Publications by authors named "Birgit F Steffensen"

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Predictors of Health-Related Quality of Life in boys with Duchenne muscular dystrophy from six European countries.
Christiane Otto, Birgit F Steffensen, Ann-Lisbeth Højberg, Claus Barkmann, Jes Rahbek

J Neurol· April 2017

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European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences.
Julia Vry, Kathrin Gramsch, Sunil Rodger, Rachel Thompson, Birgit F Steffensen

J Neuromuscul Dis· November 2016

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206th ENMC International Workshop: Care for a novel group of patients - adults with Duchenne muscular dystrophy Naarden, The Netherlands, 23-25 May 2014.
Jes Rahbek, Birgit F Steffensen, Kate Bushby, Imelda J M de Groot

Neuromuscul Disord· September 2015

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[Functional assessment for people unable to walk due to spinal muscular atrophy and Duchenne muscular dystrophy. Translation and validation of the Egen Klassifikation 2 scale for the Spanish population].
Joaquín Fagoaga, Montserrat Girabent-Farrés, Caritat Bagur-Calafat, Anna Febrer, Birgit F Steffensen

Rev Neurol· May 2015

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Rasch analysis of clinical outcome measures in spinal muscular atrophy.
Stefan J Cano, Anna Mayhew, Allan M Glanzman, Kristin J Krosschell, Kathryn J Swoboda, Birgit F Steffensen

Muscle Nerve· March 2014

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[Translation and validation of the Egen Klassifikation scale for the Spanish population: functional assessment for non-ambulatory individuals with Duchenne's muscular dystrophy and spinal muscular atrophy].
Joaquín Fagoaga, Montserrat Girabent-Farrés, Caritat Bagur-Calafat, Anna Febrer, Birgit F Steffensen

Rev Neurol· June 2013

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Living with severe physical impairment, Duchenne's muscular dystrophy and home mechanical ventilation.
Pia S Dreyer, Birgit F Steffensen, Birthe D Pedersen

Int J Qual Stud Health Well-being· August 2010

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Life with home mechanical ventilation for young men with Duchenne muscular dystrophy.
Pia Sander Dreyer, Birgit F Steffensen, Birthe D Pedersen

J Adv Nurs· April 2010

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Developing and maintaining of user-defined personal competencies among young adults with congenital physical disability.
Ann-Lisbeth HØjberg, Birgit Fynbo Steffensen

Dev Neurorehabil· July 2008

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Adult life with Duchenne muscular dystrophy: observations among an emerging and unforeseen patient population.
Jes Rahbek, Birgit Werge, Anny Madsen, John Marquardt, Birgit Fynbo Steffensen

Pediatr Rehabil· April 2005

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Physical capacity in non-ambulatory people with Duchenne muscular dystrophy or spinal muscular atrophy: a longitudinal study.
Birgit F Steffensen, Søren Lyager, Birgit Werge, Jes Rahbek, Eva Mattsson

Dev Med Child Neurol· September 2002

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