Front Neurol November 2024 PMID 39555480

"Living with" -related hemiplegic migraine, a disease concept model.

Donna Schaare, Kendra Allison, Kara Skorge, Pangkong Fox, Laina Lusk, Sara M Sarasua, Ingo Helbig, Luigi Boccuto

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Peak: 4 in Feb 2025

across 2 sources since Nov 2024

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11,638

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Nov 2024 – Feb 2025

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AI synopsis

What people are saying

Participants express agreement about the importance of the comprehensive model, often mentioning symptoms like seizures and hemiparesis, as well as caregiver burdens, thereby demonstrating a core understanding and appreciation for the research's implications. The tone balances acknowledgment of the study's insights with curiosity about its clinical applications, indicating both respect and a desire for further development in this area.

AgreementModerate agreement

Most discussions recognize the value of the new disease concept model in understanding patient experiences, indicating general support.

InterestHigh interest

Participants show high interest, with comments indicating curiosity about symptom specifics and implications for patients.

EngagementModerate engagement

Conversations involve engagement with details about symptom reporting and caregiver impacts, reflecting meaningful interaction.

ImpactModerate impact

The discussions suggest the publication could influence clinical approaches and patient support strategies, although its immediate impact appears moderate.

Abstract in brief

The study explores the lived experiences of patients with related hemiplegic migraine (HM) and their caregivers through interviews, identifying core symptoms and impacts across medical, emotional, and social domains.
Commonly reported symptoms include seizures, hemiparesis, and unconsciousness, while underreported symptoms such as apneic episodes and loss of ability to eat were also documented.
Caregiver impacts, particularly related to their responsibilities and emotional burden, were highly emphasized, highlighting the need for a comprehensive disease concept model to guide clinical trials and support strategies.]

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