Publications by authors named "Jes Rahbek"

Claim this Profile
P
Parents' advice to other parents of children with spinal muscular atrophy: Two nationwide follow-ups.
Elin Hjorth, Ulrika Kreicbergs, Thomas Sejersen, Ulla Werlauff, Jes Rahbek

J Child Health Care· September 2022

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
P
Parents' Experiences of Information and Decision Making in the Care of Their Child With Severe Spinal Muscular Atrophy: A Population Survey.
Kim Beernaert, Malin Lövgren, Jørgen Jeppesen, Ulla Werlauff, Jes Rahbek

J Child Neurol· March 2019

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
B
Bereaved Parents More Satisfied With the Care Given to Their Child With Severe Spinal Muscular Atrophy Than Nonbereaved.
Elin Hjorth, Ulrika Kreicbergs, Thomas Sejersen, Jørgen Jeppesen, Ulla Werlauff, Jes Rahbek

J Child Neurol· February 2019

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
P
Predictors of Health-Related Quality of Life in boys with Duchenne muscular dystrophy from six European countries.
Christiane Otto, Birgit F Steffensen, Ann-Lisbeth Højberg, Claus Barkmann, Jes Rahbek

J Neurol· April 2017

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
L
Labour market participation and sick leave among patients diagnosed with myasthenia gravis in Denmark 1997-2011: a Danish nationwide cohort study.
Asger Frost, Marie Louise Svendsen, Jes Rahbek, Christina Malmose Stapelfeldt, Claus Vinther Nielsen

BMC Neurol· November 2016

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
E
European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences.
Julia Vry, Kathrin Gramsch, Sunil Rodger, Rachel Thompson, Birgit F Steffensen, Jes Rahbek

J Neuromuscul Dis· November 2016

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
2
206th ENMC International Workshop: Care for a novel group of patients - adults with Duchenne muscular dystrophy Naarden, The Netherlands, 23-25 May 2014.
Jes Rahbek, Birgit F Steffensen, Kate Bushby, Imelda J M de Groot

Neuromuscul Disord· September 2015

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
H
How Narrative Journalistic Stories Can Communicate the Individual's Challenges of Daily Living with Amyotrophic Lateral Sclerosis.
Jørgen Jeppesen, Jes Rahbek, Ole Gredal, Helle Ploug Hansen

Patient· February 2015

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
1
184th ENMC International Workshop: pain and fatigue in neuromuscular disorders: 20-22 May 2011, Naarden, The Netherlands.
Imelda J M de Groot, Nicoline B M Voet, Henriët van Middendorp, Hans J A Knoop, Jes Rahbek

Neuromuscul Disord· December 2013

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
T
The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia.
Catherine L Bladen, Karen Rafferty, Volker Straub, Soledad Monges, Angélica Moresco, Jes Rahbek

Hum Mutat· November 2013

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
T
The European NeuroMuscular Centre (ENMC): 20 years on ….
Baziel van Engelen, Daniel Zollinger, Marita Pohlschmidt, Anna Ambrosini, Jes Rahbek

Neuromuscul Disord· April 2013

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
G
Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translational.
Pauline McCormack, Simon Woods, Annemieke Aartsma-Rus, Lynn Hagger, Agnes Herczegfalvi, Jes Rahbek

PLoS Curr· January 2013

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
[
[Journalistic narrative can complement health professional understanding in rehabilitation].
Jørgen Jeppesen, Ole Gredal, Jes Rahbek, Helle Ploug Hansen

Ugeskr Laeger· September 2012

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
C
Consensus statement on standard of care for congenital muscular dystrophies.
Ching H Wang, Carsten G Bonnemann, Anne Rutkowski, Thomas Sejersen, Jonathan Bellini, Jes Rahbek

J Child Neurol· December 2010

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
L
Living and ageing with spinal muscular atrophy type 2: observations among an unexplored patient population.
Joergen Jeppesen, Anny Madsen, John Marquardt, Jes Rahbek

Dev Neurorehabil· February 2010

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
A
Adult life with Duchenne muscular dystrophy: observations among an emerging and unforeseen patient population.
Jes Rahbek, Birgit Werge, Anny Madsen, John Marquardt, Birgit Fynbo Steffensen

Pediatr Rehabil· April 2005

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis
P
Physical capacity in non-ambulatory people with Duchenne muscular dystrophy or spinal muscular atrophy: a longitudinal study.
Birgit F Steffensen, Søren Lyager, Birgit Werge, Jes Rahbek, Eva Mattsson

Dev Med Child Neurol· September 2002

Social Media Activity not collected for this article yet.

Sign Up to Request Social Media Analysis