizes that patient engagement should be meaningful and active, involving collaboration in decision-making and research, but sometimes it goes wrong due to systemic shortcomings or biases.
  • The authors encourage readers to reflect on these challenges without assigning blame, seeing them as opportunities for growth and improvement in patient engagement practices to ultimately enhance project outcomes and experiences.]

Top posts

Most liked on X and Bluesky
Professor Karim Khan
@ProfKarimKhan · X

OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co/CdomVLVDVW

Jan 28, 2024 · 56 likes · 24 shares · 12,051 followers View post →
CIHR-IMHA Community
@CIHR_IMHA · X

1/2

Jun 28, 2023 · 41 likes · 15 shares · 1,292 followers View post →
Professor Karim Khan
@ProfKarimKhan · X

Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/CdomVLVDVW https://t.co/G87hVaDYvW

Jun 29, 2023 · 35 likes · 19 shares · 12,051 followers View post →
Dr. Dawn Richards, PhD
@TO_dpr · X

If you're still reading my thoughts and you'd like to learn more about what I've tweeted about - some of us covered some of these in a paper about #PatientEngagement gone wrong - https://t.co/KYaLl7sZqN /9

Jan 24, 2024 · 27 likes · 2 shares · 3,350 followers View post →
NIHR Involvement
@NIHRinvolvement · X

Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient engagement going wrong: https://t.co/0RSmPREVl8 https://t.co/FntPTICtm4

Oct 13, 2023 · 22 likes · 13 shares · 18,262 followers View post →
Dr. Dawn Richards, PhD
@TO_dpr · X

Our peer reviewed article by 6 patient partners about our collective experiences and examples related to patient engagement (= PPI in

Jun 27, 2023 · 11 likes · 3,350 followers View post →

All mentions

C17 Council
@c17council.bsky.social · Bluesky

Reflections on patient engagement by patient partners: how it can go wrong. << an important read! www.biomedcentral.com/epdf/10.1186...

Dec 11, 2024 · 1 like View post →
Clear Point Health
@ClearPtHealth · X

Click the link to explore reflections from patient partners in Canada, which shed light on common challenges in patient initiatives. Learn how we can evolve and improve these crucial collaborations. Read now! #PatientEngagement #HealthcareResearch https://t.co/CIQ4vRaTi0 https://t.co/VNCyGAe9hb

May 9, 2024 · 5 followers View post →
The ME Advocacy Project
@me_advocacy · X

RT @TO_dpr: @clinicaltrialON While we should celebrate the successes of #PatientEngagement in #Research and #Policy, it's also important to…

May 7, 2024 · 1 share · 158 followers View post →
Dr. Dawn Richards, PhD
@TO_dpr · X

@clinicaltrialON While we should celebrate the successes of #PatientEngagement in #Research and #Policy, it's also important to be aware of things that can go wrong, even if well-intentioned - https://t.co/KYaLl7sZqN cc @suerobinsyvr @Sabrina_Poirier @ProulxLaurie @vina_sdm @JefferySmithME .../5

May 5, 2024 · 5 likes · 1 share · 3,350 followers View post →
Rheumatoid Patient
@rheumpatient · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 31, 2024 · 24 shares · 1,852 followers View post →
Dr. Dawn Richards, PhD
@TO_dpr · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 31, 2024 · 24 shares · 3,350 followers View post →
Sabrina Poirier (On Hiatus)
@Sabrina_Poirier · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 31, 2024 · 24 shares · 5,932 followers View post →
Don Daniel Ocay
@DonDanielOcay · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 30, 2024 · 24 shares · 730 followers View post →
Dr. Amy Price
@AmyPricePhD · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 30, 2024 · 24 shares · 2,249 followers View post →
CAPA
@CAPA_Arthritis · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 30, 2024 · 24 shares · 2,175 followers View post →
Laurie Proulx
@ProulxLaurie · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 2,226 followers View post →
Molly Gordon
@shaboom · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 12,871 followers View post →
Richelle Sepulveda
@Really_Richelle · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 1,343 followers View post →
Long COVID Physio
@LongCOVIDPhysio · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 24,976 followers View post →
Carrie Anna McGinn
@Carrie_McGinn · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 1,477 followers View post →
Dr. Andrea C. Tricco
@ATricco · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 3,665 followers View post →
Daniel O'Brien
@Dani63991O · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 7 followers View post →
Niall Elliott
@dundeesportsmed · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 1,638 followers View post →
The Pelvic Pain Network
@PelvicPainNet · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 327 followers View post →
Dr. Jackie Whittaker
@jwhittak_physio · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 6,882 followers View post →
Navin R Kumar
@Nk6767231 · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 166 followers View post →
Peter O'Sullivan
@PeteOSullivanPT · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 57,374 followers View post →
Dr. Jane Thornton OLY
@JaneSThornton · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 6,771 followers View post →
Michael Ingle
@mikeinglephysio · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 29, 2024 · 24 shares · 906 followers View post →
Catherine Clase
@CMClase · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 28, 2024 · 24 shares · 2,015 followers View post →
Karen Litzy, PT, DPT
@karenlitzyNYC · X

RT @KarimKhan_IMHA: OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co…

Jan 28, 2024 · 24 shares · 20,041 followers View post →
Professor Karim Khan
@ProfKarimKhan · X

OPEN ACCESS: Patient engagement in research. The voice of the most important party--the patient partners. https://t.co/CdomVLVDVW

Jan 28, 2024 · 56 likes · 24 shares · 12,051 followers View post →
trudy
@trudyflynn_ · X

RT @TO_dpr: If you're still reading my thoughts and you'd like to learn more about what I've tweeted about - some of us covered some of the…

Jan 25, 2024 · 2 shares · 2,291 followers View post →
Dawn M Torrence Ireland
@cdhwings · X

RT @TO_dpr: If you're still reading my thoughts and you'd like to learn more about what I've tweeted about - some of us covered some of the…

Jan 24, 2024 · 2 shares · 1,143 followers View post →
Dr. Dawn Richards, PhD
@TO_dpr · X

If you're still reading my thoughts and you'd like to learn more about what I've tweeted about - some of us covered some of these in a paper about #PatientEngagement gone wrong - https://t.co/KYaLl7sZqN /9

Jan 24, 2024 · 27 likes · 2 shares · 3,350 followers View post →
Melrogers@chronicpainadvocate
@MelindaJaneOwe2 · X

RT @TO_dpr: "Reflections on #PatientEngagement by #PatientPartners: how it can go wrong" https://t.co/KYaLl7sZqN is now a peer reviewed & p…

Jan 20, 2024 · 53 shares · 1,792 followers View post →
@DrMroz@mstdn.ca and @drmroz.bsky.social
@DrMroz · X

Comment on “Reflections on patient engagement by patient partners: How it can go wrong” | Research Involvement and Engagement | Full Text https://t.co/FArRB9S49X

Dec 26, 2023 · 1 like · 2,151 followers View post →
Karen McCreesh
@McCreesh_Karen · X

Be reflective and plan for what can go wrong too! Ensure resources and training are in place for ALL involved and recognise the vulnerability of patient partners https://t.co/PyJ6bTHyLT https://t.co/pCU16zZTlq

Dec 15, 2023 · 2 likes · 5,850 followers View post →
Carolyn Thomas ☮️
@HeartSisters · X

@glenpyle And it's pervasive in patient partnerships, no matter the field. These invites tick off the #PatientsIncluded checkbox, while often wasting patients' precious time and energy...

Nov 13, 2023 · 1 like · 5,066 followers View post →
Patient Safety Learning
@ptsafetylearn · X

Article available via the #pslhub - Reflections on patient engagement by patient partners: how it can go wrong https://t.co/ECDU3BLokW (via @BioMedCentral) #patientsafety

Oct 18, 2023 · 9,690 followers View post →
Manuel Escoto
@M_F_Escoto · X

RT @AbSPORU: Next AbSPORU Journal Club takes place October 18th! ""Reflections on patient engagement by patient partners: how it can go wro…

Oct 16, 2023 · 2 shares · 140 followers View post →
Sol
@ArualSogar · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 16, 2023 · 13 shares · 798 followers View post →
@DrMroz@mstdn.ca and @drmroz.bsky.social
@DrMroz · X

Reflections on patient engagement by patient partners: how it can go wrong | Research Involvement and Engagement | Full Text https://t.co/amhSLpk4XC

Oct 16, 2023 · 2,151 followers View post →
Cathy Thomson
@cathythomsonPT · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 16, 2023 · 13 shares · 961 followers View post →
Long COVID Physio
@LongCOVIDPhysio · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 16, 2023 · 13 shares · 24,976 followers View post →
Sabrina Poirier (On Hiatus)
@Sabrina_Poirier · X

RT @HeartSisters: What I'll be doing Wednesday morning this week: "Reflections on Patient Engagement by Patient Partners: How It Can Go Wro…

Oct 16, 2023 · 2 shares · 5,932 followers View post →
Catherine J. Goodenough
@cathgoodenough · X

RT @HeartSisters: What I'll be doing Wednesday morning this week: "Reflections on Patient Engagement by Patient Partners: How It Can Go Wro…

Oct 16, 2023 · 2 shares · 690 followers View post →
Carolyn Thomas ☮️
@HeartSisters · X

What I'll be doing Wednesday morning this week: "Reflections on Patient Engagement by Patient Partners: How It Can Go Wrong" Journal Club @TO_dpr @Sabrina_Poirier https://t.co/nH9a2PxKCb

Oct 16, 2023 · 6 likes · 2 shares · 5,066 followers View post →
Dr. Dawn Richards, PhD
@TO_dpr · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 15, 2023 · 13 shares · 3,350 followers View post →
Lauren Kelly, PhD
@PharmaLauren · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 15, 2023 · 13 shares · 2,374 followers View post →
Laurie Proulx
@ProulxLaurie · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 15, 2023 · 13 shares · 2,226 followers View post →
Compassionate Cymru
@BywNawr · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 13, 2023 · 13 shares · 2,343 followers View post →
Dr. Steph Archer
@Stephthepsych · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 13, 2023 · 13 shares · 1,256 followers View post →
@PPIEglobal #GlobalHealthDialogue #PPIE
@PPIEglobal · X

Excellent paper based on experiences as patient partners in Canada. Presenting a number of examples experienced where patient engagement has been ineffective, demoralising & harmful. Good for reflection! Bad experience leaves painful scars. @NIHRresearch https://t.co/SGEhHJJsUn https://t.co/VlwSxekdVE

Oct 13, 2023 · 2 likes · 1,134 followers View post →
Kate Knighting
@KateKnighting · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 13, 2023 · 13 shares · 1,275 followers View post →
Jeni Tennison
@JeniT · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 13, 2023 · 13 shares · 9,178 followers View post →
Jeremy Taylor
@JeremyTaylorNB · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 13, 2023 · 13 shares · 8,092 followers View post →
GW4-CAT HP
@gw4_cat · X

RT @NIHRinvolvement: Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient e…

Oct 13, 2023 · 13 shares · 776 followers View post →
NIHR Involvement
@NIHRinvolvement · X

Take a look at this paper from 6 patient partners about their collective experiences and examples related to patient engagement going wrong: https://t.co/0RSmPREVl8 https://t.co/FntPTICtm4

Oct 13, 2023 · 22 likes · 13 shares · 18,262 followers View post →
PASSERELLE - SPOR National Training Entity
@Passerelle_NTE · X

RT @AbSPORU: Next AbSPORU Journal Club takes place October 18th! ""Reflections on patient engagement by patient partners: how it can go wro…

Oct 3, 2023 · 2 shares · 406 followers View post →
AbSPORU
@AbSPORU · X

Next AbSPORU Journal Club takes place October 18th! ""Reflections on patient engagement by patient partners: how it can go wrong""with Dawn Richards & Sabrina Poirier is going to be great! Bring your questions! https://t.co/JFjphgeWLg https://t.co/bNBUnLcUJB https://t.co/k7ZCHKSj91

Oct 2, 2023 · 6 likes · 2 shares · 986 followers View post →
Janelle Bowden
@JanelleBowden · X

@KWProScribe @KarimKhan_IMHA @PGee51 @lynn_laidlaw @Sabrina_Poirier I thought the same thing as moderator. I ended up realising I would just have to listen to it again once the recordings are out. I reckon there could be a reflections paper in there too somewhere team, though perhaps @TO_dpr’s paper does it justice https://t.co/98jQ2pDcTk

Sep 16, 2023 · 2 likes · 1,523 followers View post →
Robert Mitchell-Thain
@PBCRobert · X

RT @AngelaEddy13: Reflections on pt engagement by pt partners: how it can go wrong Key points Using Patient partners as a check mark Uncons…

Sep 11, 2023 · 1 share · 977 followers View post →
Angela Eddy
@AngelaEddy13 · X

Reflections on pt engagement by pt partners: how it can go wrong Key points Using Patient partners as a check mark Unconscious bias towards patient partners Lack of support to fully include pt partners Lack of recognizing the vulnerability of pt partners https://t.co/H1WYY0QiVV

Sep 11, 2023 · 4 likes · 1 share · 224 followers View post →
AQEM - Association québécoise de l'EM
@AQEM_SFC · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jul 12, 2023 · 19 shares · 496 followers View post →
@PPIEglobal #GlobalHealthDialogue #PPIE
@PPIEglobal · X

RT @TO_dpr: "Reflections on #PatientEngagement by #PatientPartners: how it can go wrong" https://t.co/KYaLl7sZqN is now a peer reviewed & p…

Jul 12, 2023 · 53 shares · 1,134 followers View post →
Deb Hazeldine MBE
@DebHazeldine · X

RT @JWailling: Interesting paper where authors share a number of examples they have experienced where patient engagement has been ineffecti…

Jul 12, 2023 · 8 shares · 5,374 followers View post →
CRMO
@Fight_CRMO · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jul 7, 2023 · 19 shares · 1,154 followers View post →
Jennifer Daly-Cyr
@jendalycyr · X

RT @TO_dpr: "Reflections on #PatientEngagement by #PatientPartners: how it can go wrong" https://t.co/KYaLl7sZqN is now a peer reviewed & p…

Jul 7, 2023 · 53 shares · 431 followers View post →
SkIN Canada
@canada_skin · X

RT @TO_dpr: "Reflections on #PatientEngagement by #PatientPartners: how it can go wrong" https://t.co/KYaLl7sZqN is now a peer reviewed & p…

Jul 3, 2023 · 53 shares · 47 followers View post →
Evidence-Based Therapy Centre
@EBTC_Galway · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jul 1, 2023 · 19 shares · 510 followers View post →
Eoin Ó Conaire
@EBTC_Eoin · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jul 1, 2023 · 19 shares · 2,765 followers View post →
Burning Nights CRPS
@BNightsCRPS · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 30, 2023 · 19 shares · 10,653 followers View post →
Niki
@Fizzbw · X

RT @FestivalPain: Journal Club on 6th July we are looking at this paper about areas for improvement for “Patient Partners” in health care a…

Jun 30, 2023 · 1 share · 1,251 followers View post →
Footsteps Festival
@FestivalPain · X

Journal Club on 6th July we are looking at this paper about areas for improvement for “Patient Partners” in health care and research. Check out previous tweets for booking link, free on zoom. Come & join the discussion

Jun 30, 2023 · 1 like · 1 share · 1,222 followers View post →
Linda Hunter Retired Nurse, MScN, PhD (C)
@lhunter1310 · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 1,645 followers View post →
drloritucker
@LoriBTucker1 · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 565 followers View post →
Hugh Simpson
@hughdsimpson · X

RT @ccs_cares: Want to make sure you engage with your consumer properly

Jun 29, 2023 · 4 shares · 342 followers View post →
Laurie Proulx
@ProulxLaurie · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 2,226 followers View post →
MSK SIG IASP
@MSK_SIG_IASP · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 300 followers View post →
trudy
@trudyflynn_ · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 2,291 followers View post →
José A. Menéndez, PT, DPT
@JMenendezDPT · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 592 followers View post →
Karen McCreesh
@McCreesh_Karen · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 5,850 followers View post →
Kristian Lyng
@kristianlyng_ · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 673 followers View post →
Dr. Dawn Richards, PhD
@TO_dpr · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 3,350 followers View post →
PulsePilot
@Pulse1Pilot · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 5,425 followers View post →
CIHR-IMHA Community
@CIHR_IMHA · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 1,292 followers View post →
Michael Rathleff
@MichaelRathleff · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 7,721 followers View post →
Sabrina Poirier (On Hiatus)
@Sabrina_Poirier · X

RT @KarimKhan_IMHA: Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/Cdo…

Jun 29, 2023 · 19 shares · 5,932 followers View post →
Professor Karim Khan
@ProfKarimKhan · X

Do you work with patient partners? Important contribution by @TO_dpr @Sabrina_Poirier and colleagues. https://t.co/CdomVLVDVW https://t.co/G87hVaDYvW

Jun 29, 2023 · 35 likes · 19 shares · 12,051 followers View post →
IJMSC
@IJMSCtweets · X

RT @ccs_cares: Want to make sure you engage with your consumer properly

Jun 29, 2023 · 4 shares · 1,148 followers View post →
Lily Ren
@LilyRen62385572 · X

RT @JoeyWong_oy: Important work ❤️ Spending time to build relationships, respecting their voices and truly engaging our patient and family…

Jun 29, 2023 · 1 share · 286 followers View post →
qwert
@logmein22 · X

RT @Sabrina_Poirier: Well, this publication sure is making a splash!

Jun 28, 2023 · 27 shares · 2,652 followers View post →
Joey Wong
@JoeyWong_oy · X

Important work ❤️ Spending time to build relationships, respecting their voices and truly engaging our patient and family partners

Jun 28, 2023 · 4 likes · 1 share · 327 followers View post →
Professor Gemma Sharp
@gemmasharp11 · X

RT @ccs_cares: Want to make sure you engage with your consumer properly

Jun 28, 2023 · 4 shares · 2,362 followers View post →
Lymphoma and Related Diseases Registry
@LaRDRregistry · X

RT @ccs_cares: Want to make sure you engage with your consumer properly

Jun 28, 2023 · 4 shares · 213 followers View post →
SPOR Evidence Alliance
@SPORAlliance · X

RT @CIHR_IMHA: 1/2

Jun 28, 2023 · 15 shares · 2,002 followers View post →
Monash STM - Community and Researcher Engagement
@stm_cares · X

Want to make sure you engage with your consumer properly

Jun 28, 2023 · 8 likes · 4 shares · 253 followers View post →
Jennifer Daly-Cyr
@jendalycyr · X

RT @CIHR_IMHA: 1/2

Jun 28, 2023 · 15 shares · 431 followers View post →
KT Canada
@KTCanada · X

RT @CIHR_IMHA: 1/2

Jun 28, 2023 · 15 shares · 3,787 followers View post →
Laurie Proulx
@ProulxLaurie · X

RT @CIHR_IMHA: 1/2

Jun 28, 2023 · 15 shares · 2,226 followers View post →
Dr. Dawn Richards, PhD
@TO_dpr · X

RT @CIHR_IMHA: 2/3 Consultez cet article stimulant rédigé par @TO_dpr @Sabrina_Poirier @ProulxLaurie @VinaMohabir @suerobinsyvr & @JefferyS…

Jun 28, 2023 · 3 shares · 3,350 followers View post →
Sabrina Poirier (On Hiatus)
@Sabrina_Poirier · X

RT @CIHR_IMHA: 2/3 Consultez cet article stimulant rédigé par @TO_dpr @Sabrina_Poirier @ProulxLaurie @VinaMohabir @suerobinsyvr & @JefferyS…

Jun 28, 2023 · 3 shares · 5,932 followers View post →
Sabrina Poirier (On Hiatus)
@Sabrina_Poirier · X

RT @CIHR_IMHA: 1/2

Jun 28, 2023 · 15 shares · 5,932 followers View post →
Dr. Dawn Richards, PhD
@TO_dpr · X

RT @CIHR_IMHA: 1/2

Jun 28, 2023 · 15 shares · 3,350 followers View post →
CIHR-IMHA Community
@CIHR_IMHA · X

2/3 Consultez cet article stimulant rédigé par @TO_dpr @Sabrina_Poirier @ProulxLaurie @VinaMohabir @suerobinsyvr & @JefferySmithME.

Jun 28, 2023 · 3 likes · 3 shares · 1,292 followers View post →
CIHR-IMHA Community
@CIHR_IMHA · X

1/2

Jun 28, 2023 · 41 likes · 15 shares · 1,292 followers View post →
JE Barnard
@J_E_Barnard · X

RT @Sabrina_Poirier: Well, this publication sure is making a splash!

Jun 27, 2023 · 27 shares · 2,830 followers View post →
Dr. Dawn Richards, PhD
@TO_dpr · X

Our peer reviewed article by 6 patient partners about our collective experiences and examples related to patient engagement (= PPI in

Jun 27, 2023 · 11 likes · 3,350 followers View post →
Kathleen Dennis
@Kath_Dennis · X

RT @Sabrina_Poirier: Well, this publication sure is making a splash!

Jun 25, 2023 · 27 shares · 464 followers View post →
Kathleen Dennis
@Kath_Dennis · X

Exactly @MaggieKeresteci ! Have you seen this recent excellent paper by @TO_dpr @Sabrina_Poirier and team https://t.co/XIKFgme3jQ https://t.co/oaBDdbNJpo

Jun 23, 2023 · 3 likes · 464 followers View post →
Gwynn Dujardin
@gadujardin · X

RT @Sabrina_Poirier: Well, this publication sure is making a splash!

Jun 22, 2023 · 27 shares · 2,106 followers View post →
Jeremy Grimshaw
@GrimshawJeremy · X

RT @JWailling: Interesting paper where authors share a number of examples they have experienced where patient engagement has been ineffecti…

Jun 22, 2023 · 8 shares · 5,166 followers View post →
Catherine Harrison
@CatHarrison4 · X

RT @JWailling: Interesting paper where authors share a number of examples they have experienced where patient engagement has been ineffecti…

Jun 22, 2023 · 8 shares · 1,082 followers View post →
Lisa Kidd
@lisakidd22 · X

RT @JWailling: Interesting paper where authors share a number of examples they have experienced where patient engagement has been ineffecti…

Jun 22, 2023 · 8 shares · 2,362 followers View post →
Daria Oller, PT, DPT, ATC
@OnTapPhysio · X

RT @LongCOVIDPhysio: @BioMedCentral Reflections on patient engagement by patient partners: how it can go wrong https://t.co/VyMpQRZR8O htt…

Jun 21, 2023 · 1 share · 3,233 followers View post →
Long COVID Physio
@LongCOVIDPhysio · X

@BioMedCentral Reflections on patient engagement by patient partners: how it can go wrong https://t.co/VyMpQRZR8O https://t.co/EzWIlg3klv

Jun 21, 2023 · 4 likes · 1 share · 24,976 followers View post →
Alison Hoens
@PhysioKTBroker · X

RT @hhask: .@TO_dpr @Sabrina_Poirier @VinaMohabir @ProulxLaurie @suerobinsyvr @JefferySmithME: Reflections on patient engagement by patient…

Jun 18, 2023 · 2 shares · 1,746 followers View post →
Sabrina Poirier (On Hiatus)
@Sabrina_Poirier · X

RT @hhask: .@TO_dpr @Sabrina_Poirier @VinaMohabir @ProulxLaurie @suerobinsyvr @JefferySmithME: Reflections on patient engagement by patient…

Jun 18, 2023 · 2 shares · 5,932 followers View post →
Helen Haskell
@hhask · X

.@TO_dpr @Sabrina_Poirier @VinaMohabir @ProulxLaurie @suerobinsyvr @JefferySmithME: Reflections on patient engagement by patient partners: how it can go wrong | Research Involvement and Engagement | Full Text https://t.co/vNkHeiPMia @BioMedCentral

Jun 18, 2023 · 1 like · 2 shares · 5,582 followers View post →
Sachia S. Powell
@sachiasp · X

RT @womenofteal: Advocates check out this article Reflections on patient engagement by patient partners: how it can go wrong https://t.co/…

Jun 16, 2023 · 3 shares · 123 followers View post →
Powell-Drescher Ovarian Cancer Research Foundation
@PowerOvarian · X

RT @womenofteal: Advocates check out this article Reflections on patient engagement by patient partners: how it can go wrong https://t.co/…

Jun 16, 2023 · 3 shares · 261 followers View post →
Christina Lizaso
@btrfly12 · X

RT @womenofteal: Advocates check out this article Reflections on patient engagement by patient partners: how it can go wrong https://t.co/…

Jun 16, 2023 · 3 shares · 6,065 followers View post →
Dee Sparacio
@womenofteal · X

Advocates check out this article Reflections on patient engagement by patient partners: how it can go wrong https://t.co/f9IG06GoHs via @EvaMay_CRM and @AdvocateCollab Excellent points made .Suggestions on how to improve #patientengagement #gyncsm

Jun 16, 2023 · 7 likes · 3 shares · 5,905 followers View post →
Elspeth Mathie
@elspeth_mathie · X

RT @SumanPrinjha: Reflections on patient engagement by patient partners: how it can go wrong *patient partners as a check mark *unconsciou…

Jun 13, 2023 · 1 share · 1,298 followers View post →
Dr Suman Prinjha
@SumanPrinjha · X

Reflections on patient engagement by patient partners: how it can go wrong *patient partners as a check mark *unconscious bias towrds patient partners *lack of support to fully inclde patient partners *lack of recognising vulnerability of patient partners https://t.co/F4pUEnVs5v https://t.co/78DnWLqJYQ

Jun 13, 2023 · 2 likes · 1 share · 3,094 followers View post →
Sabrina Poirier (On Hiatus)
@Sabrina_Poirier · X

RT @FibroidNetwork: @TO_dpr @Sabrina_Poirier @VinaMohabir @ProulxLaurie @suerobinsyvr @JefferySmithME " Reflections on Patient Engagement b…

Apr 24, 2023 · 4 shares · 5,932 followers View post →
Annette McKinnon
@anetto · X

RT @FibroidNetwork: @TO_dpr @Sabrina_Poirier @VinaMohabir @ProulxLaurie @suerobinsyvr @JefferySmithME " Reflections on Patient Engagement b…

Apr 24, 2023 · 4 shares · 10,508 followers View post →
Ken Lownds
@KenZeroHarm · X

RT @FibroidNetwork: @TO_dpr @Sabrina_Poirier @VinaMohabir @ProulxLaurie @suerobinsyvr @JefferySmithME " Reflections on Patient Engagement b…

Apr 20, 2023 · 4 shares · 4,260 followers View post →
Fibroid New Research
@FibroidNetwork · X

RT @FibroidNetwork: @TO_dpr @Sabrina_Poirier @VinaMohabir @ProulxLaurie @suerobinsyvr @JefferySmithME " Reflections on Patient Engagement b…

Apr 20, 2023 · 4 shares · 3,225 followers View post →
Fibroid New Research
@FibroidNetwork · X

@TO_dpr @Sabrina_Poirier @VinaMohabir @ProulxLaurie @suerobinsyvr @JefferySmithME " Reflections on Patient Engagement by Patient Partners: How it can go Wrong " @TO_dpr @Sabrina_Poirier @VinaMohabir @ProulxLaurie @suerobinsyvr @JefferySmithME #PPI @OPSORE @KenZeroHarm @anetto @Students4BE @DrNancyOlivieri @Deedoherty2 https://t.co/uia9rXSNn1

Apr 20, 2023 · 1 like · 4 shares · 3,225 followers View post →
What drives the focus on behavioral issues in ALS?
Facebook

https://researchinvolvement.biomedcentral. com/counter/pdf/10.1186/s40900-023-00454-1.pdf · No photo description available. Mary Kay Turner ...

Sep 19, 2025 View →
What are trial sponsors' responsibilities to ALS/MND participants?
Facebook

https://researchinvolvement.biomedcentral. com/counter/pdf/10.1186/s40900-023-00454-1.pdf · No photo description available. Mary Kay Turner ...

Apr 21, 2025 View →
**Attrition and discontinuation in amyotrophic lateral sclerosis ...
Facebook

https://researchinvolvement.biomedcentral. com/counter/pdf/10.1186/s40900-023-00454-1.pdf · No photo description available. Mary Kay Turner ...

Dec 12, 2024 View →
Hi, can anybody tell me if ALS is really very important? If we have ...
Facebook

https://researchinvolvement.biomedcentral. com/counter/pdf/10.1186/s40900-023-00454-1.pdf · No photo description available. Mary Kay Turner ...

Nov 15, 2024 View →
Is an ALS refusal feasible and what are the implications for EMS ...
Facebook

https://researchinvolvement.biomedcentral. com/counter/pdf/10.1186/s40900-023-00454-1.pdf · No photo description available. Mary Kay Turner ...

Aug 30, 2024 View →
Patient engagement involves actively involving patients and their ...
Facebook

https://researchinvolvement.biomedcentral. com/counter/pdf/10.1186/s40900-023-00454-1.pdf · No photo description available. Mary Kay Turner ...

Feb 1, 2024 View →
# **Misinformation Tactic: Scapegoating** **What is scapegoating ...
Facebook

https://researchinvolvement.biomedcentral. com/counter/pdf/10.1186/s40900-023-00454-1. pdf · No photo description available. Mary Kay Turner ...

Jul 11, 2023 View →
Combatting stigma and bias in addiction research by working with ...
News

Res Involv Engagem 2023; 9: 41. DOI: https://doi.org/10.1186/s40900-023-00454-1. Page 5 ...

Jun 30, 2023 View →
Motor neurone disease: Intense exercise increases risk, say scientists
Facebook

https://researchinvolvement.biomedcentral. com/counter/pdf/10.1186/s40900-023-00454-1.pdf · No photo description available. Mary Kay Turner ...

Jun 11, 2021 View →
Common pitfalls in developing a patient registry or clinical research ...
Facebook

https://researchinvolvement.biomedcentral. com/counter/pdf/10.1186/s40900-023-00454-1.pdf · No photo description available. Mary Kay Turner ...

Jan 17, 2021 View →
Are you involved in co-authoring medical or project papers?
Facebook

https://researchinvolvement.biomedcentral. com/counter/pdf/10.1186/s40900-023-00454-1.pdf · No photo description available. Mary Kay Turner ...

Nov 25, 2018 View →
Patient engagement in research: avoiding mid-test tinkering concerns
Facebook

https://researchinvolvement.biomedcentral. com/counter/pdf/10.1186/s40900-023-00454-1.pdf · No photo description available. Mary Kay Turner ...

Mar 19, 2018 View →
Learning from patient engagement best practices
Facebook

com/counter/pdf/10.1186/s40900-023-00454-1. pdf · No photo description available. Mary Kay Turner and 10 others. 11 reactions ·. 2 comments.

Jan 19, 2017 View →